Yep, It's infuriating that a Dr. can't practice medicine the way they need to without being targeted and forced out of practice! So the question is where to go from here?? I don't know any other...
Hi All, Does anyone have an LLMD in Texas? Or if not LLMD...a Dr. willing to treat lyme? I know there aren't many near Tx. I am in DFW area. My email: [email protected] Thanks so much, Paulette...
I use Pearls brand of probiotics. Can be purchased at walmart or online. It is in special extra thick capsule that is supposed to dissolve in intestines instead of stomach, thus more of the...
Interestingly, I have found that there are several causes for my pain. Lyme and Bart are one for sure, but also adrenal insufficiency and hypothyroid. At first I thought ALL the pain was lyme, but...
Drs. first diagnosed me with fibro then 6 months later I wasn't feeling worse and sent lab test to igenex for lyme and sure enough I have lyme. So many of the symptoms for lyme and fibro overlap....
If you only get lightheaded when going from sitting to standing...it could be a blood pressure issue....
I'm thinking my eye pain is more bartonella than lyme. I have recently had a horrible flare of the bart symptoms and the eye pain, frontal headaches are back. Haven't found much that helps but it...
Traveler, Glad this helped. Lyme is so insidious and can injur our bodies in so many ways. Unfortunately it seems that the adrenals will be affected by a long term infection, if nothing else they get...
Hi All Please do not misunderstand what I am saying about steroids. I am in no way advocating for anyone to take steroids if they are not properly diagnosed with adrenal insufficiency! It is very...
Be careful that she isn't dehydrated. Do you have a glucometer? The symptoms you describe can be from low blood sugar. All of the symptoms described are part of an adrenal crisis, which can be...
High blood pressure can be caused by many things and should not be used to rule out adrenal insufficiency (AI). Not everyone with AI has low blood pressure, we are all individual. From what I have...
Hi +Lyme, Glad my description of the adrenal symptoms was helpful for you. I don't really understand the connection between emotions and adrenals but it is profound. I remember being in horrible...
Pepphell The sleeping thing is interesting. I have noticed that my headache/eye pain goes away after I sleep as well...weird. On this note, I went to the eye doctor for my annual eye exam today, I...
KTP, Good luck talking to your doctor. If you get really sick (diarrhea, vomiting or extreme nausea, feeling icy cold all over, severe achiness, fatigue to the point where you can't lift arms, low...
This is interesting. I get this sharp pain like in my sinus's and in & behind my right eye. It's weird because is usually happens only in evening. I have always thought it is lyme or bartonella....
Hi JIJI, Nausea, abdominal pain, and weight loss are hallmark symptoms for adrenal insufficiency. There are of course many causes of nausea, but adrenal problems are not something that most doctors...
Welcome! I love this forum it is supportive and informative. And has good moderator, which I have found the moderator can make or break a forum /community/emoticons/smile.gif Hang in there! It can be...
Hi KTP, I understand wanting to listen to your dr. and trust their judgement. Addison's is so rare that most Drs. have never treated a patient with it. I went to one of the top Endos. in Texas who...
Hi bucci, Yes the acth stim test can be accurately done while you are on dexamethasone. This is the safe way to test the adrenals if you are already taking steroids. Do you know the results of the...
Hi +lyme My addison's was diagnosed after I had chronic lyme. The dr thinks that the lyme definitely contributed to the adrenal failure. TB causes addison's and lyme is a spirochete just like TB to...
Hi All, I have LD and Addison's disease. 10mg of hydrocortisone (HC) is a small dose. It is usually better to split the dose 2 or 3 times a day. For example: First dose would be first thing in...
Hi All, I thought I had stretch marks from higher dose of steroids I was on in Feb, but now I am wondering if this is bartonella rash?? The rash has gotten worse every time I have been on...
Hi All, I am not no expert on adrenal fatigue. Anyone who knows more or has adrenal fatigue please feel free to jump in here and correct anything I have wrong :-) It's my understanding that adrenal...
Hi +Lyme I'll do my best to answer your questions. The adrenals produce 2 major things cortisol and aldosterone. When the adrenals fail, a steroid medication (usually hydrocortisone) is given to...
Hey Denise and everyone, Thanks for your posts. I really appreciate how informative and supportive this forum is :-) Health to All, Paulette...
Gary, What were your complications that the Dr. couldn't handle? I ask because I have many endocrine issues including acrenal failure and I'm not sure that Dr. has knowledge base to know the best...
Hi Dowa, I agree with Gary's assessment of Dr. W he is still new to lyme really. He has a heart for it, but doesn't talk about detox much. I don't know how well he will handle your case? I had...
Yes Gary...
Dowa Just emailed you the LLMD info :-) Hope it helps Great Expectations...
Hi Dowa, I go to the Fibro & Fatigue ctr in Fort Worth, they treat fibro and hormone issues. The Dr. there is pretty good with hormones and is willing to acknowledge and treat adrenal...
Hi Bucci, If you try splitting your prednisolone dose 7mg and 3mg...be sure to take 7mg in the morning and 3mg in the afternoon . You always want to take the higher dose in the morning because your...
Hi bucci, Adrenal problems are complicated and then when you add in the lyme and other infections it's a nightmare to try and manage. I've been working on finding the best dose & type of steroid...
Hi +Lyme, As we all know, dealing with a chronic disease can be very difficult. I'm glad you are reaching out here. I want to be straight forward on this...hope that's okay. Since you have been in AA...
Hi Bucci, Your low temp may be from the lyme, low thyroid or low cortisol. I know you are taking 10mg of prednisone, but that doesn't mean that your cortisol is not too low at times. One of the...
Hi All, Not well, but better...especially the cognitive issues. I have had lyme for near 7 years, only had treatment for about a year, but I have seen improvement. For those of you who have been in...
Hi I noticed that your cortisol is high...was this an AM plasma cortisol? You have to be careful because you can have a normal or high AM plasma cortisol level and then it can be low noon and PM. You...
Hi In a previous post it was mentioned that lyme patients often have low cortisol in the day and high at night...this can be an early sign of adrenal insufficiency. I can only speak from my...
Hi bucci, Co-infections are different from the strains of lyme. Strains of lyme just means different variations of the same bug. Like the flu is the flu, but there are actually different types of...
Hi bucci, Hope you are doing well today :tongue: There are several factors that make a difference in how quickly someone gets "over" lyme. I say that in quotes b/c many say that once you have the...
Lymeade I'm not familiar with aldactone...what is it?? GE...
Hi bucci, Hope you're doing okay today! I'm glad you brought up the parasites...I don't even think I have been tested for parasites. I'm going to have to bring this up at my next dr. appt. I have had...
Hi Rose, Yeah it can be so hard to tell the difference btw lyme and adrenal insufficiency's symptoms. I also think in my case the lyme has continued to damage my adrenals through the past few years...
I have the ringing in my ears and it is worse sometimes than others. Seems to be the worst at night. I know it is a lyme symptom, but my LLMD says that the ringing can also be caused by toxins...
Hi bucci, Ah..allow me to introduce myself :-) I am 31 yr old female living in Texas, USA If you have stomach problems you may need to eat with prednisolone, otherwise you don't need food with it....
Hi Bucci, Hope your day is okay. I agree that 20 mg is too much. I am on 8 mg of methylprednisolone(name brand Medrol) to replace cortisol and 3 tablets of florinef to replace aldosterone. If you get...
Hi Bucci, My body temp is normal now...but when I was undertreated for addison's and my cortisol was too low my temp was low and I was cold, bone chilling, can't get warm no matter what I did kind...
Bucci, I so agree that having the right diagnosis and the right treatment is an awesome step towards Healing and Wholeness!! You mentioned taking 40 mg...I have had to increase my dose after an...
Hi bucci, So you have addison's disease. Is it primary or secondary? I have primary adrenal failure (aka addison disease) this means the problem is in the adrenal glands. Secondary means the problem...
HI JoAnne, Great explanation for the difference btz "physiological" dose and "pharmocological". Basically what I take is to replace the cortisol my body would normally be producing. Usually people...
Hi bucci, " Do you have a lyme doctor? does he know you are taking steroids ?" Yes AND Yes " are you being treated for the lyme?? were you treated? very important your endocrynologist is speaking to...