My sincerest apologies. I had not realized that these were your rules. I will adjust accordingly. Actually, I think I shall just remove it. It was the first time that I ever used it and I was not...
I just saw this new blog post today and was very impressed. Maybe some of you have already seen it. The part that really, really hit home with me was this section of it (below), which relates...
Hi all . . . RosesinJanuary: Yep, I am definitely still sick and I still get EM rashes a few times a year. Tala3 and +Lyme: We sure have been through the ringer with horrific work experiences on top...
Wow, +Lyme, we certainly do have a lot in common! I'll write more a bit later, but I wanted to comment about workplace bullying being illegal. It actually is not, at least not in the US. It is not a...
I wanted to add that I seem to be one of the oddballs who continues to get Lyme rashes, years into the disease. I get several a year, typically. They are oval-ish, travel up my body, and itch like...
Some more info on me to address your questions: I was a bit of a sickly child ("kidney" issues, bad allergies, etc), got better. Started getting mysterious and debilitating/itchy rashes in high...
I feel a bit like Stutterbug. I have had Lyme, apparently, for at least 20 years or more. I kept being misdiagnosed (CFS, fibro, etc). It is obvious that it is now in my brain and CNS, and my joints...
This sinus/nasal rescue stuff sounds pretty interesting. I'll check it out. I may have actually tried it before. I can't handle Claritin. I do a little better with Singulair. I am pretty sure the...
Thanks, Razzle. I needed to hear this from someone who gets it. I may need to hear it again at some point 'cause I just keep finding this type of "fair weather," "add insult to injury" situation with...
Thanks so much for the kind welcome and the quick response! Much appreciated. I think I may attempt the corticosteroid route this year and see how it goes. My environmental/seasonal allergy symptoms...
It is about that time of year again. Time for my seasonal allergies to get out of control. I used to very successfully use nasal steroid sprays for this and they helped tremendously. However, once I...
I know just what you are going through! So hard to deal with, I know. Some of my first Lyme symptoms, way back in my early 20s, were severe panic attacks to the point of being agoraphobic. I was in...
My experience has been super similar, JYW! And just recently I lost a very close friend whom I have known for most of my life because he refuses to believe that I am sick at all (or he believes that...
I saw this same story recently. I sure do hope that she wins and that this initiates the way for better, more accurate diagnostic testing. I have watched pretty much the same thing go on in the CFS,...
Yes, that is what I thought. Their numbers were exceptionally LOW. We hear all of the time about people losing their careers, spouses, homes, cars, etc, all because of Lyme. We hear about the...
Dumb and/or uneducated, I agree that they come in all forms. Most of today's medical professionals only know what they are taught in school (way, way out of date info), what pharma reps tell them,...
I have had an MRI in the past year, but not of my head, unfortunately (long, Lyme-related story)! Please keep us posted about what you find out from yours. I have always been freaked out about the...
I've just gotta add to this one . . . I live in West Virginia, which borders two of the most known endemic Lyme states in the country: Maryland and Pennsylvania. I have been told repeatedly that...
I definitely hear ya! :sad:...
This vision question is very intriguing to me. When I first developed symptoms of Lyme and was diagnosed instead with fibromyalgia (ugh -- something like 20 years ago, it seems), I kept telling my...
From what my Lyme-fogged brain remembers, there were only two who mentioned Lyme. It seems like both were in the context of, you know, the old "well, I was told that I even had Lyme disease at one...
My guess is that it was written by a Big Pharma research consulting group that was paid to look at trends on which to risk research capital/investment dollars. Looks like Lyme failed. So sad. It...
Thank you, Gary! I am new to this board -- well, new to posting on message boards at all about my personal situation or opinions. Because of my former career I did not feel comfortable posting any...
I saw this one over the weekend (below) and was so shocked at the Comments section that I had to write a comment myself. It amazes me that in nine full pages of comments only two people even mention...
I just saw this today. Seems way off base, especially the costs per year of antibiotics. No wonder we aren't getting the help we need. Lyme is not a money maker to the industry:...