The Health Care Bill passed tonight. What do you think and how will it affect you? Candii...
I forgot to also say that I used to post here a long time ago. But I might as well be new. Candii...
[b] 4 years and went through remission for a while. Now my lupus is active again. I have pleurisy right now and I hope I will have a quick recovery. My prednisone is kicking some pleurisy butt....
/community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif Yea hippimom and...
Hippimom, The weather here has been in the high 80's to 90. And it's supposed to be in the 60's right now. It's like Fall will never come. Plus the humidity went way up too. When the weather get hot...
I read that "House" has made a commitment to the LFA by mentioning Lupus on every episode. And they have to explain why or why it's not Lupus. It's supposed to get education and awareness out there...
Alwaysrosie, Ok next year lets meet in Cleveland and walk together. Or we can sit and enjoy lunch. We were only there for 3 hours and the time races by. I would love to meet you!!! We'll have lots of...
Hiiiiiii Barb, Alwaysrosie, Hippimom, and Sharentrials!!!! /community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif The Cleveland walk...
Tomorrow morning my family and I are participating in our first Lupus marathon walk. We are walking 3 miles and it's supposed to be in the 70's. It should be a cool and wonderful day. We raised...
Thank you Jody and Boo. It's just nice to talk with someone that is going through some of the same things as I am. None of the doctors can explain to me why I have a high white count. I have been...
I am new to forum too. I was hoping that someone would be willing to give me advice. Thank you. Kitty...
I have been diagnosed with Lupus for almost a year now. The Rheumy has told me that some of my symptoms aren't always from my Lupus but from Arthritis. The arthritis diagnosis is new to me. I keep...
I am so glad that I am not the only one feeling this way!! My Rheumy said that he doesn't think my symptoms are from my Lupus. WHAT!!!! My head felt like it was going to explode. I was soooo...
Marji, Hugs and sending lots of prayers that you get better. Stay strong!!!! Take care girl!! Kitty...
Thankyou alwaysrosie, babs and audreyann!! Thanks for the encouragement. I am hoping that my new med helps soon. The deep ache is a tiny better but nothing else yet. I just have to keep the faith...
Warning rant ahead...... /community/emoticons/confused.gif Do you ever feel like just climbing in bed, pulling the blanket over your head and never coming out??? How about when your family or friends...
Gagirl, I am at the end of my first year with Lupus. It's been very hard. The plaquenil helps. And finally I was able to try prednisone and it worked wonderfully. I am not on a maintance dose yet. My...
Alwaysrosie, I live 40 minutes from Cleveland. If you decide to walk let me know. I would love to meet you. I think what is so hard for me is that I have not had the guts to go to a support group yet...
Hi okie, Anti-d's can cause a loss or lack of inhibitions. The increase of Seratonin can cause a false feeling of 'I can do anything.' Also a compulsive feeling that makes you make decisions...
There is a walk for Lupus in Cleveland in September and I am thinking about trying it. Has anyone done one of these? What is it like??? It's 5K which for me it might as well be to the moon and back....
Hi alwaysrosie, I have been taking plaquenil for 8 months. It has help a lot with my fatigue and I am not in severe pain like I used to be. I am putting a journal together so I can keep track of my...
I finished the prednisone pack that my GP put me on. I felt good on the pack till the last day. The day I finished it I was having horrible pain and fever. The next day it cut by 50% and today it was...
Cathy I don't know what your MRI means but I wanted to let you know that your in my thoughts and prayers. I hope it's just a shadow!! That does happen sometimes. When do you go to the doctor to get a...
Hi hippimom, Summer time has proven to be the hardest season to get through. On the hot and humid days I am miserable! My pain increases and I am more days of fever. Oh and as the temperature raises...
Peacesoul, I completely understand everything your going through. I get the same thing sometimes. I hate it when they also say "well you don't look SICK." "you just need to get to bed earlier and...
Hi Patty, Congratulations on selling your house. That is a blessing. I hope your pain is better. Your in my prayers. Lots of hugs!! kitty...
Barbara, I am so happy that your home. I know what you mean being able to do mom stuff. I'm glad you got to shop with your daughter and get her ready for school. Your a really good mom! I hope you...
The doctor says that my lupus flare could have been caused by the fluorescent lights and stress that I had for 8 hours one day. When I get under fluorescent my skin turns very red, my joints swell...
Hippimom, your not a big bruised sweaty pig!! Your a wonderful smart lady. Hugs. kitty...
/community/emoticons/yeah.gif /community/emoticons/tongue.gif /community/emoticons/yeah.gif /community/emoticons/tongue.gif Congratulations on getting a compassionate and wonderful rheumy! You had a...
Thankyou hippimom and babs for your thoughts and prayers. I really need them. /community/emoticons/smile.gif Today I haven't been as jittery but I still feel ADHD. Even though I'm really not. My...
Hi Barbara, Lynnwood and Sharen, Thankyou for talking to me. I really needed it. Barbara I think about you often. I hope you are doing well. I have been tested for Leukemia many times this last year....
What are nightshade plants or foods?? And why do they call them nightshade? kitty...
[color=blue>I] prednisone. I'm not sure of what to expect. I see my rheumy beginning of September and I'll see what he says too. Anything else I should expect with prednisone? Will I feel better...
Thankyou hippimom, smokeyswife, and cnskris for all you support. It means a lot to me. /community/emoticons/tongue.gif Today is better than yesterday. I didn't have to stay on the heating pad all...
Feeling a little better today. I have only had chest pain 2 times so far instead of all day. I can walk without getting short of breath. I am still weak, achy, pain down my legs and headaches off and...
hippimom, smokeyswife, emmi, justchattin, dbab, mom46, ericsmom, thankyou for you thoughts and prayers. You are all so helpful. Today I am taking things very slow. I have a headache from coming off...
Thankyou hippimom. They gave me high dose of steriods in the hospital and then none before I left. Now I am starting to feel just awful. It's the steriod let down. So not nice!...
/community/emoticons/tongue.gif kitty ...
kitty...
I am having a heart ablation in a couple of days. I was wondering if surgery can cause a Lupus flare? Can Lupus attack the organ that is being surgically worked on? The heart ablation is when they...
Thankyou everyone for the great advice!!!! I finally got an appointment in a couple of weeks to see my Rheumy. I'll let him know about the memory problems that come and go. It's just nice to know I'm...
Sorry I haven't posted for awhile. My ablation is next week and I am very nervous. I have great faith in my doc. He says that he is going to ablate one side of the heart for my SVT tachycardia and...
Thankyou for bringing this subject up. /community/emoticons/tongue.gif I just made an appointment to have my hair cut, styled and colored. It's too long and too hard to blow dry some days. I'm...
Lately I have been forgeting things. I mean really forgetting. And I have been making mistakes at work. It's terrible and scary. I keep thinking it's just stress but then I have read some posts that...
Thankyou redrose. Congratulations on getting your SSI. I'm not ready yet but it's a struggle to work. Part time is sounding good for now. So it's when your doctor says that you can't work. That makes...
How do you work full time and be so tired? Manage all the doctors appointments and surgeries? I work full time and it's becoming so hard. I keep thinking how long can I last working full time? I drag...
Cathy, I hope you feel better soon. Boils are awful. Last month I had small boils in the middle of each armpit and below my ear where my lymph nodes are. The doc said it was related to my SLE and...
Everyone is so right. And I know what I really need to do to lose the weight. It's just harder with having lupus now. I think I have been in denial about the weight I have gained and depressed off...
bamagal, I know what your saying. I get such enjoyment from sweets. Hey I can't drink alcohol, I don't smoke and I don't use illegal drugs. At least I can eat sweets. I guess (it hurts to say) that I...