Hi, Birds, from reading, talking to doctors, this forum & my own experience, yes, lot's of folks with Lyme disease have periods of anxiety (which it sounds like you were describing) & other...
Whoops, I left out one thing. Do. Not. Skimp. On. Your probiotics!!!!!!!!!!!!!!!!!!!!...
Hi, Traveler, I worked for the 8 months I was on IV antibiotics. I worked in a hospital rehab unit, as a speech therapist. I pulled my stitches out once, probably b/c I helped lift a patient w/both...
Hi, Brian, I didn't watch the video you posted a link to, but thought I'd post something on the topic. I saw your thread when I was on the main menu going to the lyme forum. I have recently been...
Hi Momlyme , I realized I didn't include another bit of info. Your daughter needs to get a copy of the Unum manual or policy so the lawyer can see it. Sometimes it's a certificate. Anyway, she needs...
Hi Momlyme, So sorry about your daughter. She is in a very real plight....HAS to work so she has access to health care, but if she's working, (so thinks Unum or Social Security disability), why does...
Reducing gluten really seemed to help me. Also, reducing sugar and dairy. Some people might say to go to a NO gluten,sugar and dairy diet. It's more difficult to shop at first. And if you.feel cruddy...
Hi, there is a dr in Franklin, TN and one in Mobile, AL. The one in TN is listed on ILADS list, the one in Mobile is not. I'll bet that you will get a lot of responses to your post, with resources....
YES! I've been treated for 4 years for Bb, bartonella, & babesia. In fact, my main symptoms over the past 1-1.5 yrs have been babesiosis. I finally stopped working, hoping I'd get better, but after 8...
Hi, I live in Alabama, and I agree that the physician in Mobile is a very good choice.I don't know the doc in Roswell, GA The doctor in Mobile is not listed with ILADS, but a LLMD in another state...
Hi there, I am in the process of applying for disability for chronic lyme/TBD (hopefully for a finite period of time so I can get better then return to work) through a private (not Social Security)...
It's interesting that so many people are affected by mold. I would never have thought about it.... I was on the verge of repeating IV abx, but my LLMD was puzzled about WHY I kept relapsing. He...
Hi, I know of a condition called "pseudo foreign dialect" that occurs, though very rarely, in persons who have had a stroke. After a lesion in the brain's right hemisphere, the speech sounds like the...
Hi Sassy, I think it's a great sign that you are excited about doing things! Planning ahead! You must be feeling better! You might have, in the past, been afraid to plan anything. With this disease,...
Thanks, Lyme14. I've tried mixing with diluted cranberry juice,(1/2 water, 1/2 juice); it's better than with straight water. I haven't had greenjuice or spirulina. Did you decide to take those on...
Hi there, Anyone else trying Nanogreens? I read about this in Dr. Macfazdean's book, "The Lyme Diet". Well, I ordered it, got it today, and I, uh, don't love it. I've mixed it with some fruit juice,...
OH, sorry, I forgot to include something in my previous post: The CDC itself says that a diagnosis of Lyme disease should be a "clinical diagnosis". This means, it does not have to be based on lab...
Hi catgamom, so glad that you've gotten some good information. Sounds like you are doing some very thorough research. Your husband is very fortunate. Re: the Western Blot test- the commercial test...
Hi, I took Mepron for several months. My dr. told me to take it with a spoonful of "orange marmalade". (I never did, b/c I don't like that). I believe the Mepron works better when taken in...
Diamblessed: wear sunscreen, long sleeves, hats. My dr. said that the worst sunburn he ever saw was someone who went to an airshow, didn't wear suncreen, and was on doxy....
Thank you, treehouse mom. I have looked at the portable saunas (FIR) and that would be very convenient, probably more likely that I would actually do it if it was at home. As far as diet goes: I have...
Thanks so much, I really appreciate your input. I'll look at the YouTube clip(s) you recommended.It makes it better that someone else knows what I'm talking about and can advise from the perspective...
Hi there, I've been gone for awhile from this forum. But, am sitting around today (lying in bed), and mostly am just tired of being tired. Tired of the roller coaster should be tired of the seesaw;...
Hi Jake, are you taking an antidepressant? I was taking two simultaneously, but after (2 yrs? maybe) I felt emotionally flat, didn't have emotional reactions to things, so I was taken off one...
Hi, I blame everything on Lyme, not just for myself, but for others, too. Everytime I hear about someone having some unusual occurence or symptoms, I think (or say out loud), "That person has LYME...
Luvbugs (I love your name), I hope you get to go celebrate your anniversary. And it's nice that your friend is coming to be with you and show support. THAT is a true friend! Concordefan, I couldn't...
It's so disappointing to have to explain to a friend (ok, she's not my friend now) why I can't/won't go out with her to eat some night; heck, my husband and I don't go out! We didn't go out on or for...
Hi beths, isn't it just the worst pain ever? I describe it being as if someone is scraping the muscles off of my bones with a rusty, dull carving knife (but it lasts somuch longer than that would...
Rx for Armor thyroid (even though my thyroid function on lab testing is low normal). I can tell a difference....
Hi, I had optic neuritis before I was diagnosed w/ LD. Incredible pain in and around my eye, a blind spot, and flashing lights in that eye. Yes, they thought it could be MS. Oh: did you know that...
Hi pachoulinut , how are you doing today? I hope things are better. I don't know if you're on an antidepressant ; if you've been on one for awhile, but you're feeling like you described, it could be...
Hi, CG, I remember now......you'll have to excuse my faulty memory. I have Lyme disease. Heh, heh, heh! (My husband said that I've "ridden that horse just about far enough"). Tee, hee! Sometimes it's...
I didn't know there were more than one kind of VitB injections. I get one, but I don't know which kind, and I never can tell a significant difference. I need to ask about the one that you all are...
i, CajunGirl, I have a picc line, and I also have a portable far infrared (FIR) sauna that has arm openings. I just hang my picc arm out of the hole when using the sauna. I did ask my LLMD about it,...
Hey, CG, yes, I understand .... my WB had Lyme pos. bands but the overall test was deemed "negative". I don't remember whether I had met my deductible or not. I haven't gotten a bill from the...
CG, the only thing that I don't do, now that I have a PICC line in, is give my dog a bath. She goes to the vet and gets one instead. Oh, I wouldn't go swimming, if I were so inclined, either, but...
Hi, CG, my BC said that they would cover "100%" of the IV costs. The company that provides the supplies, nursing and rocephin also said that BC told them the same. So far, (since June 14) I haven't...
CG, I've been on IV rocephin since mid-June. For 10 weeks, 2 gm daily, then I started pulsing 4 gm daily for 4 days, then off for 4 days. I take minocycline orally, also. Yes, the picc cover works...
Hi, Cajun Girl, I've been okay, I am doing pulsed IV antibiotics (for 6 more weeks) , on 4 days/off 4 days, and the 4th day on (today!) is always a bit rough. Feel like I've been hit by a...
VIEW IMAGE Cajun Girl, glad to hear about your experience at the doc. Good luck with the new regimen! Isn't it great to talk to a doctor who understands and is proficient at treatment? It does so...
hopegirl, thanks so much for sharing this important info. I am so sorry that you had a complication and had to go to the hospital. Good luck, I hope that there is another plan of care for you....
And, good luck seeing your new doctor. !!...
Coping With Lyme Disease by Denise Lang. GREAT book!!! GREAT GREAT GREAT!...
Hi, MoHo, I'm sure your M.D. told you that doxycycline may cause an increase in your sun sensitivity....
OK, now what exactly is ozone trmt.? I have never heard of it!!!...
CajunGirl, my sister and her hubby live in SE Texas (used to live in Port Arthur area, now relocated to Beaumont). They got wiped out in Hurricane Rita. They watch the weather very closely, probably...
+Lyme, I just read your suggestion, and I'm going to try the sandwiching w/Rolaids, Ibuprofen. Then I'm going to get something STRONGER! But today, all I have is the ibu. Thanks for the suggestion....
I have pain lower than what you described, in fact it's my derriere. Nothing is helping today. What do you take for pain? I have no Rx for pain meds, but I am seriously considering asking for...
Hey, CajunGirl, Troy is farther south than Tuscaloosa, where I am. Hope the upcoming hurricane season goes easy on you! We did get quite a few LA folks who evacuated to Tuscaloosa as a result of...
Thank goodness, my dentist told me, "I don't see anything wrong with those teeth" and "If you get to the point that you HAVE to have something done, I'll look again, but I don't see anything that...