I didn't read it anywhere. Just assumed it may....
Has improved, but I still get it. Usually when I am herxing, and yes it is pretty freaky....
I haven't tried because I don't know how safe they are. I don't want to cause more problems. It must mess with your DNA to some degree right? I'm just a bit nervous to try....
Muscle twitching was my first symptom. At the time I didn't know I had Lyme. Thought it was MS starting or something. It used to freak me out. It wasn't till after 3 months of twitching I got really...
I think the worst part is looking totally fine to everyone else. I even know I look fine so to say I feel awful or don't want to get out of bed does seem crazy. Then I start to feel crazy. In fact, I...
Will do thanks for the heads up....
Let's hope not! Thanks for all the info...
Wonder if a lot of people that have Lyme and test negative that have their gallbladder out, have it tested for bb. Do hospitals test or do you have to have it sent somewhere? Just jumping the gun a...
Thanks for your responses. I am awaiting a GI appt. Had what I think was a bad attack but never went to the hospital. Just wanted to get opinions. Had an ultrasound months ago but showed no stones....
Is this common in Lyme? I am only on orals, no IV. Wondering if Lyme attacks the gallbladder?...
Clinically diagnosed by my Lyme doc. I tested CDC negative and igenex negative. First quest test by my incompetant former PCP I tested pos on bands 66 & 41, and pos 41 on the other one. Then my Lyme...
I never thought they would rewrite them. God forbid they admit they were wrong. I was just hoping they would include the ILADS guidelines as another choice. Let the doctor decide what would be best...
Were the panel members asleep or something during Dr. P's presentation. No scientific studies to support that chronic Lyme exists? Are you kidding me? So sad. This is like a bad joke. Dr. P gave them...
It can really be that small? Looked at the pics, doesn't resemble mine. It burns like the rash I had a few years ago. Don't see a bite mark but is clear in the center. Just small, in the crease under...
[u]Can a Lyme rash be small? Central clearing in the middle, red around it like a ring but not expand and a little smaller than a quarter?...
Talking to doc this week. I have never been off meds this long. Guess just trying to cope with the magnitude of this disease. Meaning how long it takes to get well and will that ever happen. Hoping...
Have been off all meds for 3 weeks due to stuff that would take too long to write. Hoping to figure it all out and start again soon. The first 2 weeks off were better than I thought. Felt ok, not...
Lyme causes canker sores. I hear it is a very common symptom, when your immune system is knocked down you can get them. It is a Lyme thing...
Is this common?...
I have been on bicillin for like 2 months. Felt really bad when I first started. I mean bad. Well last week I had the best week. If my dr could have seen me I would have said..."this is me...I am...
16 months til I got treatment, 16 months of abx. Some symptoms are totally gone. Others not so much. Have some crappy days still. But some good ones, too. LONG road. I had no idea it would be this...
It feels blocked. Like I have water in my ear and I can hear myself talk. Really annoying....
Anyone's ears get plugged when herxing? Is this part of it?...
About the supplements...I take probiotics, zinc, magnesium, milk thistle,multi vitamin and fish oil....
I herxed really bad on the mepron/zith in the beginning. I remember it hit on the 4th day after starting it and was awful for like 5 days. The first 3 months were bad. 5 bad days, 2 good days etc....
So sorry you are having such a hard time. I don't really have answers for you but it is good you are getting in with an LLMD. If it is the one I am thinking that doc does link ms and Lyme so you will...
I get the same thing. Comes and goes. Had sonogram and nothing was wrong. Think it is an intestinal thing. Probably inflamation....
I will have to check out the cell food thing. I am still hurting a lot. More bad days than good days. My llmd said it takes time. That made me feel better. Hoping this works for me I am afraid I am...
Just noticed this post. Sorry for not responding. Wish I had better news. I have had 2 months of shots once a week and only a handful of good days. Wondering if this just takes a lot of time on this...
18 months. Diagnosed by my LLMD...
Tendinitis was one of my very first symptoms. I had it in my wrist on and off for months. One day I woke up and it was gone. Not a gradual healing just gone. SO crazy. Now I have other pain. Hoping...
I was switched because I hit a plateau with plaquenil/biaxin. I didn't feel great on that combo the last month I took it. Then a few weeks off and got worse. Thinking bicillin must be stronger than...
Thanks for your reply. I am sorry you had a hard time, too. This stuff is kicking my butt. My heels hurt so bad. Worse than ever before. Do you know if bicillin is really strong? I am hoping that is...
I heard one member of the panel dropped out. Maybe that is what is holding it up. Not a good sign that one dropped out. Maybe he was in our favor. Who knows. Can you imagine the pressure going...
I am a mess for 3-4 days after my shot. Only doing one shot per week. That is all I am on. Is it possible to be feeling this bad? Working? Not working? I could cry. I have only had a few good days...
I don't really know the answers to your questions, but wanted you to know I was on that abx combo for 5 months and I had the most improvement from those meds. I hope it all works out for your brother...
1) heel pain, burning feet, heavy leg feeling 2)stabbing pains in shoulders and back 3)fatigue 4)twitching eye and face muscles 5)ear ringing and light sensitivity sorry- more than 5!...
Hi James-how r u feeling? By your post title I thought 'oh geez...he found a tick!' hope u r doing well...
Maybe someone here can email you a list of Ct LLMD's, maybe make an appointment with one as it could take a few months to get in(they are in demand). Keep seeing your doctor in Stamford and then you...
I feel ok today. Tonight it may change. I never know from one day to the next how I will feel. Are you in a state where there are doctors who treat Lyme?...
LLMD is a Lyme literate medical doctor. You want a doc that treats according to the ILADS guidelines. Google ILADS- you will find a ton of information. These doctors seem to be the very few that...
I think the only time it gets reported is when you test positive. Then that result goes to the CDC. Most of us, including me did not test positive. So we get treated by an LLMD but our case goes...
Hi Vstrength-so sorry you have gone through so much. But atleast you have found out some answers. Did you say you are under the care of an LLMD? And what treatment have you had? Symptoms I suffer...
Merrygirl-I may have the nurse inject quickly. Had one fast and one slow. More pain with the slow one but no knot....
Hi therearemiracles- I have a LOT of pain in the area for about 2-3 days. Yes that is where I am getting the injection. I herxed bad after the first shot and then had a couple of really good days....
I have a friend who has a "borderline lupus" diagnosis. She has had multiple surgeries for different problems such as carpel tunnel, disc issues in her neck. Her memory is bad, she gets lost. She had...
If you look at where there are "clusters" of ms cases in the US, it is always in highly endemic Lyme areas....
People are all different. I am not one that always believes my doctor. It only takes one misdiagnosis to understand they are not god. If I had an MS diagnosis I would atleast try Lyme treatment. Just...
The doc (not LLMD)did my first shot fast. Was very painful. Had a knot for a week. Had the second shot done by the nurse. She did it very slow per doctor's orders(llmd). Even more painful. I don't...
Felt good for 2 days. Woke up today like a truck hit me. I was so excited yesterday that I would only feel bad for a day or so after the shot. Sad. Another one on Friday could be a bumpy road. What...