Lol those are pretty funny. OMG about the guy in the Sleep Disorders place. I'm sorry but if he asked me how I was doing, I think my answer would have been, "apparently better than you?!" LOL sigh....
Wow. I don't know if I dare see a movie like that, I'm paranoid enough as it is with all the things I've seen already. Every other day I'm saying to myself, AHHH HAAAHHH so that is why this is that...
about the " now you have it, now you don't" thing, I think we've all been there. I had a bullseye rash nearly 6 inches across, of which I took photos to show to the infectious disease doc. Seeing the...
Thank you. Well I'm also supposed to find out tomorrow when I get to see a movement disorder doc. Priority right now is to control my severe neck spasms. They've gotten worse and need to be sure...
Yes to Chiropractors here too. I joke with people about how to find a good one, but honestly it's a good indicator--Sit outside the office, in your car and watch people going in and out. If they go...
Don't even get me started on the CDC! I could go on for days, really. But try Googling CDC and conspiracy and I'm sure you'll come up with way more than you ever wanted to know about them. It would...
I read about a CD57 test done with controls, including HIV patients, and according to the study, the CD57 is not at all associated with HIV but was proven to be specifically related to Lyme when...
Wow that is terribly sad, I'm so sorry to hear you're having to deal with this. Will pray for you. Sending long distance hugs....
I recall reading somewhere that it's so inaccurate in diagnosing Lyme that it's not even recommended to use this for DX of Lyme. I had lumbar puncture after a car accident when I developed immune...
Hi, sorry to hear you are dealing with so much pain. If you don't have access to prescript ion meds or can't handle them, my rheumatologist who helped me the most following my car accident...
Wow I am really sorry to hear you are dealing with so much. Not to alarm you, but you should be careful with the Xanax. Only take it as needed, and if you find you are taking it on regular basis,...
Thanks for the FYI. Will set my DVR...
Lol on that one +Lyme. Yeah, I'm waiting for it to hit Colorado so the docs will listen to us, too. You see, "We don't have Lyme in Colorado." Can I borrow your local newspaper reporter? We've got...
Thank you, it's not so much that I am strong as it is that if I tell myself I have to be then it helps. You see, my mom died of skin cancer when I was 3, and I don't want my daughter to have to grow...
I had a problem with a few blue toes several years ago after suffering healh problems following a car accident--my immune system went completely haywire on me. My Rheumatologist actually gave me...
Wow, thank you for the link. I printed the document to have. Never realized creatine is so important and also didn't know it helps with neuro problems. I really don't like taking medications if I...
Well I did some more research last night and found one thing that matches up with all low ferritin, low platelets, high hemoglobin and high iron--Hemolytic Anemia. I hope to God this isn't it....
Thank you for responding, I haven't had a chance to speak with her about them yet. I got the papers to take to the Neurologist and of course you know I had to look them over and start searching for...
I checked each of these individually, and it doesn't make sense to have high Iron and low Ferritin. Hemoglobin is high too. Does anyone else have this? Lyme or coinfection association? Going to Neuro...
Interesting you should say Bartonella, because I've been suspecting that too. I've read it sometimes takes different antibiotics than Lyme. They have found fleas around prarie dog populations in...
I've been having serious neuro issues, (similar to Parkinsons) have any of you been able to get help from any neurologists in looking for causes of symptoms including are they willing to do...
Thank you, I actually still have a hole in my leg from a bite when I was 8. I do remember distinctly what it looked like. It was probably a black widow or possibly a brown recluse. My grandmother...
Ok I think I got an email out to evreyone who posted from PA on the "Where is everybody from" thread. I told them about this post and so they can come look at it if they want. Some didn't have emails...
bumping this one and if someone has time/energy to sort through this and let the ones from PA know about the Media person who wants to speak with them etc....
bumping this one because ppl in PA have a chance to tell their story and be heard. hey can someone look for the post "where are you all from?" and bump it too please?...
Thank you. I never saw what bit me, but had 4 bites in July. All were strange, but two were particularly large, one I got a photo of, was almost 6 inches across, bullseye style, the others also...
regarding the site of a tick bite, have any of you had recurring pain at the site? has anyone had severe pain and were you diagnosed with muscle or tissue damage, etc at the site? wondering if I...
You might think I'm way off here, but, when I used to suffer with chronic coughing, I actually coughed a ribs out of position about 4 times, and it was so painful it actually felt like they were...
By the way I'm not on abx at the moment so it's not related to any medications....
About the tingling in the head, I get that, followed by severe muscle jerks and spasms. The only thing that helps in my case is Carbidopa/Levodopa (Sinemet) which is a Parkinson's medication. Seven...
Have you had any blood tests which show your platelet count below normal or at the bottom of the range? Just wondering because although they are associated with your bloods ability to clot, I've read...
Wow Cajungirl, I know the sadness and frustration of having to tell a daughter that Mommy doesn't feel well enough or is too tired to do that. I keep telling my husband, just take her without me,...
A rheumatologist diagnosed me with fibromyalgia, and the pain is just like what you describe, as well as an overall general pain, certain parts of the body feel like they are bruised, though there...
You're one of the most helpful and caring ones of all--you receive back what you give [img]/community/emoticons/smile.gif [/2]...
Hey all, if you go to Google and click on News, then put in Lyme Disease, you will find some very interesting recent stories on Lyme Disease, including the most recent one which involves an attempt...
Thank you. I will be talking to the docs tomorrow about coinfections--this could be Bart or Babesia--having symptoms for both. We will see if anything interesting comes of tomorrows meeting. Sigh....
Well, there is substantial documentation that people who have untreated progressive Lyme Disease can develop Parkinsons. That doesn't mean they will, but, if you Google Parkinsons and Lyme, you will...
Well the subject line pretty much says it all. I'm going to the infectious disease docs again tomorrow so what should I ask them to test for with these symptoms? They are recurring. I start feeling...
Hi, I'm sorry you are feeling so bad, and I understand the frustration and sadness, too. It seems that about every 5 years or so, I go through some lifechanging incident that takes about two years to...
A few more things to consider. Have you been checked for parasites? Also, I read there is a test which is more reliable than the Western Blot (which is used to test for Lyme though not very...
Sorry to be bumping this up but I really would like to know if anyone has recurring pain at the site of their original bite/bites, more so than the pain at other locations in the body. Is this...
JELAINEP and nefferdun, yeah we don't have Lyme in Colorado either. Never mind a study from 10 years ago that found a rare form of Lyme in Colorado that doesnt show up on Western Blot tests. Because...
I have been eating one to two fresh cloves of garlic daily, but I usually cut up a some fresh ginger to throw in with it too, with pasta, salad or mixed vegetables. I also drink green tea and throw...
I have never gotten a flu shot, but this year I am seriously considering it. I had the flu last year and it really knocked me out, I don't think I could handle getting it again this year while I'm...
Thank you for the info about the stuff at WalMart. My job requires me to be on the phone all day, and the ear pain I've suffered since getting sick really affects me. When you use the ear medicine,...
I can definitely relate to the fatigue and I haven't even had Lyme for very long. Sorry you're having to deal with it again. I've heard it's common to have a few good days and a bad day, or one good...
Hi keephope, I dropped by the site. Wow, sometimes we don't realize just how very very ill some of the people here are. I will definitely pray for you. All those illnesses were from bites? That is...
Thank you. I wonder if anyone has had skin or tissue extracted from these areas for testing? I mean, if pain is returning to the site of the bite, maybe there is something measurable that is still...
I've been having particular problems with my pain being more severe in the arm, and leg where I got bites, more so than anywhere else in my body. Though I do have overall general pain all the time....
How many of you get the terrible ear pain? Is there anything over the counter that helps? Thank you for your input....