Hi Everyone, I hope all is well! I have just found out that I have a dear friend in NJ that has just received a positive WB. She has been sick for 10 years and is almost wheelchair bound!!! Can...
Hey, I am sorry I have missed your calls. I have sent you several emails but I don't think you are getting them.??? I am sorry to hear you are still struggling. I am still treating as well with NY Dr...
Hi all, I get these all the time and they are very painful. Nizoral shampoo works the best on them. They clear up in a matter of days!!! Best of luck to everyone! Thanks, Onmyway...
Bump!!!! Okay anyone in Ohio period!!! Let me know if you are interested in doing an article with a local newspaper!!!! Thanks, Diane...
Hi Everyone, I have started a new job working form home and I am doing Public Relations for an online book club. My project right now is to contact news, newspapers and radio all up and down east...
Hey Georgiagirl, The appt went well! The Dr. is fantastic very smart. He said I could possibly be throwing off more small clots since i have been having an increased level of chest pains! He ran 26...
Just and update to everyone, I am still dealing with this PE and Hypercoagulation. I had my levels up to 1.4 and then this past Monday I had my blood drawn again and it dropped to 1.0. Theraputic...
Hey Stutterbug!!!! How are you doing? I hope well. Can you gicve me an update on how you are what you are doing with your treatment? Sorry I have not posted to you sooner, I have been dealing with a...
Hang in there and voice what you want! It is your body and he is your Dr! It will be fine. He does have your best interest at heart! Did you talk to Mary Jo??? She is very sweet! I will call you...
I am sorry I did not get this and I am glad we got to talk this morning! I hope you are doing a little better! I was having some bad chest pains this afternoon and laid down. I know it is the blood...
Thank you all, still dealing with the Pulmonary Embolism! It is not shrinking and the blood is not thinning as quickly as they would like! It only went from a 1 to a 1.3 in 5 days. I see a long road...
Sorry did not respond! I will call you tomorrow after my appt! I am curious to see how Ultrasound went on the arm! Hopefully well! Lord knows we don't need another Pulmonary Embolism!!!! Hope you are...
Hi Everyone, I was in the hospital b/c I had a blood clot in the lower lobe of my lung! Not sure where it came from I imagine it was from the removal of my old picc that i had in for a little over a...
Hey girl, Yes is was the Tygacil until I got used to it! Now I have a lot of energy and don't sleep at all during the day anymore. Well very rarely! No problem about yesterday and all is fine they...
Hey Herogiagirl, Plateaued, just like we talked about today! I was thinking after we hung up and I really think you should tell him that is how you feel, like you are not improving like you were and...
Thank you! I am sorry I did not get to talk to you much the other night! People are still calling and emailing me! The flier is still up on the LDA website. I have received a few calls today and a...
I will email you privatley! Let me get some stuff together!! It will be tomorrow! Thanks, Diane...
BUMP!!!!...
Thank you very much! I am glad to hear from you! How are you feeling? I will definitely let you know more after I meet with them tomorrow! Thank you for making the drive last night I truly appreciate...
Hi Everyone, I got a call today about us getting a support group together! It was from someone who was at the showing/seminar last night. It was a great showing but there is a lot of people looking...
I just wanted to thank everyone who attended the GA Lyme Seminar!!! It was a wonderful turn out and it made ALL the hard work worth it!!! We had about a 100 people and it was a wonderful turn out! We...
Bump!!!!! IT IS TOMORROW!!!!! Is everyone ready???? I am !!!! I am so ecxited and I think I have crossed every T and dotted every I!!!!! :)...
Bump 3 days left!!!!!...
Hey all, My insurance pays for it so I am not sure how much it is! My Dr. put me on it b/c I asked him to and he is and ID that believes in lyme and long term treatment. I also see and LLMD and he...
BUMP...
Hi All, I wanted to report how life has beeen on Tygacil. I was put in Tygacil or otherwise known as Tygacycline. It is in the Doxycycline family but much stronger. I do it through IV twice a day....
HEY GIRL, I'LL CALL YOU TOMORROW!!! STUTTERBUG WAS WANTING TO KNOW IF SHE WAS GOING TO GET TO MEET YOU! SHE WANTS TO KNOW IF YOU ARE GOING TO BE AT THE FORUM!!! I'LL TALK TO YOU SOON! HUGS, DI...
I am so gald to hear that!!! I was thinking about you today! I am not sure if Dina is going to make it or not! That is a long way for her to come and it will be late when she gets home! I am really...
Bumpity Bump!!!!!...
I will take care of them! Will you email me there names so I know who to look out for! There has been a wonderful response to this and I am very happy! Dr. B will be there and Theres. She called me...
Okay, Only one week away!!!! Yeah Have been getting a very good response on people who will be atttending!! I am very much looking forward to meeting everyone! I am moving it up in case we have any...
I get mine in the middle of the night! It comes up an chokes me it is really scary! I also get the hiccups at least once a day! I take Aciphex but it does not seem to be helping me. I think it is...
I do to my name is , search me and add me as a friend! onmyway...
If you don't hasve family to stay with let me know and I will see if I can block off a group of rooms for this event at a discounted rate! Keep in touch with me and let me know!!! I would be more...
Just moving it up so it does not get lost and for those who may not have seen it!! Onmyway...
NO Alcohol!!!! I know it is hard b/c i am 35 and I used to party all the time with my friends but if you want to get well you have to knock the alcohol off! Not even for special occasions! First of...
If so can you tell me experiences and can you use it while you are on IV Antibiotics??? That is my biggest concern. I am on TYGACIL, very expensive and I don't want it to interfere!!!! Thanks, Onmyway...
Thank you for the kind words! I know what I am going to do! I am going back to my endo and we are going to discuss this! I cannot keep having blood sugar issues! They are very scary and they are hard...
Thank you Gracie's mom!!!!! Someone's looking out for me!!! :) /community/emoticons/smilewinkgrin.gif Happy New Year!!!!...
Dowa & Dagger- I really appreciate all of your advice!!! It sounds like you are dealing with the same thing!!! I am not sure about the 31/ I think it stayed that way for a few days! I was getting...
I had a bad hypoglycemia incident about 6 months ago and my numbers dropped to 31 for about threee days in a row! My last CBC last week it was 61, this morning it was 73. Something is making my blood...
Bumpity Bump!!!...
It is also posted on UOS Website with a map as well!!!! Thanks, Diane...
For those of you who plan on coming to the Under Our Skin Showing in Roswell GA and the Seminar afterwards by Pat Smith there is an advertisement under Events on Craig's List and there is a link for...
Gracie's mom- Thank you for passing the words on! I did not know you have family in Atlanta! Maybe someday if you all visit we will meet!!! How is Gracie????? I think about her a lot! I wish you...
Soujourner, Thank you always for the kind words! I am so excited about this event! It was just posted on Under Our Skin Website and I have a few others helping me advertise and get the word out! I...
bump...