Excellent information! I wish the everyday neuros would take the time to watch some of this stuff! The new neuro I saw yesterday (who herself has MS) didn't know anything about this--how is that...
There was a time when doctors didn't tell people they had MS because of the thought that their knowing would actually make them worse. I don't know--it is a disease that affects your entire body in...
I also have Dawson's fingers on my brain MRIs and have been told this is a "classic" sign of MS. I have never heard that it is related to any other illness. However, I am curious about the metallic...
Excellent website and keep updated with them via my Facebook page. Seems to be moving fast (for the medical field) and can't wait until the Buffalo study is complete. (I registered to participate in...
Yes, I have had two episodes of MS "hugs" and they were horrific. Although mine each lasted approximately 15 minutes or less, I did go to the ER as I felt I was suffocating and the pain was extremely...
I tested positive for Lyme Disease again. My Ebstein Barr was high and my HHV-6 was also high. My doctor ran a slew of tests, and these are just some of the results he gave me. My major symptoms at...
My initial Q fever test was highly positive, so off the wall, to be honest I wondered if it was a lab error. I waited to do anything until I had a follow-up test about 3-4 weeks later, which turned...
I asked my Lyme dr. if the infectious disease specialist in Staten Island (for Q Fever consult) is just a pediatric physician--he said he is board certified in both pediatric and adult infectious...
It's my understanding the physician who ordered the test and to whom the results were reported is required by law to report it to the DOH (not the lab that did the testing). My result was reported...
Jenn in PA: I would recommend that you research Q Fever on the internet. Of all the articles I've read, I've not seen anything that indicates this is related to the "tropics." In fact, a quick google...
Physicians who don't want to deal with things that are "complicated", either because they don't know much about it, or there's a potential legal complication, or a possible impact on their license, I...
Since my dr. in NY is familiar with him, and he is the one referring me, I'm assuming he does see adults. I have not yet made an appt., but planned to confirm this when I do call....
No, I am supposed to call and make an appt, but to be truthful, I am dragging my feet. Since I've already started treatment, it's not urgent (I don't believe). This all costs so much money! I need to...
I don't know how to contact you as it says your e-mail address is unavailable. I'm not sure if I'm allowed to post the name of the dr. to whom I'm being referred on this board (???). Maybe you could...
I have only had one test that showed a current (IgM) infection of 1:1024. It's my understanding that once on treatment, after about 4-6 weeks, I will then have a repeat test. If the results show a...
Jenn in PA: To my knowledge, my family members do not have Lyme. My NY physician indicates it is standard procedure in NY and NJ that the DOH tests all family members. (The last person who tested...
I have been struggling with Lyme, MS and Hashimoto's disease since 2003. Had a very good year this year, however, on Ceftin, but progressively went downhill late fall/early winter. My doctor in NY...
I was wondering how Amy Tan was doing, and I am so glad you shared this--she gives me hope!...
I previously went to the ER after having shortness of breath with severe chest/upper abdominal pain with loss of arm use on the right side. Although in retrospect, I believe this was an "MS hug" (I...
I was given a diagnosis of MS and Lyme within one month of each other in 2005. At the time, I investigated treatments for both diagnoses. The treatment I looked into for MS (Copaxone) would have cost...
I also bought the DVD directly from the Under Our Skin website. I have watched it several times here at home. It's currently out on loan to my gynecologist, and I've asked him to forward to any other...
I am currently taking LDN for my MS, as well as Ceftin and Zhang herbs for my Lyme Disease. This combination has definitely been a miracle for me. I would encourage you to look into the LDN, as it...
I am currently on the antibiotic Ceftin, Zhang herbs (Coptis, HH and Circulation P) and also LDN (Low Dose Naltraxone). (I have Lyme Disease and MS.) I don't say this too loud, but I almost feel...
I am currently taking LDN (low dose Naltrexone) for my MS. (I also have Lyme Disease and Hashimoto's disease and taking other medications for those diagnoses as well). I am doing very well on the...
I am confused about the MS hugs. First, I have diagnoses of MS, Lyme Disease, Hashimoto's Disease and Hypothyroidism. Anyway, I was on IV Rocephin and Mepron for the Lyme Disease. On my second week...
There was a quote from Eugene Shapiro in our local paper that the thought that Lyme Disease could make someone go out and shoot someone else is ridiculous. Where are all of the quotes from the...
I have a question about LDN (low dose Naltrexone, right?). I gave my pharmacist a prescript ion to fill last Friday, and he is still working on it. He operates a compounding pharmacy, and I believe...
I can't find my dosage--we're remodeling and I can't find the box I stored this information in! I will keep looking and let you know when (if!) I find it....
I was prescribed IM Bicillin after finishing six weeks of IV Rocephin. I felt the Bicillin helped me a lot with my balance issues. (Recently diagnosed with a new cervical lesion on my brain MRI). I...
I will, once again, try to endure and have patience with this illness. Thanks for your support!...
Thanks for the input. The herbs I started today are Coptis two 3x/day, Circulation P two 3x/day, and HH two 3x/day. That's in addition to Ceftin 500 mg. 2x/day and my probiotics. I am starting them...
I recently went off of anbitioics (about the week before Christmas). My doctor was to send me the Zhang herbs, but due to a mix-up, I did not receive them. Finally, I just received the herbs (about a...
Thanks, everyone, for the information and input. Maybe Allicin isn't worth a try. I guess I will have to read up on the Zhang protocol....
My opthalmologist ended up ordering an MRI since the cause of my eye problems could not be found after ruling out many other diagnoses, including myasthenia gravis, Grave's Disease, etc. The MRI...
Thanks for your feedback! Anyone else???...
I have diagnoses of Lyme Disease, Multiple Sclerosis, Hypothyroidism and Hashimoto's Disease. I have not taken any meds for the MS, but have done antibiotic treatments off and on for three years for...
The Canadian MS Society is currently studying the use of Minocycline (a low cost antibiotic) to be used as a possible treatment for MS. They are studying the drug administered on its own and also in...
I had Ebstein-Barr virus when I was 17 years old and was in the hospital for a week (am now 43), have tested positive for M.Pneumoniae, have been told I have MS and have been told I have Lyme...
Kiera - It is confusing, Lyme and/or MS, even to me. I was initially told I had MS, but the doctors I was seeing locally at the time refused to rule out Lyme Disease. I felt it was important to do...
Dear bluebyyou, I was diagnosed with MS in April 2005 (based on two episodes of double vision and lesions on brain MRI) and with Lyme Disease one month later in May 2005 (initially tested through...
I was diagnosed with MS in April 2005 and Lyme one month later. I took a variety of antibiotics for 1 1/2 years for the Lyme and no treatment for the MS. Although always initially feeling sick with...