I live in Chadds Ford, Kennett Square area near Longwood Gardens. Very hyperpandemic for lyme. bcaring...
Traveler, I found your comments on the unfortunate decision to boycott the conference to be right on target. It does not make sense to boycott - our voices will not be heard. I attended the Phil...
Raw Runner, I have been treating for lyme, co-infections, cpn, EBV, etc. for a while. Yes, I take acyclivir (generic is cheaper) along with antibiotics. Have for quite a while. I don't know if I...
Hi, I believe the vets check blood titers on dogs when they are testing for lyme. My little dog tested positive in July. Vet gave her 30 days of doxy even with low titers. See if your sister can get...
James, You should contact your doctor, although I can appreciate that it is easier said than done. A couple of thoughts: You may have yeast which can show up on the skin in forms of rashes that itch....
Doctors prescribed Doxy because it covers not only lyme but co-infections, including Rockey Mountain Spotted Fever and most importantly Erlichiosis. If you don't have either RMS or Erlichiosis then...
I would also like to know about this. Small white bumps on ankles, very itchy. Thanks...
RD, Are you applying for disability? I think your PCP is saying that your disability will last more than 6 months, that there are a "multiplicity" of problems that affect your daily activities and...
Yes, I was approved for 13 months of IV antibiotic therapy that started November 2007 and ended January 2009 . At first I was on rocephin, then zithromax with rocephin 3x's a week plus mepron for...
nerrerdun, I was lab positive for Bartonella in 2003 with a lot of symptoms. I now test negative but have ALL the things you listed. My skin is driving me crazy. My ankles feel like dough, my bones...
Marie, It was great to hear that you are doing so well and without antibioitcs. I remember your long journey and how tough it was. Now you GO WOMAN! Happy 46th! bcaring...
king123, I am sorry to hear about he pancreatitis - that can be uncomfortable from what I hear. Is it true there isn't much they can do for it? You just kind of have to wait it out? I have taken so...
I am happy for you. He knew you were speaking the truth and knew it was the right thing to do. Hope you get better soon. You are still young and have every reason to look forward to a life of feeling...
Hello Dorit! You continue to amaze me with the articles and information you provide. I read your article and was horrified to think that there may be a link to bb infection. I must admit that mites...
Hi not again, Maybe you could take the antibiotic and the anti-fungal at the same time? 1bitten2xshy(great name!) - I'll bet the 200mg helped a lot. I just ended about 14 months of IV a couple of...
bump I apologize but I am anxious to hear from HopingtoFindCure...
Hi, Just checking to see if you are still taking doryx, biaxin, and plaquinil. How are you feeling? Any side effects? I have been on doryx for 3 wks. I am considering adding back in the biaxin which...
Another thought, Do you feel comfortable ordering your own meds? There are some here who do it because of cost reasons, inability to see an llmd, fee they are not being treated properly (you must be...
I suspect that your doctor is in Chester County. If so, then I went to Dr. F for a while so I do know about the belief that diflucan ALONG with a strict diet is something that he believes in. I know...
There was a study done by a German physician Dr. Fritz Schardz who had lyme and treated himself with I believe, minocycline and then diflucan. If you google his name you will find an article. There...
This is came form the Clongen home page - they do testing. It seems like there may be others. http://www.clongen.com/pdf/mycoplasma_testing_presentation.pdf Dr. Garth Nichols has presented at some...
Southern Chester County, Pennsylvania and probably Grand Traverse County, Michigan...
If you can remember the word SASH - it should help. It represents the steps you take. S = saline flush A = antibioitic administered S = saline flush H = heperin flush It sounds as if you will be...
Mikesickchick, I am sorry you are having such a tough day. I think I cried a lot out of frustration with coordinating everything - my mind and emotions were just not able to handle it all. Everything...
Yes, if you are in the NY area or can get there, Dr. Leo Shea is the best at recognizing issues specific to Lyme patients. I had my done in Philadelphia - by two different doctors and in retrospect I...
GeorgiaGirl, Exactly - I think I herxed almost IMMEDIATELY after the second injection! I mean I was really in pain all over my body and I had pretty bad anxiety. I didn't sleep well at all - I think...
OK - case solved and glad it is Rocephin! I think Dr. F avoids IV doxy if she can because it takes a long time to dose and the sun sensitivity is tough. I was on Rocephin the first 3 months, then...
GeorgiaGirl, I was ok with the first one. Then freaked at my husband on the second one because I thought he hit something. He didn't. Anyway, the pain would usually come a couple of days after the...
Hi Hezzer, You are on a lot of oral antibiotics and it is understandable that you have stomach issues and now diarrhea. I think it is time to ask about IVs You can still get yeast and diarrhea with...
I see the same doctor and she is very smart. I just wrote a long post and lost it. I have that happen occassionally and always wonder where it is hanging out. Would it be ok to email you? I can say...
Hi, Judy 3 sees the same physician I do and I was also treated with a combination of IVs for many months and am so much better. Oral antibiotics did nothing for me. I don't know your situation but it...
Hi Petma, All the posts made excellent suggestions. It is so upsetting to relapse and no, you aren't nuts. Just remember that. Minerals comment that you need to see someone who is experienced in...
pabowhunter, I posted a message to you under the thread titled "has anyone seen a c in southeastern, pa. Please read and email if you would like. Lots of help here - when I was first sick there was...
Hello Pabowhunter, I just put your name together......many hunt our property every year. I live in Chester County between Chadds Ford and Kennett Square. If you would like to email me I know a lot...
Ticker and HopingtoFindCure, I am the lady who found a tick attached to my leg about 14 days ago. My LLMD had me mail the tick to them and has sent it off for testing. At that time I was on Biaxin,...
Doryx 150mg bid Plaquinil 200mg bid Biaxin 500mg bid Does anyone have any thoughts on this combination? I think I have seen Phsinvent comment on it but I am not sure. My history is Lyme, Babesia, and...
Yesterday in the news they talked about the student killings in Germany and in Douthan Alabama. I started to think about the neuro-phsyciatric aspects of Lyme disease. I wondered when the press might...
I had a lumbar puncture in November of 2006 and I am sorry to say that that area has always had some discomfort in that area. I will never have another one. I strongly urge you to bring this to the...
I believe Dowa is asking about author and Dr. R S in Pokomoke, Maryland who testified before Congress on mold and toxins. Has anyone seen him or know anyone who has worked with him. He is well known....
Please ask for a show on Lyme Disease It is EASY. You just register, then get an activation link to enable you to post. There are a lot of stories. Just write a couple of short sentences - or your...
Did Dr. C indicate to you and your sister that she would be unable to help any further - that she had run out of treatment ideas? I do not mean to be disrespectful by asking such a direct question...
I was not surprised by shawdowmom's comments. I will not go to see Dr. C - she is over-priced, I did not care for her presentations at meetings in my area. I did try at one time to get an appointment...
Thanks Kim, Geeezzz- I don't know why we're fooling around here with to low a dose. My doctor is not easy to question but I guess I am going to have to talk about it becauseg I have been through too...
Ticker - I live in PA. We have a lot of snow today so I won't be able to send off the tick until tomorrow. Do you have any further info or ideas. Dorit - yes, I always like to exchange thoughts with...
Dorit, I hope you are doing a little bit better these days. I couldn't help but respond to your post telling us that they are putting up signs in your neighborhood warning about ticks! Do Germans...
One more thing - the shots do come in different dosages. So yours are 1,200,000 units? It is a big difference between one shot and 3 to 4. Hmmmmm. I wish this were all so much simpler....
Thanks for the reply Tracy. Were you on any IV's at any time. The reason that I ask is that I was - and for many months. We have now moved on to the injections after seeing about 70% improvement. I...
Lymefrustration, Georgiagirl, ktp812, I am trying to find out about the units in your injections. Do you what it was? If you were taking two or three shots a week was it 750,000units or...
Ticker and Sojourner, Once again, thank you so much for the advice. I didn't have the presence of mind to thing of Igenex testing - which is a great idea. Ticker - I removed it by grabbing its head...
For those of you on Bicillan IM could you advise what dosage you are on. I am on 1,200,000 units - one shot per week. For those who are getting two or three shots per week - what is your dosage?...