I agree that a scope is a good idea. I am wondering how you came up with grits, oatmeal and chicken noodle soup for food. It sounds like you are still having symptoms eating those things. Maybe it...
See your doctor to rule out things if you haven't been checked. That can help put your mind at ease. I have had panic attacks and the bowel changes you describe were, for me, part of the symptoms....
Hi artsy girl. I am sorry you are having a bad day. Unfortunately, it takes so long for most of us to get a correct diagnosis we enter treatment pretty sick and worn out physically and emotionally....
Have you been checked by a gastro physician? If this is a chronic condition and your doctor has ruled out a blockage or other serious issues, you could be responding to a food or foods you do not...
That is really great news, so scared. You need all the support you can get. Having the understanding of your family and the support of others with Lyme can make a big difference. Just talking with...
I have Lyme and bartonella and for years struggled with rage. I envisioned a screaming woman imprisoned deep within my body, beating at the bars of her enclosure and writhing with anguish at the...
It is good you are investigating this with your physician. I have found that diet has an effect on how I feel. Has your doctor suggested any dietary changes for you to try? Over years experimenting...
Hi. When I was diagnosed with ibs I got on here and read a thread where people were talking about diets. One mentioned was the gaps diet. Since then I have used this diet three times to turn around...
Unizyme. Got from naturopath....
Hi so scared. I think having a chronic, debilitating disease is in itself difficult to cope with emotionally, and it can be alienating. Then, actually being sick and having limitations on what you...
Sorry you are having such a difficult time with your Lyme symptoms right now. It is so hard to know what is the right thing to do to feel better when there is so much unestablished as consistently...
Hi. I'm sure there's a lot of variance here, but on my first appointment I brought a list of symptoms, previous diagnoses and timeline, allergies/sensitivities (meds and others), and medications with...
Hi. So sorry you are going through this. Oh yes, I have felt and do feel that way. One of the most difficult things to manage for me has been the sense of loss. I gave up my teaching job, strenuous...
Hi. Thanks for your reply. I have had the hyda (hida?) scan for gall bladder and it was normal. I've had a CT scan and an ultrasound with no issues noted. I will ask the new GI doc when I finally get...
I'd also like this information. Especially interested in talking with the ND in Lafayette, but also want to find a LLMD. Thanks!...
I had a similar bleeding, no pain. Went to the gastroenterologist, was scoped and diagnosed with internal hemorrhoids. He told me there aren't nerves in that area so there isn't any pain. It's...
Yes. Probiotics help your immune system and also, once you are on antibiotics, are especially important for maintaining good intestinal health. Florastor is a good one. I've seen it at Walgreens or...
I went to Jamaica last year and brought two suitcases - one for my clothes and one for my meds! What's the brand of your organizer? I've never seen one that is like a wallet. It sounds as if it would...
Hi. Welcome to the forum. I can't answer your questions about test results, but I did want to say hi and to answer some of your questions. There are a lot of treatments available for Lyme disease and...
I'm glad I read this. I've been feeling down, too. The struggle is hard enough, dealing with the pain is hard enough, without also having to mitigate things with well-meaning but clueless people. In...
Hi. I'm new to the IBS forum but have been at the Lyme Disease one for several years. I have some questions about IBS because just yesterday my regular doctor said he thinks that may be what is...
Gastrointestinal problems were my first discernable lyme symptoms. When I got on lyme meds, they went away for awhile but then came back. There were some very sad and stressful things happening in my...
When I was taking azithromycin, artemisinin and mepron, I got thrush easily and had to be very careful with my diet. Dr. B without much wiggle room. Now that I'm on doxycycline, there is a little...
Maybe you're getting it all over with at once.... Happy New Years to you, too. Rose...
but to all...
Glad to hear you have found a good doctor and hope you will be feeling better soon. I've tried exiting meds, too, with similar results to yours. Not fun, but good to know something can help. Rose...
As long as you are keeping things in mind during your hunt, I will share that getting rid of the wall-to-wall carpet in my house in favor of hard flooring and natural area rugs that can be thoroughly...
I've never heard that, but it makes a certain amount of sense. Isn't botox derived from botulism? That's got to be toxic. If you already have immune issues and introduce a substance like that, maybe...
Lita, I've never stopped praying for you and sending you my well wishes. You touched my heart last summer and I think of you and wonder how you are doing often. Your courage and generosity in sharing...
Hey, Daisy, I'm glad you resurrected this thread; it's an ever-appropriate topic. I did want to update you on the crazy foleage that suddenly sprung up after lingering for a couple of months as puny...
seeking, how much A-bab do you take? Yes, the artemisinin dosage (3 pills 2x/day for 3 days, the 4 days off) is what the LLMD prescribed for me. It's more than the pill bottle label recommends, but...
Thanks for posting that. Rose...
I just say what my dad used to say, "I'm hanging in there!" It's noncommital and most people commiserate with me after I've said that ("oh I know what you mean," or "times are though, aren't they?"...
Way to go Synthkeys, talking to all of the doctors. When I told my chiropractor about the Lyme diagnosis, he started having patients he suspected may have Lyme contact me for more info. I haven't had...
Simela, have you been tested for sleep apnea? I was surprised when I first found out that I had Lyme that apnea was on the list of symptoms. At the time I thought it was an unlikely inclusion - how...
Traveler, ha ha, how unfortunate! Too bad you had to find that garlic bread! Rose...
CG, I'm hanging on to the ideas you mentioned; they will get me through the night. I am belching a lot, so maybe (my gosh I hope so) this is a stomach issue, or at least partly a stomach issue. Last...
Heathersdad, I hope you can answer a question. Do you know if the jaw treatment your daughter is getting would work for adults, too, or is it too late once bones are formed? All of the symptoms you...
Ahh, with these infections, for me at least for now, nothing good lasts forever. It almost makes me cry to read my previous post here - I was so happy and feeling so great. Not anymore. I'm having...
Impressive list of ideas - I copied them into my journal for future reference. I like the detox baths, too. When I get achy, they always make me feel better. Could just be the warm water, but...
I take Artemisinin 3 pills twice a day for three days, then four days off. I take this along with azithromycin and mepron. I also take A-Bab, a Byron White herbal tincture. Definitely, the A-bab...
I need to find your blog - pot pie? Chicken and dumplings? Mmmmmmm, sounds like real food! Rose...
+Lyme, you are so right. It would be wonderful if there was a centralized hospital or something where we could trust the medical staff to diagnose us properly, and to take care of us. Even with a...
The biscuit fest was a great success! I used just a sprinkle of stevia and it seemed perfect. Whole Foods was out of almond flour, so I got hazelnut. It's not as fine as I'd like, but it still was...
Thanks for sharing that information. That helps a lot my understanding of what might be happening. I had thought since I made it to 13 drops before i started having symptoms, that 12 would be my...
Nasalady, how cool that you are developiing recipes. Back when I did low gluten and could still eat some natural sugar, I came up with some wonderful scone recipes, and blueberry pancakes. Can't eat...
I get those headaches, too. Sinus pressure and pain under cheekbones, above eyes, and at temples, and pain where my head hooks to my heck. The neck pain, at times, radiates down my neck and across my...
LOL - I could not focus if I wasn't keeping the restless part of me busy doing something else! I have those anti-single-tasking days, too. Those are good days to be a pampered person lounging in a...
My LLMD said the A-Bab is formulated for babesia. I'm wondering if I'm having a herx from it, or just experiencing amplified symptoms as part of the natural fluctuation of things. Lots of cardiac...
Hey, CG, nice to see you back. It's good to hear about the gains lots of us are making. I always come back to my initial deal with the cosmos; I just wanted to be back in my life. While I am not well...