I assume that I am the "girl" to which you are referring? You should educate yourself further before throwing out medical advice. You are not my physician and have no idea what I do or do not have....
I do not know if you already have these, but I have "The Lyme Disease Solutuion" by Dr. Kenneth Singleton and "Healing Lyme" by Stephen Harrod Buhner. I am going to purchase "Cure Unkown." I hear it...
I have a 9 year old, so I have no choice but to keep on keeping on. It is hard. I have forgotten what it feels like to be pain free. But when I was finally diagnosed in the end of June, I almost felt...
Hi, I do not know what band 47 is. Can you get a copy of your WB? Band 23 is very significant for BB. Also, if I am not mistaken, IGM can represent either a new infection or an old infection that is...
CajunGrl, Be very careful with the Cymbalta. Do not take it along with the Tramadol. It can throw people into a Seratonin crisis. Ask your Dr. and see what he has to say. The infectious disease Dr....
New Jersey. By way of Eastern PA., by way of Wisconsin, by way of Memphis, TN. by way of England, but initially from Missouri, where I lived until 25 years of age. I have moved A LOT in the last 12...
Good luck. I hope it is not a relapse. Try and enjoy your vacation in NC. We left for NC only a few days after I was diagnosed, the end of June. By day 3 I was herxing, yet there is something...
I have just read that actress Parker Posey had to pull out of her Broadway show, due to Lyme Disease. I hate to see someone else infected. However, when this starts happening to the famous, there...
I hope someone else replies, but I would think it might be too soon for Antibodies to show up on the Lyme titer. I would ask for a Western Blot. She has also ordered a Sed Rate and Rheumatoid test. I...
I can just tell you that my CBC's have always been in the normal range. My WBCs are not elevated, yet I definitely have Lyme. I hope that helps....
Thanks CajunGrl, I will definitely look into it. I have been drinking huge amounts of water, taking milk thistle and using my infrared sauna daily. The bizarre thing is that it seems to only be above...
One word-Scary!!...
I have the Cumanda and the Samento. My LLMD advised me to only take a drop or two daily. He is afraid that along with the Antibiotics I am on, that my immune system will be overstimulated. But he did...
Hi and Welcome, Sorry to hear about your sister. From what I have read, testing fluid for BB is unreliable, whether it be joint fluid or from a spinal tap. So they would not draw a Western Blot for...
Thanks for the response. I haven't seen where Biaxin causes anything like this as a side effect. My guess is a possible "back-up" from a die off. I am trying to detox like crazy....
You are smart to have them rule out MS vs. Lyme. I get what I call "sun poisoning". I have had it the last few years. I got it this year at the beach even with 50+ spf and out only an hour. It...
Definitely get it checked out. It is better to be safe than sorry. Good luck....
Hi everyone, I have had a strange development and I wanted to get opinions. I have a area on the inner aspect of my right arm, just above the bend of my elbow. It is about an inch in diameter. It is...
I was diagnosed with Fibromyalgia by the Infectious Disease Dr. who did not believe in chronic Lyme. I feel FMS always has an underlying cause and is usually a "trashcan" diagnosis. In my case it is...
Welcome Lymeymom, RD is right. You need to be on a higher dose of Antibiotic than that. Infectious Disease Drs. are usually not the best when it comes to treating Lyme. You can see if he/she is Lyme...
Welcome, Definitely get a copy of your test results. I was told my test was negative yet found out from my Ob/Gyn who saw the results ,that my titer was High Positive and had a band present on my WB....
LadywLyme, The Rocephin shot is a strong Antibiotic....
I would, just to cover yourself. That extra 2 weeks of Doxy, can save you a lot of problems in the future. Good luck!...
I am glad to hear that you are feeling better. It sounds like the Rocephin is working for you....
Hi, Have you looked online at Sam's Club or the Home Depot? They have them starting at $998. I hope that helps....
Hi Newtothis, Sorry you are feeling lousy. You have a lot of folks here that can relate. I would just keep taking the Doxy until your LLMD appointment. After they run labs, they might switch up your...
I am sure that he will be understanding about your condition. If you have put on that in a week, that is water weight. Are you pushing fluids? I would drink as much water as you can to flush your...
Can you go to your local GP and explain the situation? You might have to educate them on what Lyme is, and that you need an extension of the Antibiotics to make sure you eradicate it. If that does...
Can you contact the original prescribing physician and ask for an extension of the medicine? I would try that first....
Hi, I had my first WB done through Quest. The only band I had positive was 41kda, my Lyme Titer was high positive. Quest is not reliable for Lyme's testing. My LLMD feels they are fine for the...
Kim, I too had/have almost daily headaches. My joint pain started in earnest in Feb. But I have had other symptoms for almost 10 years now. I was misdiagnosed with Fibromyalgia, before finding out it...
Lovemuffin, You would be wise to start the Doxy ASAP. It is not going to hurt you one way or another. And your right about your Dr. They need to be available when you need them. Also, this seems like...
It sounds like Raynauds syndrome. It can be due to certain medicines or an underlying disease. Maybe contributed to her Lupus....
I am sorry that you are feeling so lousy. It is ok to vent, it does us a lot of good, I feel. I just hope you start feeling better soon....
Sorry for your disappointing Dr.s visit. My LLMD said the opposite. That herxing can last for weeks. Mine has. The symptoms vary in duration and intensity, but it is a herx, none the less. I can't...
I upped the temp. last night to 145 and was in for 25 minutes. I was definitely sweating. Thanks again for the suggestions. I at least now know what temp. I need to be at....
I do not understand taking the Metamucil before the Abx. I would maybe try and take the Metamucil at a different time of day if you are needing it. Unless the Abx. is contraindicated with food, I...
Thanks for that! I will up my heat in this evening' "session", lol! I figured I needed to go higher. I was slowly inching up, to gauge my response. I go in after I exercise, so I am already heated,...
I have just started using mine in earnest this week. I definitely seem to feel better after using it. Maybe it is just the therapuetic warmth that seems to help my muscles. Either way, I have been...
That is great news! Thanks for the link....
I just wanted to give you "props" for having the courage to hula hoop in public! I love the hula hoop and must admit that I use mine when I work out, I throw it in the mix. It is a great abdominal...
Welcome Jesse. I was misdiagnosed with Fibromyalgia. In reality I have Lyme. In my very personal opinion, Fibro is a trashcan diagnosis. I believe there is always a cause to something. We just do not...
I have to second Avon Skin So Soft. I would not spray it on my clothes, but it works like a charm on your skin. The bugs seem to hate it. Also, you get soft skin in the process, lol!...
Hi Fibrogal and Welcome. The others have already given you lots of great information. I am another one who was diagnosed with Fibro. but actually have Lyme. Definitely seek out a Lyme Literate MD. It...
I know there are a few out there. I am using Pinella-Brain and Nerve Cleanse by Nutramedix. I really just started using it in the last week, so have yet to see great results. I also am starting out...
James, So sorry to hear you are feeling down about this. I don't know if it helps to know that I am sure her "new relationship" will not work out. Rebound relationships rarely do. And that is what...
I am so sorry to hear about your husband. I have not had fevers as high as that. But I have basically been running low grade fevers since February. Mine rarely get above 99.5, but that is with me...
Try www.vitacost.com. I ordered my Nutramedix Samento and Cumanda from www.renewalenterprises.com. They are cheaper than buying from Nutramedix directly.(Which makes no sense to me.) Good luck....
I found my LLMD through Lyme.net. Have you tried looking there yet? Just a thought....
Hi RD, I hope others can give you specifics about their protocols. I am adding the Cumanda and Samento in with my ABX. I can tell you that on the jars, the doseage is Cumanda 4-10 drops twice daily....