You should call your insurance company and send them the blood test and doctor diagnosis for Babesia. Once I did that I got the zithromax approved. Until then they gave me the 5 day crap as well....
I like Metagenics Ultra Flora DF (Dairy Free). Plain yogurt is also great (no sugar added) if you can tolerate dairy....
I remember reading a while ago that the lyme brain can build up ammonia or some toxins. I am having a ton of brain issues and wondering what can be done to help detox the brain? If you know of...
Can anyone e-mail me the contact information for Dr. S in Howell NJ?...
Dr. E in Jackson was wonderful, but it takes 1.5 hours for me to drive to her office and therefore I moved to Dr. F in West Caldwell. Dr. F in West Caldwell is also good (although she has pros and...
Welcome to ther forum!...
Hi all. I am looking for a new LLMD after relapsing badly this week. Very very down and scared. Two years of treatment and worse off then ever before. Does anyone know Dr. M from West Orange NJ? Is...
On any antibiotic you should try and take a probiotic supplement. I use two types, both need refrigeration. One is ultraflora DF the other has 8 strains of stomache bacteria. This is a must do if you...
My LLMD told me that 25% of patients with lyme have a particular pathway from the disease that converts vitamin D into an inflamatory agent. There is a blood test for this pathway, it can be proven...
It seems to me that we need to change up our treatment every few months or the lyme gets away again. It can be as simple as adding vitamins or herbs or switching abx combos or adding detox or sauna....
If you can't get an actigal perscription (I couldn't) there is a vitamin supplement called A-F Betafood by Standard Processing for gallbladder support I took it the whole time I was on Rocephin and...
The nurse didn't say anthing at all intelligent, she is rather uninformed. I keep thinking I should switch nursing companies but I am sure that would be too complicated for my insurance to understand...
I know of one person who did IM Peniccilin three times a week for Lyme. It was after years of antibiotic treatments. She claims this was the final antibiotic treatment she did before she went into...
if your doctor writes the perscription, usual a local hospital will install it. Well, at least in NJ. You just need the magic perscription....
I have a PICC for my IV Doxy. The doc has told me IV Doxy is caustic, I drip very slow, yet after 7 weeks I have developed burning in the middle of my chest (pretty sure at the outflow point of the...
I just did an internet search and from what I found Xanax is not an SSRI, it looks like it is a benzodiazapam family. 5-HTP is a vitamin supplement. It is basically seratonin. There are three...
There are a lot of holistic, herbal or over the counter anti yeast supplements to chose from. Somewhere on this site I posted a list, but can't find it. An internet search should reveal quite a few....
3 mg Melatonin puts me to sleep 45 mins later. It is available in vitamin stores....
scorpio how long have you been on the IV Doxy, what dose and is it working? Any other abx at the same time? Just curious to compare notes. I am on week 7 IV Doxy and malarone 2 day, up to 200 mg...
It could be a yeast infection in the sinuses. Make sure you are taking some form of antifungal. Also, detox from the head and brain heads through the throat, they caused a lot of swollen glands for...
Lyme depletes seritonin in the brain. If you are not on an SSRI I have been told you should take 5-HTP three times a day and melatonin at night if have trouble sleeping though the night. That is what...
I needed IV due to a brain infection (so rifampin wasn't on the table), I started on Rocephin after 5 months had a reaction. Took one month or so off and went on IV Doxy. My LLDM also offered me one...
scorpio my TMJ cranio sacral chiropractor is in Manhattan. If you would like I can e-mail you his information. I highly recommend him. I think he was $75 a session after the first session which was...
I have heard that a successful babesia treatment takes 5 months because the life span of a red blood cell is 120 days (babesia is a protazoa living in your red blood cells, I saw mine in a live blood...
I had horrible TMJ, did the appliance, no help. Finally I was greatly helped by a cranial sacral chiropractor and breathing exercises before sleep. I don't wear the mough thing any more. I sleep...
Yes the orange color is totaly a side effect and is not necessarily linked to any liver or other problems. She got off of the rifampin after about three months as a mutual decision of her and the...
Other than the stuff you buy at the drug store, I have read vitamin B and immune support supplements help with canker sores. I also try not to get chapped lips or put my lips under stress. But I...
artemisinin is a free radical when it is metabolized in our blood stream, Dr. Schaller has a wonderful section on artemisinin in his bood "Babesia". His book has the most info on artemisinin in one...
I like to start slow but I am very sensitive. Everyone is different. I don't know what brand you are taking so the dosage might be different, but you might want to follow the instructions and see how...
Jenn I am so there with you. I don't trust my own emotional judgement any more. sEcond guess too much and snap off too much. I was very laid back, now I am crabby and anxious. I hate who I have...
She doesn't remember the exact dosage, I remember I looked up the dosage she was on in the PDR (Physician Desk Reference) and was like "wow this dosage is well above the maximum dosage in PDR book."...
it could be dry sink from the salt, try to moisturize with grape seed oil on days you don't detox bath....
Highly recommended you rinse/shower afterwords. You can soap as well. If you are very concerned about rubbing the toxins back use cool water your pores will close and nothing gets back in. If you...
One more thing, I read not to take Co Q 10 with Mepron as it reduces the effectiveness....
I have tried three different types of artimisin, They were each recommended by a health care practitioner and I think they are each high quality. you can buy each on line. They are not to be used...
I didn't have any jerking, but I did cry at little things or nothing and snap at nothing and curse at nothing for weeks....
My wife was cured of Bart using Rifampin at doses above the maximum for a few months. She was a big orange oompa loompa for weeks and weeks. I haven't tried Rifampin yet for my Bart, (because I am...
I have taken it on and off, it seems to help take the edge off some pain and allergies, It hasn't been a miracle supplement, but nothing really is....
What homeopathic gel did you find helpful for the gum pain? I had my amalgams removed but the gum pain is not getting better. Any other tips on the gum pain treatment would be appreciated....
My bartonella herx made me manic, obsessive and couldn't sleep. It lasted about 4 weeks. You might want to cut back the medication to half and go up slower if it is too disconcerting. I still get a...
Read the various detox tips in the forum and just detox all you can to combat the herx. I know it stinks, my herxes are usually 6 weeks long but they do end. You might want to try some form of...
I have been on IV Doxy for 7 or 8 weeks now and it just really started to help. I expect to be on it until I have a crisis of some sort (lose the PICC line, start getting side effects, whatever) or...
Grapefruit in general increases the absorbtion of most medications. It can be grapefruit, juice or the vitamin....
Wobenzymes 5-10 per day spread out on empty stomach. Reduces inflammation and blood sedimentation....
That list is pretty large and I don't recognize some of them. My nutricianist confirmed the theraputic dose of Co Q 10 is at least 200 and alpha lipoic should be 300. You cannot take Co Q 10 if you...
I sent you two LLMD names and numbers in NJ to your e-mail. They both were good docs for me....
Some flu shots still have mercury preservative in them. I was shocked to find this out. Check carefully if yours does. mercury in shots is illegal in NY, but still happens in NJ. After years of...
Myself and my friend both started IV Doxy two months ago. Our herx varied in intensity. Hers was worse. We both have CNS lyme, and I also have moderate brain encephalitis. Anyhow, the herx for us...
Regarding the hair loss, yes the Lyme can do that, but if you are taking DHEA (a OTC supplement) I suggest you stop as it can also cause hair loss if you shouldn't be taking it....
thanks for the empathy. the bad nausea, cramps and chills passed and now I am just having low stomache ache and aches and pains in my kidney regions. I am thinking - hey I will probably live. If it...