Hey Chick, thanks for stopping by here! ANy and all your knowledge on EBV, as well as the others, which I have, is appreciated. How long did it take you to recoop? How were you treated? So you...
Jennie48~ Wow, we both hate needles! One would never know I had two natural (really natural) childbirths with the way I am (they were definitely not planned to be natural) I also have had the same...
+Lyme I have been an advocate for cebv awareness for about four years now. I moderate on an ebv forum (there are a few) and have learned much through experience, research and time. I know some may...
CajunGrl Honestly, I think it is because most doctors don't know (and many are too lazy to learn anything new). You should also ask to be tested for Fifths Disease/human parvovirus it has many of the...
raw runner, I think you are right to go off the valtrex while on antibiotics. I think that would be too much on your liver. Valtrex can be effective for some and not for others. Typically 3,000 is...
CajunGrl, I didn't say ebv is a herpes virus, but that it is often treated with valtrex, which is often mostly known as a treatment for herpes. It is one of those drugs designed for one thing, but...
There are effective treatments for ebv and some of the accompanying virus's. Most knowledgable doctors will prescribe varying antivirals. Typically valtrex (commonly known as a herpes treatment) and...
Simela Parvo is a common illness in children and known then as Fifths Disease. For whatever odd reason, in adults it is much harsher on them than on the children. Parvo alone is enough to cripple an...
Sally Please try not to worry yourself about ebv so much. I do understand your issues with OCD and want you to know, ebv is not a death sentence. You will be fine. Have you ever had your adrenals or...
Sally, you are confusing the different herpes virus'. The herpes ebv/mono virus is not the same herpes virus as the one that affects the genitals. It has nothing to do with "genital" herpes. There...
+Lyme How are you treating the lyme? Are you seeing any positive changes? Have you ever treated with antivirals? How did you or did you treat your Parvo diagnosis? Parvo/Fifth's Disease is hideous in...
Sally, your welcome. I hope you feel more at ease about ebv. cbarrett56- LDN is GREAT for alot of people and for many different ailments. However, there are a large group of people who do not respond...
Along with POTS, one should also consider NMH, neurally mediated hypotensiion (they are similar). NMH is specifically discussed in Burrascano's guidelines for treatment. However, fainting is often...
First off, there are many herpes classes, just because you have ebv does NOT mean you have been promiscious. Your husband may or may not get it from you - maybe you got it from him (?) There are some...
I believe that chronic mono is chronic ebv; mono is from the ebv virus - same thing, just different title. CFS is not EBV; although, like I explained in another similar/ebv post, EBV can and often is...
Hi Sally I maybe able to help you with questions you have regarding ebv - just ask 'em. You were told right, ebv and cfs are not the same. However, the ebv community does believe that ebv can cause...
Although I am sure there are "relapses" for some lyme patients, I don't think they are as common as some want us to believe. I suggest you have your hormones checked; thyroid, adrenal and sex...
OneWearyChick, email me what you have left, I may be interetsed . Done. Let me know if you don't get the email. /community/emoticons/smilewinkgrin.gif ...
Junk Yard your leg weakness may be magnesium defiency. You could supplement @500 mg today, then tommorrow, etc, see if it helps - also soaking in an epsom salt bath may help....
KO-LD what type of herbal tea were you drinking? Although I agree with detoxing, I think this one may be too much for most, especially those with chronic illness'. Now that you can add in fruits,...
Mamyou You are the first person (other than myself) who has ever discussed or inquired about NMH on a lyme forum since I have been aware of the condition or around the forums (at least that I have...
I purchased (and custom made them myself) through www.zazzle.com - they have a great assortment of products. One of my children did a fullly in depth research project last year for school and at the...
OneWearyChick~Today I took my chances on a free mobile clinic and believe it or not the Dr. took my blood and sent it off to be tested for lyme. He honestly didn't believe I had lyme because he said...
Tribalrules Assuming you live here in the U.S. - there should be a local clinic or health department you can go to (immediately) for free or very cheap for treatment. Depending on your state, they...
Have you looked at the Monteil Williams blender/juicer??? Was waiting for the hype to die down and maybe get one at a better price. I'm not cheap...I'm poor!!!!! Too many medical bills x 40...
Hi Rose, I did the "all natural deodorants" for awhile - NOTHING worked. So, being fed up and tired of smelling I went on safecosmetics site (I think it is .org) and checked out their information for...
I used to experience the horrid cat pee like odor from my underarms, even with an organic "balanced" diet and detoxing. I found that the only thing that truly helped was my one round of doxy - that...
An important issue to your poll that seems to be overlooked is that some people may not live where they contracted lyme, some just don't know. I live in Central Florida (not north or south) and may...
This is the multi I take http://www.bodybuilding.com/store/aor/orthocore.html I only need 3 (rather than the recommended 6) so the value is there. AOR has a great reputation for all of their...
If you don't qualify for lyme, they are looking for all sorts of people with varying illness. Makes me wonder if one could cash in with multiple diseases. /community/emoticons/smilewinkgrin.gif There...
Gary~ you are absolutely right on with your information (the only other great source link I could think of that you left out was Mike Adams /community/emoticons/smile.gif ) 'The Untold Story of Milk'...
Oneweary, Where did you come across the info about green tea blocking the thyroid function? So far the only info I can find is that it may be harmful when taken in large amounts - more than 2 cups a...
Hi Emanne I use dessicated thyroid (armour) and have found it to be quite successful as have millions of others. Here is a link to locate a prescribing dr in your area...
Hey +Lyme I saw your post to me regarding this thread in the misdiagnosed writer thread ( http://www.healingwell.com/community/default.aspx?f=30&m=1870309&p=1 ) If a person is very healthy,...
I haven't tried XANGO, but drank MONAVIE for awhile (my brother was / is hooked into it). I didn't like that it wasn't organic and their mantra was to discredit organic when it was brought up. I...
" What happened to this man is so wrong, and yet, it's much more common than we'll ever know because the ignorance of so many doctors and the fact that they cover these stories up so that no one...
Milk thistle is great for many things, however, it lowers ferritin/ iron. So if you are tired (and possibly suffering from low iron/ anemia) as it is all too common, milk thistle may not be so great...
Denise, I get your point. However, motox should be entitled to his'/her's - as anyone should. I am not getting into the lab issue, but I will say there was validity in his original post/question and...
OneWearyChic,You are not labeled. I have a big heart and I never mean to hurt anyone on here. If the post was deleted, it was because it broke the rules. I don't single anyone out on here. I've let...
Sorry OneWearyChick, Censoring is fair when a member brings up a topic yet doesn't listen to the facts and evidence that was posted. And when that member keeps bashing and bashing and putting down...
Yes, we do understand you volunteer for this position and that you are dealing with your own health issues. And most of us do know about the previous problems. But.......It is apparent that if...
while simutaneously invading...
Why pm? Why not be open and honest? Why is that "bashing"? Because your experience was different than mine or others? My goodness, people discuss some of the most private issues openly, but we are...
I have been 'sick' for just over four years, I was bed bound for several months in the beginning of my illness - being undx'd with lyme for the first three years, I did get dx'd with other things in...
I will conquer...
Hi CajunGrl Yes,most of the Gulf beaches around there are nice. Ironically, we were just posting on him here http://www.healingwell.com/community/default.aspx?f=30&m=1692572 Too bad he won't do...
[quote="pepphell"] speaking of doxy, it gave me upset stomach first few days. but now for the last 2.5 days i feel constipated. its strange. i am not taking any probiotic, but eating greek yogurt...
spirochete filling cells...
Pepphell I think you should stick with this dose and trust your doctor until he gives you a reason not to. I am on the same with my llmd - just because someone else does or does not do well on a...
every internal inch...