Edmonton, AB, Canada...
Hi I just wanted to say that I have heard from my LLMD and from other Lyme educated folks that Lyme CAN be pretty easy to treat if you catch it right away. It`s quite possible she could go on six...
Hi Robin, Brain floating in jello is a new way of putting it, but it fits perfectly for what I used to feel! I had it from lyme and bartonella- it got a lot better after I treated bartonella. Yeast...
Wow! Thanks for all the information. I had no idea it was a blood thinner. I don't know if I had problems with thick blood, so I don't know if I'll be able to notice that. But I have noticed some of...
I just thought I'd let anyone who was interested know- I have been on antibiotics since the beginning of August. I have seen lots of improvement in my symptoms, but not so much in the tendon and...
I got a clinical diagnosis from a Naturopathic doctor, and then confirmed with with an LLMD. The naturopath ordered tests from Igenix. The test was a while ago, but I remember I had IgM band 41 ++...
Good luck with the move!...
My sister and I were just talking about this. Every thing I do in my spare time (prior to lyme) seemed to involve the outdoors- I hiked, backpacked, mountain biked etc. I haven't been able to do much...
Hi +Lyme, I have lots and lots of problems with the tendons and connective tissues in my lower legs- and what I get sounds almost exactly like what you described. I have lumps, shooting pain,...
Wow! That's so exciting! Especially since you've had it since the 80's. It gives me hope. I have faith that the neck and hand problems will resolve as well- you just need to give your body a chance...
I have to admit, after my first appointment with my LLMD, I kind of stuck my head in the sand and tried to avoid all other doctors appointments. I was sick of being scared about what else it might...
Some antibiotics can mess your tendons up. The fluoroquinolones (Levaquin, Cipro, etc.) are known for causing tendon problems. If you get sore/weak tendons while on them, tell your doctor right away....
Hi Joanne, I was never seeing Dr F. I see a Dr in Seattle. I think you got me mixed up with someone else. And thanks CG too. I was hoping it was just the change of antibiotics. I've started a lot of...
My lightheadedness/feeling faint got a lot worse when I started treatment. I'd feel like I was going to fain when i just bent over. It's taken a while, but it is starting to get better. It was...
So about three weeks ago, my doctor took me off my bartonella antibiotics because he thought I'd got rid of bartonella. But I've been feeling really crappy since then, and I'm worried that it's my...
Hey, I am on Zithromax and Flagyl together. You cannot have any alcohol within 24 hours of having flagyl, but Zithromax is fine....
Rifampin was what worked really well for me....
Hi, I just finished bartonella treatment the beginning of March. In the beginning/middle of January, I had a period where I didn't have my antibiotics. Within three days, a lot of my symptoms had...
Hi springsjean, I'm sorry to heat about the brain lesions. The good news (or 'better' news, anyway) is that if they are caused by Lyme, it's possible they will go away with treatment. I would tempted...
Yes, I get very sore teeth and jaw periodically....
Hey, So I have now had herxes which are definitely from die-off, and not medication side effects, but I have also had problems with medication side effects when I switch medications. I don't think we...
I use HMF forte. :)...
Hey, So I took Bactrim and Biaxin for two months, then Ceftin, Rifampin and Bactrim for four months, then Rifampin, Ceftin and Minocycline for going on two months now. I have also been taking Flagyl...
Wow! That is so exciting! I can't wait until it's something I can talk about too!...
Yikes! That sounds scary. I hope you have a doctor who knows about Lyme on your side, but I think it's important to investigate the other possibilities too. Just because you have Lyme doesn't mean...
Hi Lymeade Glad to hear your doctor is listening, sorry to hear you're having problems with your heart. I hope things get sorted out for you!...
Hi 1hunter, The tests are kind of tricky. Certain bands are more important than others, and so an IND there could be important. Unfortunately, band 41 is one of the less specific ones. If your two...
I was sick for two years before getting diagnosed...
I herxed for close to two months when I started my bart treatment (rifampin and bactrim). I actually started Bactrim two months earlier, but on its own it didn't do much for bart. When I started the...
Hmm. Flagyl made my joint and muscle pain a lot worse. I'm pretty sure it was a herx- I am starting to feel a bit better now...
No- I've got a really good pharmacy. Last month, I was able to get it because they ordered brand-name instead of the generic. This time, they can't get any version of it....
Hi lymeade! I'm so sorry to hear that. I used to be from a small town- I know how it can be. Are there any other towns near you you could visit?...
Hi guys, Thanks- I've got some sort-of ok drug store probiotics, and I just take lots of it. I thought I should be ok, but I wanted to check. Pepphell- if I were around (or even in the states), there...
Just need to vent. I am visiting my parents for a week. Unfortunately, there is a (Canada wide?) shortage of Ceftin, and so I won't get it until at least 2 weeks from now, which is two weeks after my...
Hey! Wow, that is so exciting that you're seeing improvement already! I hope things to keep getting better for you...
2 years. I figured out my problem, and saw a lyme-literate natural practitioner who confirmed it. I now see an LLMD. My primary care doctor wouldn;t even order blood tests to test me for auto-immune...
I'm glad to hear you found something that works CG. I was actually just reading something about how research has shown how important it is to treat chronic pain, because if you don't, it can create...
I am on 500mg twice a day. My doctor wants to eventually work up to 1500mg I think, but he isn't sure. He tends not to start slowly, and looking at how much you are taking, I'm wondering if it's just...
Yep. It really scared me too! I hope you feel better!...
oh! I had that within the first bit of starting Ceftin and Rifampin. I felt horribly light headed, dizzy, like I was going to puke. My stomach hurt, and I couldn't get off the floor for 45 minutes....
Since you're talking about Flagyl.... :smile: Do either of you have problems with nausea while on it? I've been on it for a 6 days, and I still feel quite nauseous a lot of the time- especially in...
aww Jelaine! That's an awesome story! I'm so happy for you. Needshelp- hopefully some day you'll have someone that wonderful. But as corny as it sounds- maybe it just wasn't meant to be. Maybe you...
Hey- thanks. I didn't know ice wasn't good for Lyme people....
Hi ria, I don't think it's very common for Flagyl to causes seizures. Some people have seizures from Lyme, and so when they herx from Flagyl, they get more seizures, but I think Flagyl causing...
I can only pick 5! Ok, I'll try- 1) Tendon pain (everything from carpal tunnel to plantar fascitis) 2) Extreme sleepiness/narcolepsy (could sleep 16+ hours a day, and fell asleep during the day when...
Yay! I also get a lot of knee pain from lyme disease. I haven't had an x-ray of my knees, but I've had x-rays of other joints, and so far no arthritis for me either. I am kind of worried I've got...
Hey CG, I have major problems with tendinitis, in most joints, including my elbow. Here is what I have learned about it: - you need to get the inflammation down. It tends to get into a viscous cycle,...
Also- I am starting on 500mg twice a day, two weeks on, two weeks off. My doctor said he might up the dose to 1500mg a day at my next appointment, but that's not until May....
I started Flagyl yesterday...I'd be interested in hearing how they are doing too. I'm not feeling awesome, but I can't tell if I'm just having a couple bad days, or herxing. In a week, i should be...
I am writing an article for the University newspaper. It'd be nice if I could sort out a way to show Under our Skin, but I don't think I'm going to be up for organizing that....