I have been dealing with chronic neuro lyme since the fall of 2007. Since 10/2019 I was diagnosed with lyme relapsing fever and as of 2/21 I have a bartonella recurrence as well. I have been treated...
Haven't been on in a while. My doctor switched my meds up on December 11th. I'm on bicillin injections once a week, topamax twice a day, valtrax 3x daily and 21 days of levaquin. I stopped levaquin,...
Hello, I am currently on minocycling, rifamprin and suprax along with some of jernigans herbs and others. In the last 4-6 weeks I've also done almost daily detox. I switched lyme doctors last week. I...
I've been off meds for 2 1/2 weeks and started jernigans protocol. I've posted threads about my increase of symptoms. I am most freaked out about the fact that my speech is impaired and I wonder if...
Finding721- it is good to hear that they are not an immediate threat. I have been doing my best to detoxify and cleanse and I feel like these sensations have definitely become more prevalent since...
Interesting information! I have not had the gum pain that you described, but do have constant tingling in my gums like someone is poking them with little pins....
I have also had these sensations, although it is not a painful burning for me. I have it in my abdomen area, down my legs, in my head. Sometimes, it is also a tingling feeling. It is interesting to...
Hello, I read over and over again about the need to detoxify with lyme and have done my best to take daily epsom salt baths and infrared sauna and ionic foot baths. I have not been great about...
I had a spinal tap in January of this year. I was a wreck for the days leading up for it. The actual procedure took less than 10 minutes and then I had to lay on my side for 3-4 hours drinking lots...
Thanks for posting. . .oh and I forgot to mention, I also have this strange feeling in my abdomen, kind of a tingling, numbness. Again, I've had this for a while, but it seems to have become way more...
I've mentioned in previous posts that I've been on treatment for 14 months, the latest is minocycline, rifamprin and pulsing in tindamax. Anyways, I have noticed in the last few days certain symptoms...
Wow. I am so sorry to hear about how you are feeling and am having so many of your feelings. I have had crazy anxiety and depression since this started. I am currently not taking xanax or an anti...
I have been taking epsom salt baths, infrared saunas and ionic foot baths for detox. Perhaps I am overdoing it on the detox. The last day or so I feel like I have aliens in my body, horrific anxiety,...
I, must also have this brain herx. The entire time that I've been dealing with this, I have dealt with constant anxiety and crying. I've wondered also about the ammonia in the brain. I also currently...
I haven't posted in a while, but am wondering if any of you share some of my symptoms. One of my persistent symptoms is vibrating/tingling around my mouth and down my legs along with many other...
Hi, I just wanted to see how your sister is doing. I hope she is seeing some improvement....
I just had a cd 57 last week and had one last september as well. My blood was drawn on a Tuesday. My first test was a 22. I heard from the nurse via phone today that mine last week came back at a 2...
His clinic is in New York. If you google his name, it'll give you his phone number. I called their office directly and ordered them. They shipped immediately and I had them with 2-3 days....
pcpc - I hear you. . . I'm on my 14th week of Mepron, Zithromax, Plaquenil and supposed to continue for another few weeks. I took a break today. The neuropathy has steadily increased. I just can't...
I've had this also. I would get it when I was running on one side of my head. I thought it was a little weird, but at the time had no other symptoms. Years later, little did I know, that it is a lyme...
I have this also, 24/7 in my head, throat, legs. I am in the middle of treatment and it has gotten worse....
Hi, I am currently on my 9th week of Mepron/Zithromax/Plaquenil along with the Zhang protocol. I was reading on one of the other posts about demyelinating polyneuropathy being huge with Bartonella. I...
pcpc what do you do to detox and to help autoimmune inflammation? Thanks....
Momtothree - I too share the ms symptoms along with extreme anxiety, constant crying and depression (who wouldn't be?!). I am on Mepron, Plaquenil, and zithromax. I will probably need to be treated...
Extreme anxiety, constant worrying and constant crying have been symptoms of mine for over a year and a half. I've been off/on abx treatment and am now on Mepron, zithromax, Plaquenil along with...
I am on Mepron, Plaquenil and Zithromax as well as Zhang protocol. I am 7 weeks into my latest treatment which I'm supposed to be on 4 months before starting something else....
I have neuropathy all over (vibrating tingling buzzing in head arms and legs) I am in the middle of long term treatment and have not had relief from it. I, too, would welcome any suggestions....
I have had 2 mri's of my brain and lower back along with a spinal tap. All came back negative. I was tested for lyme and did have a positive lyme test although the diagnosis is clinical. My lyme...
Thanks for the replies/advice. I do feel like I'm in the middle of a very strong neurotoxic dieoff. I had a ionic foot bath more than a month ago and was shocked at what came out. I do know my system...
Thanks for your replies and encouragement... I am being treated for lyme and babesia. The zhang protocol is a series of chinese herbs that can be taken with antibiotics or alone and are supposed to...
Hello, I've am six weeks into Mepron, Plaquenil, and Zithromax and am also doing Zhang protocol along with it. I have neurological lyme (ms/als symptoms). I have had previous treatment off and on...
Hi, I've had the vibrating feeling in my head, in my trunk area (lower back) and down my legs since I started treatment. It has not gone away. I've got a buzzing/tingling feeling thing that goes...
Pcpc can you tell me what your websiteis so I can email you privately. I really appreciate all of the information that you have shared. I live on the west coast and this has been a nightmare...
Hi, I live in Alamo, Ca and haven't looked into finding a support group. I would love to connect with you....
Thank you for sharing this information. I have been in a holding pattern for 2 months following 5 months of treatment (last treatment was IV Rocephrin). The treatments were very difficult for me. My...
Hello Shadowmom, I would definitely see a neurologist. My symptoms are neurological so that is where I started. Testing brought back negative results (MRI brain, lower back, EMG), ended up 8 months...
Hello Lisa, I cannot imagine having to go through this with my daughter. I have a 17 year old. My thoughts are with you. I mentioned in a previous post that I had IV Rocephrin 4 days a week for 6...
Hello, I was on IV Rocephrin for 6 weeks. It was done at my lyme doctors office exactly as you described. I went 4 days per week and it took 1 1/2 to 2 hours per visit...
I am supposed to start long term low dose IV antibiotics and am concerned because I have not tolerated at all the previous treatments that I've had. I was reading about this protocol and am wondering...
Very interesting article... I am supposed to start long term low dose IV treatment. I've had an extremely difficult time with prior treatments. I've had another gene test done and know I've got...
So sorry to hear about your daughter. Will keep her in my thoughts. Thank you also for the information about bartonella and depression/anxiety. I am dealing with crazy anxiety/depression since I...
Oh, and one more thing. . . I have had constant and overwhelming anxiety along with depression since this started. I am reading more about bartonella and depression/anxiety. However last fall I...
Hi, I went to see another lyme specialist in my area (I was already being treated by one). After undergoing another MRI and spinal tap, I am waiting to undergo a new treatment. I had been on 6 weeks...
Thanks, I do see my lyme doctor regularly and he doesn't seem alarmed by the increase. Of course, he also hopes for the clearing. It is helpful to know that some people herx the entire time. It is a...
Hello, I am in my 4th week of IV Rocefrin (sp?). I have been on doxy, as well as bicillin injections and biaxin prior to to the IV. I have not had any noticable clearing, just an overall increase of...
Sorry to get off the subject, but I was wondering how you ended up being diagnosed with so many things? As my lyme symptoms were solely neurological (headache, neckache, numbness, tingling, muscle...
To be free of the following: 1. Anxiety 2. Constant numbness/tingling/vibrating in my head and down my legs 3. Constant Muscle Twitching 4. The headaches 5. To be rid of my new symptom: weakness in...
I too have difficulty with handwriting. I started treatment (injections, biaxin and now IV Rocephrin over the last 2 weeks - the injections began in October). I've noticed also more weakness down my...
There is a Family Physician in Los Altos who is a lyme specialist. I don't know if we are supposed to give this information on the forum though....
Hello, I was diagnosed with lyme (positive IGM, negative IGG). I read the article that said that a positive IGG is the real marker? Anyways, I am with a lyme doctor and just started IV Rocefrin this...