My journey in Lyme started back in May last year (21'). Its when symptoms really started to show but I had some symptoms for years prior so may be long term by now. (oldest symtoms are Rash, joint...
Is doing that a big no no? Ive read it but Ive also read lots of opposing views. Anyone tried it? Short of it is I started taking Rifampin after taking Doxy for over a month. About a week into...
If you've been around years then you know everyone is different. I dont want to scare anyone away from trying something that could be the one thing that works for them. I have seen on here that it...
Appreciate the info. Any idea what the deal is with the Byron White stuff? I mean if someone with no infection took this would they still have some sort of reaction to it? Confusing....
Man this tincture is really stirring something up. Ive been on Doxy, Banderol, Samento full dosage for a few months now and dont feel its had a huge effect on me. But 1 drop of A-Bart had me crawling...
Im positive for Lyme and one of my main symptoms for about 3 years has been hives that come and go, mostly my arms and torso. Ive been on Doxycycline for about 3 weeks now and have been getting a new...
Im back to update. Im a Lyme patient. Did some Igenex testing and it came back with a few bands. Honestly the MDL Labs WB was much more conclusive in my opinion, after I finally figured out how to...
Im slowly upping my dose of Banderol and Samento. Like 2 drops more per day. Only new symptom Ive noticed is I feel a little air hunger. Not sure wtf. Took Japanese knotweed 1 year ago and never...
First off Im not sure what symptoms are due to what. I had a rough couple weeks and (in this order) I took 8 days of Doxy, found out about the MTHFR thing so started B methyl vitamins and then...
Thanks Girlie. Ill continue on these herbs. ...
My Lyme doctor suggested taking these herbs while we wait for the Igenex results and before starting ABX. Does it make sense to start the herbs ahead of time? And would I see any increase in symptoms...
Do these herbs actually kill of disease? Or just kill biofilms and such? Isnt a HERX from lyme/etc toxins? ...
I was just starting them now as I wait for Igenex results. I’m concerned taking them as I’ve got this MTHFR along with potential MCAS thing and won’t know if it’s working and I’m experiencing a herx...
Funny you say that I was just watching a video yesterday they were discussing Disulfarim. Gonna do an Igenx test this week. Ive had a few tests already ELISA, Bartonella, WB with PCR stuff and DNA...
I have a question regarding taking Banderol, Samento and Stevia. If only taking these herbs (or all they supplements?) would I herx just from taking these if I had a Lyme or co-infection? Or would...
Thanks for your response. I took Doxy for about 10 days before finding out about this MTHFR gene thing I have and so started treating that with Methylated B vitamins. I saw improvement in my symptoms...
I appreciate this informative reply. My next question would be do you think that having antibodies (positive IgG) automatically means a current infection? I am responding well to treating a (recently...
Thanks Girlie. I will opt for this one more test before facing the music. Also going to discuss the WB results further with my alternative doc. He left it as a possibility that these symptoms are...
For those of you who know my story posted earlier Ive improved a bit since then. I am on a Lyme diet for 2 months (no gluten, dairy, sugar) but think either I am responding well to that, these...
So Im thinking of having one more set of tests done since Ive had opposing test results come back. Not sure whats false negative or false positive at this point, or if this truly is Lyme. Want to go...
My alt doc said there is a chance that I still currently have Lyme based on IGG results, but because I was responding to Methyated supplements and was feeling alot better we should continue down that...
Here is the info I received. Sample type: Urine Test performed by: L. Douglas This test utilizes the polymerase chain reaction (PCR) technology to detect the presence of targeted microbial DNA for...
This is what the DNA Connexions panel consists of. Borrelia burgdorferi F7 B. burgdorferi Osp A B. burgdorferi Osp B B. burgdorferi Osp C Babesia microti Babesia divergens Babesia duncani Bartonella...
Got DNA Connexions test results back today saying negative across the board. So ELISA negative Lyme WB negative but IgM negative IgG positive bands 41, 83/93 Borella afzelil: IgG/IgM neg but.. Igm...
My doctor (who is I hesitate to call a LLMD specific) but does treat people with Lyme is the one who told me these symptoms look less like Lyme and may be something else. I think that thought is...
Got some more results back today from MDL. My doctor states that IgG means that its something Ive had in the past, I guess meaning I have antibodies for but its not a current infection because of the...
Bump. Anyone have any experience here?...
Those headaches were from the lumbar puncture. They were unreal. Hope none of you ever experience pain like that. If you do I suggest laying down flat for as long as it takes to subside. And take...
Thank you Moose Safari. I recently came up on some information regarding a potential side effect to Bactrim, the antibiotic I took that started this chain of events. The TMP part of the antibiotic...
Any downside to taking this supplement? Any side effects? ...
So last night I stumbled on some information regarding Bactrim antibiotic which started this whole thing off for me. It said Bactrim could damage something that allows the body to absorb Thiamine B1....
Thanks all for your replies and the good information. I started taking Cymbalta to calm me down and it helped me get some sleep and mellow out the nightmares the first 2 mights. Havent taken it the...
Are you healing? Are things more under control? Im currently on Doxy day 4 or 5. Is there anything else I should be doing right now besides diet change, probiotics, foot baths? My vision has gotten a...
Is there a specific magnesium you recommend? Thanks for your reply. ...
Can anyone tell me if Lyme is able to cause psychological issues like this?...
*All symptoms come and go in the same day, everyday. Hi my name is Rob and Im yet to be diagnosed. I was bit by a tick 35 years ago as a kid in CT, (46 yo) my brother took it off and we just laughed...
Thanks for mentioning that Girlie. Confirms they (my gp) didn't do the Western Blot after the Eliza was negative. Couldn't get a straight answer on that. These new tests will include a bigger...
Thank you. I will update this thread as things come in....
Not sure what else I can do at this point. Blood has already been sent off....
They said they use different labs for different tests. The two they mentioned are MDL and Quest. I believe some of the bloodwork is to check something other than actual Lyme, something that would be...
I was under the assumption when going there that the testing was happening thru Igenex but when I asked I think the doctor said it was another place that was handling it. He has dealt with Lyme...
Obviously you're not a golfer. Joking, this is good info. The body is complex man! Thanks dude. ...
I just left blood for a full Lyme panel. Ive read that testing can be inaccurate but Im wondering if thats the more common experience, or does it only [/i]sometimes[i] go undetected? Do enough people...
Thank you Bailey ...
As the title says Im looking for a LLMD in the Ventura Ca or Santa Barbara area. Im doing my own research but in the meantime any help is appreciated....