WOW!!!! First, I am so impressed with those of you that are able to do so much!!!! ria123... Before I became very ill (going on 5 months), I had a daily routine. In addition I was on the go 12+ hours...
Oh RD, I am so sorry! You are, and have been/ in my prayers! I wish I could fix everyone on this site! Thanks for always replying to my posts. Why can't they find a cure for this??? No response...
Hi RD, That's too bad! What do you take to sleep or what do you do that relaxes you. I went to bed at 10 PM last night and was still awake at 2 AM. I had one glass of wine but I obviously didn't...
Thanks IH8Ticks (cool name!), I guess that's good. I have good days and bad days, good parts of the day and bad parts of the day. When I have herxed, it has been intense and lasted several days....
How often do you herx? What's you typical herx time? I just had my second herx in 30 days. First was 5 days long, second was 3 days. Thanks in advance for your response!...
Thanks Lymemom, Me too! Sure is nice when it works!...
Do any of you have an occasional glass of wine or cocktail to help you get to sleep? :redface:...
Mokeyho, Is there a special MRI done to find lesions? What made your doctor look for this? Wishing you well!...
CG, I saw your pics....WOW! Does ice help? I have been icing down my knee as it is swelling more often now. Helps a little. Only have pain there when I walk. I did take pics of my hand and arm. They...
Hi CG, I herxed bad the last 3 days. Better today! I actually called my doc yesterday because I felt like I was dying! i was also concerned that this was my my 2nd herx in less than 30 days. He said...
Hi, I found a great tool on line. Maybe some of you use it too. lymelog.com You customize it to reflect your symptoms, meds, pain levels, etc. Then, you go in daily (best at end of day) and mark the...
Great idea Trav! Thanks!...
Hello to all of you who have this combination, I have chronic lyme as well as psoriasis. I was diagnosed with psoriasis at an unusually early age of 9 years old. For those of you who are familiar...
Kellie living in Southern California. Born and raised in Wichita, KS. Have lived in OK, TX, ND, MIN, MI Have traveled all over the world....
Hi LabLady, I take 15 drops 2 times a day on an empty stomach. I also take 20 drops of Cumanda at the same time. If I herx symptoms, I take 10 drops of Burbur up to 8 times a day. Burbur has a...
Hi McJane, I take valium 5 mg every night before bed. It doesn't make me sleep but helps relax me so I can sleep. I also take it for anxiety or panic attacks. I've been doing this for around 10...
Sophie, Hi and welcome. I take Doxy with food. It even states that on the bottle. Are you sure you understood your doctor right? I would call him/her first thing Monday and ask. I was told by the Dr....
Thanks again everyone! You all are doing a great job helping me to understand. Wishing you the best!...
Thanks All, I re-read my lab reports. I don't see this any where. The only thing close that has to do with the immune system is the NKC (Natural Killer Cell) results. My doctor said I should be at...
Oh! I went back and read it again. I guess I missed that completely. Thanks for the clarification CG!...
Thanks for making me laugh! Love this site! Almost hate to go to bed...I might miss something, LOL? What time zone are you in CajunGrl? BTW, have I told you how wonderful you are? I sure hope you are...
RD, Your response made me smile. Good for you! Not many people can do that with me these days! Funny, when I was young, people used to call me "Smiley"! I'm glad we were able to connect at some...
Hi Looking around, It sounds like the bite you got did something. Who knows what? Since you don't know what bit you, I would recommend process of illumination. I live in Southern California and am...
Thanks CajunGrl! Do you ever sleep? This site has definitely given me some comfort with my sleeping issues! When I can't sleep, you'll find me here! I only hope everyone does not get tired of seeing...
J.rabbit, My heart aches for you! We all know the pain you are describing and it really hits home. If your tests came out negative for lyme, ask for the results first; second, look at the lab used (I...
Hi Crystal, So happy you are better! Until I started antibiotics 3 weeks ago, the nodes in my arm pits were swollen and very painful. I thought I had cancer! I am better now but I do have swelling in...
Hi readysketty, I just wanted to tell you that I agree with CanjunGrl! From my own experience: I live outside the LA area (not a lot of ticks here) I moved here from Kalamazoo, MI 6 years ago (lots...
JELAINEP, What an amazing story. I pray you are better now!!!??? Thanks for sharing with me! Best wishes to you!...
JELAINEP, Oh my! While I'm not happy to see that you have been blessed with the same wonderful things I have been, it's nice to know I'm not alone. I, too, suffer from depression, anxiety and panic...
CajunGrl, I agree and hope that wasn't implied in this thread. I didn't see it but I'm a little foggy at the moment. I am on thyroid medicine. He started me on a low dose which gets increased every...
Thanks CajunGrl, I find that to be the case as well. The last 4-5 days have just been about 10X worse and a lot of new things going on. I guess I must still be herxing. Your replies are always...
Thanks Harleyrider, I know the herxing is a drag but I guess it's also good since it's a sign of getting better! I don't know. I thought I was over it, but today has been just terrible. I just sat...
Hi All, Is anyone using Samento or Cumanda or both? Also, I have been given Burbur to help with herxing...anyone else? Thanks!...
Wow Trav, You must be my twin! I, too, have acute EBV...off the chart high! I know about jumping off the table as well! I have a couple of meds for pain, Vicodine and Tramadol. I go back and forth...
Thanks everyone! I initially asked the question because I thought I may be herxing. As it turns out, I was! Four days. The first 2 were the worst. While I am feeling better now than I did then, I...
Thanks RD and Razzle! I had no idea. I'll definitely get splenda out! As if being sick all the time is not bad enough...then...trying to remember what pill to take when...then...what can I eat???...
Thanks everyone! I was worried I was the only one out there! I was first diagnosed with Fibromyalgia after seeing 8 different doc with 8 different diagnosis. I, too, felt this was a "trashcan"...
CajunGrl, I can't say I know that the cocktail is working. It's thick so it hurts; hope it doing something! I want to be able to have a post like Kendal's! What is rocephin?...
I've seen this mentioned in some threads. Can some one enlighten on what this means? Thanks...still learning!...
Kendal, What is rocephin shot? I give myself 2 shots a week. One is a cocktail of misc. meds the doctor has created he calls "Energy Special". I tis a combination of B12, AMP, Glutathione, NADH,...
CajunGrl, Big help from you as usual! I will email Ticker and look into the C powder you recommended. You're wonderful!...
CajunGrl, Thanks for the link! My doc actually has me taking 10,000 C morning and 10,000 C evening. That's 20 hard to swallow pills a day, yuck! As I've told you before, I am game for anything that...
Has anyone been diagnosed with CFS and/or Fibermyalgia in addition to your Lyme and co-infections? I was told my CFS and Fibermyalgia are a result of the Lyme....
I second that! Thanks......
CajunGrl, You are a wealth of knowledge! You have no idea how much I value your opinion because you have replied to all of my questions thus far...so...Thanks! I can't see never drinking coffee but...
Thanks for all the responses. I have been told so many different things: Gluten free, dairy free, no corn products, etc... The latest is to avoid aspartame. To do that, no diet sodas, sugar free...
Thanks for the responses! I've been very down lately and couldn't sleep last night so I was reaching out. Thanks so much. I am better today mentally and physically!!! I think I have been herxing for...
Hi Traveler, I am new to this site and trying to learn as much as I can with little to contribute at this time. I can tell you that vit C is water soluble. I was concerned with how much the doc has...
I am gaining weight! I mean noticeably since going on my new meds! My significant other (SO) has been traveling on business for the past 3 weeks and will come home on Wed. i went on the meds one week...
Has any one tried eliminating some food groups from your diet to help symptoms? If so, did it work? Success stories welcome!!!...