Congrats! I started remicade in august because i couldnt get out of a monster flare that had me hospitalized for 17 days. i was stuck at 35 mg of prednisone.. and then we started remicade and I was...
First day went well. Went to Overlook hospital in NJ(where I traditionally go when i get severe flares), excellent hospital. Got there, my mother drove me for my first treatment as i was unsure how...
Thanks everyone!!! I am sure hoping this does the trick. if it does, i can get my butt back to work and hopefully have at least a few more years with Mr. Colon because he gets hacked out. I will...
It depends on where they take the biopsy.. they only take tiny pieces. my biospies showed 'minor - moderate active colitis', but based on the visual, my GI siad it was the worst colon he's seen all...
Scheduled for Friday at 1030 am! And yes I tried all different ways with the office. The only reason i lost my temper with them was because they consistently did not do anything that they said they...
i am in a similar situation altho not on vacation. im on 50 of pred. i can't go lower than 35. same things, only certain hours.. but those hours are brutal. on the can right now as a matter of fact....
Thanks for the reply lasardo. I guess the other thing that really irked me is that eveyr time i call them to ask for an updated(and its usually at the end of the day, maybe my mistake there), they...
I am quite angry as of this point (yes its probably also the 50 mg of pred I am on!). 2 mondays ago, my dr and i came to the agreement that nothing is working this time, (little history(i use alot of...
Anthony, I am starting remicade this week. My back is against the wall, I am not responding very well to steroids. Just how sick are you? What is your typical day like? When you wake up.. are you in...
I'm in similar boat to Eva Lou. I should have maintained. Now I am in the worst flare of my life and praying remicade works becuase I can't even get below 35 mg of pred :(. When you get as sick as...
I went down the route of homeopathy/Alternative... for other reasons besides just UC such as lyme and some mental issues. before looking into any 'cures'.. get a full workup of toxins in your body,...
Hmm. I don't think there is really an answer to your question. almost every person here who has UC and who has at least some years of experience with it have likely used many...
With health I'd always say the more information you know the better prepared you will be. If money is an issue then obviously it will be a dif game plan but I'd want to know exactly whats going on....
I just had a 17 day stay in hospital for severe pancolitis, (after 3years of no colitis), and my cat scan showed the same exact lymph nodes swollen. They went away tho when the inflammation went down...
I gave up all junk food(a little at a time), alcohol, and narcotic addiction(got it while having seroius lyme pain). I face the battle alone now with the exception of antidepressants because ive been...
Achievinggrace, Thanks for the kind words. I thought that too. But i just dont know really. I also wanted to know if any members had higher fevers during herxing. i suppose it makes sense to have...
1bitten2xshy: How are you feeling these days after 3 years of treatment? March will be my 1 year anniversary. I can't imagine ill get better until i get the immune supressing garbage out of my...
how do you feel cupcakes? i feel dreadful most of the times. do you get any good days? Vin...
I just wanted to know if its a herx or getting worse and if cd57 numbers get lower during herxes of if they should be going up. The protocol i am on will stay until i get off the 6mp i am taking for...
mines a wonderful 11. its gone lower with treatment. have another thread on it it on main pain. Vin...
I'd personally steer clear of the benzo's daily or even weekly if you use longer acting ones like klonopin or valium. they are addictive and tolerance building. Once that happens it may be almost...
Well the winter has been cruel to me. I've get fevers every night, between 99.0 and 100. Over the past several weeks after my chelation treatments for mercury(im literally off the charts), ive run...
I use chelation to chelate a monster burder of mercury that i have in my system. Mercury and some other heavy metals are direct immunosuppresants and will keep you sick. Have a hair analysis done and...
are you taking probiotics? Vin...
I have both. Actually they dont know if i have UC or chrons as ive tested positive for both at different points :). Lyme can cause colitis for sure...it can trigger many different autoimmune...
Klonopin is good short term, but you build up a tolerance to it fast. And then even if you stay at the same doseage, it will stop working and you can actually withdraw on a stable doseage even if you...
Yes I got mine done and i have off the charts mercury. literally off the chart. just started treatment with chelation therapy for it. Vin...
If you have symptoms of lyme with those test results, then you most likely have it actively and its a more chronic stage as of this point. Vin...
+lyme, good to hear back from ya. the past 3 days my anxietys/depression have eased quite a bit and my just god awful crushing joint pain has scaled back, and my evening fevers have dropped to normal...
3whiteroses. I get the same thing. in the afternoons, usually after 4 until i go to sleep, i usualy get weird tingling on my tongue, lips, and occasionally right cheek. i had this before i had...
Yes I second Cajungrls notion. Also wanted to mention amiltriptyline is an older antidepressant and there are much newer and better ones out there. Lexapro, Paxil were good SSRI's for me of which i...
My first symptoms started as psychiatric. One day, i just started out of the blue thinking i was dying. my brain went nuts. I just started crying, panicking, crying, screaming, in rage... and...
talk to your GP or pain dr about it. you can google nucynta and read about it. not many reviews of it out there yet. IMO its great....
Trust me i know what you are going through. I was hospitalized twice last year for unyielding panic attacks and depression and haven't really ever been right since. There are some days that I feel ok...
Hey guys, thanks for responding. Codeine itself is an opiod just as the other narcotic pain killers. They are all converted into morphine once it enters your brain. Codeine is the weakest of the...
4 days into my zithrow/malarone/flagyl combo. This is by far the worst the pain has been. Wrists, knees, and ankles. For three 3 days i am awoken by the pain and i imediately have to run to the...
I have been on nucynta now for a week. 50 mg three times a day, although ive taken up to 5 with excrutiating pain. Its a strong drug. Much stronger than tramadol. Doesnt feel at all like tramadol...
My first symptoms were ridiculously long panic attacks where i thought i was going crazy and was going to die. I would cry all day long for months. worst thing ive ever gone through. Where do you...
Thanks for the response..sauna sounds nice...i aam on my laptop right now in my tub :). Anyone have mepron, malarone reviews? dont see much on the web as far as drug reviews or what this drug can...
cymbalta and the new drug savella are SNRI antidepressants but also work in such a way as i believe they block nerve signals for pain while not being narcotic so u dont build tolerance. they can kill...
The only thing that has helped me is narcotics, and a new drug called nucynta. nucynta is a schedule II drug(but more similar to tramadol) that was just released a few months back. Just started...
Dr strongly suspects babesia on top of lyme. starting me on zithromax and malarone. Whats everyones experience with malarone? is there a herx with a malarial drug and protozon die-off? Any info at...
Very productive discussion with llmd. the issue wtih him is he is very soft spoken and doesnt necessarily hand out information. but he is very bright. He said his plan all along was to first was to...
I think you are correct rdatman. this needs to be more extensively treated. he has been treating lyme for 25 years and he does seem knowledgeable as i have done extensive research myself and he seems...
which did u do the best on? and which symptoms have resolved and how much of ur life is back ? :)...
Yes I had tested negative for all co-infections. Not sure how reliable those tests are. I was on a combo of bactrim and flagyl, could only tolerate up to 2 pills of flagyl, and 1 pill of bactrim at...
"Dr. Donta reported that in Lyme disease, the nervous system seems to be the primary target for the bacteria causing the disease. Patients with Lyme disease express many neurologic symptoms such as...
V is a good drug. Understood that you only take it 2-3 times a week, but valium has a very very long half life. the reason you need it only 2-3 times a week is because thats when its actually out of...
1bitten2xshy, rdatman- Some history: Thanks for replying. I tested negative for all over co-infections. I most likely got lyme last june. the previous years i had been on alot of predinisone for my...
After doing better on bactrim for 2 months, ive relapsed and my llmd switched me to flagyl. ive gone down hill on the flagyl and now i have high anxiety and panic, depression, facial tingling in the...