How to submit a photo from My iPhone? I want an opinion on if I have a bulls eye rash... Thanks...
I have been diagnosed with fibro for awhile. Other doctors disagree and say its an autoimmune thing and some say its both. But my blood work is not definitive. So for those who know they have fibro...
Thanks all, the parents feel confident that the 3 weeks is enough...think big argument with my brother. Sigh......
And thanks everyone. I live in San jose, CA...
So I actually found one, but man is it pricey. Its Dr S in San Francisco and I had to pay a lot of money at the time of booking. I HOPE this gets me some answers. Appt in OCT. I am so SICK and being...
I don't have the pain spots (at least not as they are on the diagram)...but I have 80 percent of the symptoms on the FIBRO 101 thread. Been having weird pains that keep getting worse for years now....
I see an older thread, but anyone have someone they are using now? Also what is the wait like to get in? If there is someone in Boston I can see soon...I am here for the next month before heading...
How long before you felt great? I am on it for 2 weeks now and nothing! Crap!...
I am on savella, 10 days now and my pain is worse than ever. HOPING it kicks in soon. Its only marketed for fibro in US, but yes, its an antidepressant and very similar to cymbalta......
OH, boy, I went in search of Dr M after seeing this post since I live near Los Altos and she has passed away a few days ago! How horrible, I assume from Lyme. That is very depressing. Glad the...
I grew up in NH and I am now 44. When I was 10, I remember I had a hard bump on my head. I was scratch like crazy at it trying to remove it, Finally I pulled off black insect parts and there was tons...
Sorry, became really ill with a ear infection (what the heck I am 44) and lost partial hearing in my right ear. Got the wrong drugs and was forced to wait 5 days in extreme pain. Then they sent me to...
Ok so he has not been acting himself...not big fever, not obvious illness, just not feeling right. Vague complaints..not hungry, tummy bugs him and mood is really off. 2 nights ago, at bath time, 2...
So been like this for years...my doctors say its a false positive on Western. Just wondering if there is any updates on this type of situation?...
Oh I was not as upset as I was thinking she was wrong, that I would find a way to figure it out. But, honestly lately I think she may be right. I am trying to get pg right now and so not doing any...
You know I think I get similar sensation on my legs sometimes, a patch that tingles (I want to say buzzes but its not a noise, but rather a sensation). Same with my ear.... Anyway, good to know I am...
Interesting! I had a massage therapist tell my years ago that one leg was longer than the other. I guess the thing that bugs me most is it started out of the blue after I was lifting my 80 pound dog...
Thanks, I suppose its hurts more cause my hair was the thing I have always got complements on, my best feature if you would. Very thick and slightly wavy, long and a nice auburn color -- natural, I...
Sorry that is "A weird" not "I weird"...
I weird, but intense tingling in your ears canal -- more toward the outside versus deep in. I find myself rubbing at my ear canal to try to stop it, but I can't. Pretty much just one ear most of the...
Yup, those pains sound like mine! You know the amazing thing is how many things your forget! I have had so many weird symptoms over time, its just insane! Lupus-lyme-lyme-lupus and now polymyositis....
Hey guys, yeah its the leg I am laying on and I was first told it was bursitis. I have tried all kinds of pillow solutions but none work. There are better and worse nights, but the pain is pretty...
You know it was around when I was on and off the pred that my hair started thinning. But it does not come out when you pull on it... That was something the dermatologist just checked. He said my hair...
Well not much of an update. Doctor thinks its not characteristic of lupus or anything else that he can tell. Thinks its either the hormones/meds I have been taken or I inherited the gene for female...
Anyone been pregnant with chronic lyme? If so, how did it affect the pregnancy and how did the pregnancy affect your symptoms???...
Oh man you guys, I was so settled on it being lupus. Now I am starting to think lyme again. I think I am going to go CRAZY....
Hi Stacey, I am on tramadol right now, but was on plaq and pred. My doctor wanted to do methotrexate, but I am trying to get pg and I guess that drug is a no no for that. I will ask about it for...
Muscle twitch is my middle name. Drove me nuts for 2 years, then slowed down. I had it almost constantly migrating around everywhere, now I just notice it sometimes. However, what happens now is...
Oh my toothache pains, got those too!...
King are you both lupus and lyme. I am diagnosed with both by two different doctors??? You seem to be in the same boat!...
Yes I also get relief from lower back exercises. I am seeing another doctor tomorrow for a second opinion....
King1234, I have not read too many posts at this point. Just getting started. Funny that my tests were from Igenix too. IGM, no IGG....
Hmm I have had IGG and IGM done at 8 times. Always IGM + with 3/5 bands -- I have had them all at various points and always IGG negative not a one band!!! I guess I gave up lyme as a possibility BUT...
I wanted to introduce myself. I have never been a member of a health related board till two days ago. My name is Lynn and I am 42 years old. Life seemed fine until fall of 2002. I noticed that my...
My doctor says that there is sero-negative lupus and if there is anyone with it - its me! I do have the occasional elevated ANA, but that is it! I have a lupus diagnosis and I still am not satisfied!...
hey I am going to have to try this. Cold in here right now and I could use a nice hot cup of water!...
Oh man that is horrible. I hope she gets better soon. Its so awful to have to suffer like that!...
I take Klonipin for PLMD aka twitches in my muscles while trying to sleep that wake me. It works wonders at .5mg for me, BUT only if I take it on occasion and no more than 3 nights in a row....
This is my story for the last 6 years... No doctors think I have lyme. They say lupus and fibro. Even my LLD -- actually only sees lyme patients) is on the fence but tips toward yes....
I have always has a positive IGM and always a negative IGG. Recently IGX said that herpes (the cold sore kind) can cause a false positive IGM -- but I talked to the director and he said its if you...
Wow, you just described me this past week. I have a sore scalp too and my hair is thinning. I noticed the scalp thing this year sometime and it comes and goes. I will have to see if its worse when I...
I wish you luck. I have had issues with anesthesia too, but I now tell them that and they give me a special kind or meds or something that makes me feel fine and HUNGRY. Stress the issue...a friend...
Just wondering as I have pain at night when sleeping on my side and its travels down from my hip to foot. I thought it was a disc, but my MRI is clear. So now I think its lupus but seems a odd...
Hey guys -- Thanks for the information! So to be more specific. My high risk neonatologist said a definitive "yes" on palquenil and "yes" on predisone at 5mg. Also yes on a pain patch of say fetinyl...
So for those who know, is plaquenil safe? My high risk doctor thought it was ok, but he thinks many things are ok if they help you get through the pregnancy!...
Ah...I have had my thyroid checked and its been low normal and normal over time. So low TSH as in hypERthyroid. So I was wondering if hyper can cause hair loss, but it seems to be hypo! Drat it all....
Yes its quite strange. I am going to see a dermatologist on Friday and have them take a look at it. My rheumy did not believe that it was thinning as I started out with TONS of hair. But when I can...
D -- Is it thinning to the point where you can see the scalp in the front???...
Well more info is that I have a high risk doctor and I lost twins in February when I go severely ill. I have a massive flare and persistent fevers that4 m would not go away. Thus I went on pred and...
Has anyone with chronic lyme has their hair start thinning and receding? Mine is doing this and freaking me out. I have always tested positive by IGM western blot with all 5 critical bands, but...