I just wanted to add, that for me, taking the meds a year ago would have given me side effects worse than most symptoms. I didn't take the plaquenil as I couldnt tolerate it. I have continually...
Hi there /community/emoticons/smile.gif I have been diagnosed for about a year now, and I have SO much trouble in figuring out what is what. I STILL really dont know! But.. I do know, the last time I...
I personally dealth with C. Diff for 8 LONG months. I acquired it either from working in a nursing home (I am a CNA) or during a hospital stay. C.Diff is a very difficult bug to treat. 80% of folks...
I want to cry as I just lost my whole post lol. But what I said was... Thank you Hippi for checking on me. The rheumy that was on call in my rheumy's practice is the one that finally helped me to...
Harmony, You mention that you have lyme and chronic ebv. If you don't mind me asking, how did you come to find out both of those diagnosises? Just wondering because they suspected lymes disease in...
LOL exactly! A medical degree would be great! Either that...or could I just have Dr. House live next door? After all isn't his motto...Its never lupus? Thanks for the chuckle Judy : ) Hugs Darlene...
Thank you harmony, I am trying to hang in there! I am just so confused. if this is the flu, I have never had a flu without coughing, or SOME kind of upper respiratory symptom. And if its lupus, I...
Its me again, I am sorry to be asking so many questions, I am just so sick right now. My rheumy gave me the script for prednisone, but told me to wait a few days to make sure this isn't viral flu....
I am sorry I worded that wrong. I am not taking any at all right now, I think I meant a pulse? I will take 20mg for 4 days, then 15mg for 4 days dropping by 5 each time until done....
Will it be bad for me to start the prednisone pulse if I DO have a viral illness? Just wondering since it inhibits the immune system, if it would be dangerous and I could get sicker? Thanks so much...
Wow, thank you Amy..it does help. It will at least help me sleep in the meantime. Thanks so much for posting. Darlene...
When I am in direct sun, my skin feels like it is being pricked all over with lots of little tiny pins. Not sure if thats what your talking about though. Darlene...
Hi guys, I have a question about lupus and lymphoma. Over a year ago I was diagnosed with undifferentiated connective tissue disease and my rheumy adds 'high probability of lupus'. In the past month,...
I too had strep throat and tonsilitis from the time I was 12 until I had them out when I was 16. I would have a case of tonsilitis nearly every month. I always wondered if having my tonsils out...
Ginny, I live in Kalispell Montana, which isn't all that far from Alberta... something to think about any way! Thanks for that info....
Thank you wonderful people so much for your answers. On Monday I am going to call my rheumy again since I didn't hear back. My gland is still swollen, and very painful. My fever has come down though....
Hi Rosie Thanks for the reply. I guess my question was this... can lupus cause us to have just the lymph nodes on the left side of our neck, collar bone and underarm swollen? Or would it have to be...
Hello everyone! Its been so long since I have been here! I haven't had a computer for a long time! But I am back...and I am sick..waaaaa. I have a quick question before I have to go back to my...
Razzle, I have this happen very often. But usually when I take my temp, (thinking its gonna be high) its 97.0 or 97.2. It feels every bit like I have a fever, but what I actually have is the...
I have had that exact thing happen, several times. Ouch. The pain is terrible! I am so happy that its all cleared up though, once they rupture and the fluid starts clearing out, all is usually well....
Barb, I forbid you to feel like you are being too negative here or to feel like you are always asking for help. We love you and care about you so much and we are the ones that you CAN be negative...
Oh dear one! I am so sorry to hear that things are so hard for you right now. I am having a hard time too, so my brain is thick and sticky and can't think of comforting things to say. I am thinking...
Redrose I know I have mentioned this before and it makes it sound like I am a ginger freak lol, but sipping some strong ginger tea is AMAZING. They have done medical studies on the anti nausea...
GInny I have been dealing with vertigo (room spinning dizziness) and mild dizziness and everything in between for a whole lot of years. The diagnosis I was given was migraines. Well, at first they...
Hi Carrie, I don't mind sharing my story at all. My health problems began in 1990 after having a c-section in giving birth to my daughter. When she was 6 months old, I caught what felt like the flu....
Carrie, Thank you so much for taking the time to respond to my post. I am sorry I didn't see it sooner as I have not been able to be on the pc too much. Boy you are right, simple routine procedures...
Oh I so agree. This current bout of fever came after a day of feeling INCREDIBLE! I felt so darn good. I got up, didnt want to waste a second, hopped in the car to visit my sis, begged her to go...
Lynwood I know your post was directed to Carrie, but I have a question on your thoughts about inflammation. I too deal almost constantly with fevers like I mentioned before. But blood work looking...
Carrie I was just laughing at myself as I realized I answered your post twice with virtually the same information....good grief. I am not doing well right now so I have an excuse right ? I am unsure...
Hi there, I went in with my last fever aches flare etc, and had all the blood work drawn, only to have it all come back perfectly normal. My rheumy said it didnt change the treatment or the dx, but...
Thank you all for your support. Its so great to be able to come here! I LOVE the zapping idea. Oh how I love it lol. What a grand idea! I am going to go around pointing my finger and saying zap out...
Stacie You mentioned that Lupus attacks your GI tract and I might have asked you this before, but what does that manifest as? Are there specific symptoms that you have as a result? thanks so much...
You all know how I have been batteling Lupus and C. Diff, plus the horrible migraines and I have had a really rough couple of months. I have been going through some new treatments for the c. diff...
In Florida when I was very sick, my husband went out and bought be a beautiful 35 gallon hexagon aquarium and I got to fill it with lots of fish. We had a beautfiul backgground and a faux log with a...
Alicia I just wanted to say that if you have fever of 104 or 105, you really need to be seen, even in an urgent care setting. They can take your blood and check your white cell count to see if you...
Just wanted to welcome you, and to say that when I have my "lupus" fevers, tylenol or advil does not bring them down much at all. It doesnt even take the pain away. Sorry that your not feeling good....
Hippi I am sorry I am posting so late, but I just got home. I am SO sorry sweetie that you are feeling like this. First I just want to give you a hug. Next I wanted to make sure that you are staying...
The last time that I had fevers, aches etc. I went to my rheumy, who did blood work. Everything, including my ANA and inflammation markers, came back normal. I had been having fevers for about 2...
This is probably a silly question, but it sure seems like our Lupus group feels pretty darn bad almost in unison. I know that none of us ever really feel normal, and we have good days and bad days,...
Hippi, I have had the EXACT symptoms you are describing. It really scared me. It felt just like you said, like I was in there somewhere, but I couldn't find me. When I had headaches one on top of...
Razzle, I just wanted to mention that last year, prior to my diagnosis, I had abdominal pain of an unknown origin, with a fever that went on for several months. The finally did surgery to remove my...
Carrie, I just wanted to say that I had low grade fevers for a year before my lupus diagnosis. I still have them. They come in spurts of two to three or four weeks and then I have a week or so off if...
Marji, Oh I hope you are feeling better today than you were yesterday! Did the rheumi happen to take your O2 sats? Just seems like that would be a quick way of determining if you need oxygen or not....
Barbara Lee, God Bless your precious heart. I feel so deeply for your situation. I sit and stare at the monitor, without words. There are many things I would say, but I do not want to cause trouble...
I am so sorry that you are having to worry about this all weekend! What you are experiencing is so very hard. Waiting is horrible and our minds race off in all different directions. Not knowing what...
Wow, loved the entire article. How informative. And it sure helped answer my questions about ovulation and pms fevers. I know that Ovulation can cause a raise in body temp, but the amount is very...
I wanted to comment on the D.O. issue. D.O.'s in my experience (I have had a general practitioner D.O. and a rheumy D.O) look at the whole body and whole person far more than an MD does. Does that...
I was just wondering if any of you get fevers with monthly hormone changes. Each time that I get really sick and flu feeling it either starts during ovulation, or right before or during my period....
Goodness, I get random pains just about everywhere hehe. But I have had them underneath my right ribcage, even had my gallbladder looked at very closely and nothing was wrong. No cause found for the...
Thanks Kristin for the information. My rheumy was very helpful today, she spent a lot of time with me. Basically she wants me to start back up on the Plaquenil on as high a dose as I can tolerate,...