I receive disability (SSDI) for Lyme. I believe it was the 3rd reason listed. The first two were neurological/psychological--memory issues or some such. I'm not even sure exactly. I did have to go...
Lyme and coinfection testing (yes, even Igenex) is faulty. So at this point (until such time that there is accurate testing) diagnoses have to be based on clinical symptoms alone. The sensitivity of...
My Infectious disease doc (I have Lyme disease) attributed my severe fatigue to a past/present EBV infection. She explains that the virus is always in the body, and waxes/wanes dependent on how your...
The reason they don't retest is that Lyme tests are unreliable. Its accuracy is 30% compared with that of another infectious disease, HIV/AIDS with an accuracy of 99.5%! It's insane! We need a better...
My PCP diagnosed me with Raynaud's the same year as my Lyme diagnosis and I do believe (at least in my case) it's caused by Lyme. Lyme tests are only 30% accurate. They shouldn't even be used as...
Vitamin C is water soluble so overdose is very rare. Do watch out for side-effects of high doses like diarreah which can lead to dehydration....
The tests are only 30% reliable--so completely unreliable--it's disgraceful that they even use them (by comparison the test for HIV/AIDS is 99.5% reliable!). This means a false negative is not...
It is controversial as some LLMDs won't use it. But both my LLMD and LLMD neurologist use it. As I cannot test positive anymore for the regular Lyme tests, my doctors really do look to that as an...
FYI: Ticks are in the city. They're everywhere. We have to wake up to this fact. A friend of mine was bitten in a hotel parking lot, in a city. And that clinic doctor was ignorant because NY state...
If your doctor doesn't treat you, find another doctor. If you're symptomatic you should be given antibiotics--period. It's nothing to fool around with. Many doctors have the "wait and see" approach....
I'm glad that thyroid was mentioned. Armour was one of the first things my LLMD put me on (diagnosed hypothyroid) and even the initial low dose was enough to make my muscle pain nearly completely...
There's a lot of misinformation on the internet, too. The tests for Lyme are only 30% accurate (where an HIV/AIDS test is 99.5% accurate). So a negative test means absolutely nothing! And it's...
You could ask your doctor. But I believe with treatment that doctors like to see it at 60 or above, that it means the treatment is working....
The body cannot eradicate this bacteria. If your immune system is great, then it will suppress the symptoms for a time. But I believe, eventually, you'll start to be symptomatic. It's just a matter...
The music in the clip caused me to twitch/tremor. Not a good movie for those of us with neuro-lyme evidently....
It could be Lyme disease. It encompasses all of your symptoms including involuntary movement (seizure) random joint pains, frequent UTIs, sleep disturbances, along with major chronic fatigue. The...
My friend lives on Cape Cod, Massachusetts....
Thanks so much for all of your replies. I forwarded them to my friend. Hopefully she'll be posting on here soon. /community/emoticons/smile.gif ...
Hi Everyone, Thanks so much for all your replies! I did mention Dana Farber to my friend, stating that this is where Sheryl Crow went etc., and she said that she had heard that they don't work with...
Thanks for your reply. She will be calling her PCP, GYN, and Inmed Diagnostic Women's Imaging Center today to get all records and slides. Inmed called with the diagnosis last Friday and that's it--no...
Hi everyone, I am hoping you can help me. My friend was just diagnosed with breast cancer and it seems her PCP isn't very helpful. She will be needing a referral from him (HMO)to get treated for the...
My doctor must be wrong then. I guess I must have fibromyalgia. I'll stop my meds right away doctor....
My4, My positive result came from IGeneX, Inc. in Palo Alto, CA. My doctor was certain I had lyme disease even before the positive test result came back, just from all of my symptoms. Cathy A, Being...
Way back when(2001) I was diagnosed with IBS. I started developing fatigue at the same time. Then I started getting a UTI every few months. I also started getting aches in my muscles and joints. They...