I agree about the ALS being Lyme and so does our LLMD. If anyone can give the name of their doctor that was able to look at their blood in the microscope I would appreciate it. U have had several...
I have not been on this site for sometime now as I am the caregiver for my husband. Dxd with ALS and Lyme. I am leaving for work but would like to give you the information I have. Also would like the...
Does anyone know how long it takes to get test results back from Igenex for co-infection testing? Not as long as WB I hope....
Can anyone tell me if you must be off antibiotics to be tested for co-infections? LLMD did not mention it so I assume it doesn't matter. Appreciate any input. Bev...
The doctor is going to call in the morning. I think he wants to try orals for a while and give the IV meds a break. It is really hard but you do what you have to. We have been married almost 40 years...
He is not doing well. His breathing has been bad. Still fevers and chills at night. Going to try and get blood work done and sent to Igenex as soon as I recv the kit .He going downhill it seems each...
This is just one part of this disease that is so frustrating. Testing, treatment, insurance coverage and resonse of others to "I have Lyme diease". While recently in the hospital, the infectious...
Thanks to everyone for your replies. We have been wanting this from day one. Will keep you posted. Thanks again, Bev...
LLMD has finally agreed to test for co-infections. He gave us a script. Do you recommend Igenex or are local labs accurate in co-infection testing? I would appreciate your advise. thanks, Bev...
Does anyone experience evening fever and chills? My husband has been on treatment for one year now and is currently on Rocephin and Flagyl. He has had several episodes that ended him in the ER....
After being on Flagyl for the very first part of treatment one year ago, my husband was put back on it this month. He has had two seizures. One was so severe his lower lung collapsed. Any one had...
Thanks for your reply Nefferdun, I have the book but it has been so long since I read it that I had forgotten about Dr. Martz. I will check into his clinic and see what I can find out. I have to...
Dr. J. was very kind and seemed very knowledgeable. He said that my husband currently has no quality of life. He has had 68 patients with the same severity as him with previous ALS dx. Only 5 of them...
Gretchen and Ticker, Thanks you for your good advice. We are anxious to see dr tomorrow. It helps to hear what to expect and to hear from someone who has been to him. I will keep you updated, Does he...
Ticker, No he has not been tested for co-infections and I am hoping Dr. J will do that. It seems many drs don't check for them and believe if you fight the lyme you kill co-infections also. I don't...
Thanks Ticker, hoping someone else has some information. My husband was making great improvement in March but starting to backslide and feels he is starting at square one again. He was walking 6...
Seeing doctor for first time next week. Has anyone been to him and can you tell me if you are happy with him as llmd? We are making a change. llmd in Ohio is new to this and not well versed on Lyme....
We live near Cleveland Ohio and my husband was misdiagnosed for sometime with ALS before getting Lyme diagnosis. He cannot interview as his speech is very slurred. But I could offer some information....
Dar, Thanks for you input. My husbands hair has thinned dramatically also. We are now waiting for insurance to accept the new prescription, it must be authorized by the doctor. Another bump in the...
Hi Ticker, It's Bev. I also posted in the past under my daughter's ID Mason's Mom...My husband is improving slowly. Most symptoms are gone now but the severe herxing lasted months and left him...
My husband is showing low levels and been prescribed a topical gel. Does anyone have experience with this. I have heard that this can cause loss of strength, muscle weakness and so on. If so how long...