well i did not get to ask Dr. R about this protocol because we had so many other things to discuss...he is so generous with his time we must have been in with him for 1 1/2 hours...amazing doctor and...
needshelp, yes, you are right...have a nurse coming once a week $115 per week...you might be able to get someone for less if you ask around, (pay them directly) ...the nurse we have is very reliable...
thanks...will let you know what Dr. R says, if i get to ask him...i have so many things to discuss with him....
Hi Cajungrl, glad you got some relief...have you ever tried a neti pot?...
Needshelp, believe me i totally understand the financial difficulties imposed on lymies with regard to the insurance non-coverage!!! but please, try to stay on the iv as long as dr....
Hi Brad, husband on iv antibiotics for 5 months now...only got covered for 28 days...dr. asked for extensions, denied...filed appeals within insurance co (empire) and finally an external appeal that...
Hi Momtomonsters, I think everybody is scared in the beginning...so in that sense welcome to the club...everybody is so different with this disease...my husband uses Align and Culturelle...
Hi lovelabs, sorry i don't know anything about bicillin...but please hang in there...as i constantly tell my husband, not everybody reacts the same to meds...take one day at a time...that is all any...
came across this idea of treating lyme at www.lymephotos.com anybody that has tried or has more knowledge...please respond...sounds like a very interesting theory...will ask Dr. R about it...
Hi all, husband was prescribed lyrica for lyme disease pain and just wondering if anyone here can tell me how it's helped/or not helped them...it's a low dosage 100mg once a day...then twice a day...
Ladies, my husband had unbelivable cracking of joints and after 3 months of iv antibiotic + countless supplements for lyme it has practically stopped...thank God...used to sound like his bones were...
To Willowrose, you are right...ACV is not good to take when you are on antibiotics because of the yeast issues...my husband has lyme and we used to take ACV daily before he was diagnosed...we will...
Hello All, Just wondering if anybody has any experience with this...did it help?? specifically ringing in the ears? husband has been prescribed 100mg (a very low dose). Thanks.....
Dr. R in nyc suggested my husband not get the vaccine...i however will most likely be getting it so that i don't bring home anything to him...have always gotten fllu shots in the past and have been...
Hi All, since my husband has been denied additional iv treatment by Empire BC/BS i need to arrange for a nurse to come to the house to care for the picc line...does anybody have a service they like?...
Hi NyLyme, have a fabulous llmd in nyc...email me if that works for you......
just curious...why only between the ages of 1-7???...
Hi Leah, sorry you and the kids are going thru this...it is very important that you get to a LLMD asap... please email [email protected] she will give you names of LLMD's in your...
Hi painsnbody, CajunGrl gave you good info...i read a good book called Beating Lyme by Leslie Fein...i'm sure turn the corner foundation will provide you with names of good LLMD in your area...please...
Hi Sophie, My husband has eye issue w/lyme...he has ocular neuritis...inflammation of the optic nerve...very sensitive to light, he actually wears glasses that are given the cataract patients...he...
Have you ever been tested for lyme disease and co-infections by a LLMD lyme literate medical doctor?...
I pray that this post will be able to help others. After a decade of experiencing mysterious pains, and a seemingly unrelated myriad of symptoms in different parts of my body with no explanation, I...
Hi all, getting ready to apply for disability for my husband...just want to know what to expect...has anybody run into problems getting approved...thanks....
didn't know that about burrascano and flax seed oil...my husband is taking it...so if anyone know more about this i would love to hear it...thanks.(fish oil gave him nose bleeds)...
hi unwillinghostess, love your name by the way...my husband has lyme and we also saw the dr. oz show...the sunlight sauna's are supposed to have a special technology where by it heats you up from the...
Hi All, My husband gets bad headaches as well...he was prescribed taxal by neurologist... he said this med puts a lid on a boiling pot and works in 15-20 minutes of taking it...although, he hasn't...
sojourner...from your lips to God's ears!!!! the tide can't turn fast enough!!!...
Hi CGrl, sorry u are feeling yuckie...not sure if this will help you but i drink lemon ginger tea every night after dinner and find that it really helps with digesting and bloating issues......
i too heard that it should be TOA free...i believe allergy research group has it in capsule and liquid form...my article says sensitive people should stay with one capsule or one drop per day for an...
i wonder if rinsing your teeth with hydrogen peroxide might help...any thought?? my husband is going to the dentist due to "plaque" build up between teeth...i hope this is not part of the lyme......
thanks Frango...think we'll hold off on the sauna for now at least for him...may order it for myself!... Denise the picc line entry is just above the elbow...don't want to take any chances with an...
hi all, my husband and i have been taking apple cider vinegar for over 6 years (organic w/the mother) it is a natural antibiotic that creates an alkalyine environment in the body...guess what lyme...
Hi Momtomonsters, sorry you have this awful disease...my husband has lyme as well and we only really got diagnosed after he had surgery in 2/08 on his right index finger for unexplained inflammation...
Hi Denise, My husband just had iv picc line put in today and the nurse said we should hold off on detox baths and sauna because the sweating could lead to an infection...he had been doing detox baths...
thanks lovelabs and cajungrl, ...spoke to an appeals nurse who suggested the dr. request additional treatment after the first week because it will definitley be denied and until it's denied i can't...
looking for any studies or articles that document the success of long term iv treatment...insurance co will only provide 28 day per IDSA guidelines...i'm going to fight them as much as i...
what gallbladder medicine? my husband is starting rocephin iv on monday supposedly for 6 months? he just got back from a sonogram of his gallbladder so that we have a base going forward suggested by...
is MJ Fox's parkinson's caused from lyme? is saw a post by him some time ago...hate to see anyone get this awful disease but what spokespersons they could be...just curious......
welcome lookingtoheal, wow, you sound like my husband...i often say he walks like a 85 year old man...he is 45...his symptoms got really bad after he had surgery on a swollen right index finger...he...
tryingAnYthinG, sorry, didn't notice the side bar...thought i was replying to Amy C... tickedoff (Carol)...
Amy, he has extreme fatigue, unexplained inflammation of knees, ankles, finger (for which he had surgery in 2/08 not knowing he had lyme at the time, and received subsequent steroid injections...not...
LOL...my husband's whole body makes crackling, popping noises...hang in there Nicky....
i'm glad you shared that with all of us...i will pray for you and your mom...when my mom died 9 years ago, i tried to do something everyday that would make her smile...i still sometimes pick up the...
Welcome Amy, so sorry to hear that you are all lyme infected...i will pray for all of you...it also makes me really mad that this disease is still so controversial and that the majority of the...
thank you CajunGrl and ttlittlestar...will investigate......
thanks minerals and stutterbug, good to know it should subside but it is maddening to him at times...will find out about thyroid as you suggest...he had extensive testing by an immunologist so i will...
Stutterbug, are you talking about steroid injections?...if yes, i know sometimes you need to do what you need to do to get some relief, but my husbands dr. said steroids and lyme are equivalent to...
Strwbrryblnd, my husband was also diagnosed with fibro also in fall '08...which we accepted for few months...then i googled misdiagnosed fibro...LYME!!! and sent him to an accupuncturist who asked on...
Hi Strwbrryblnd, Sorry to hear you have lyme but at least you now know the enemy and can begin fighting...am a new member also, my husband has lyme, and dr. suspects for 15 years...he also had a...
...my husband is really suffering with this...thanks much....