Hi! The New York City Lyme vigil is this Wednesday, September 17th in front of the New York Times building from 11am to 1:30pm, rain or shine! https://www.facebook.com/events/1475202696060072 Green...
it's likely mold growth! get your shoemaker panel done... www.survivingmold.com check your HLA DR, MSH, c4a, tgfb-1. Through lab corp if you can. mold growth increases after rain. can be immediate....
Hi, I also have information I can share, I'm in northern NJ. PM me if you want.....
Hi! The tri-salts help the adrenal. They will elevate bp too, and yes, detoxing. Regarding the epsom salt baths, how much salt were you using? How exactly did you feel afterward?...
Hi! Thanks Razzle (and everyone). I did meet two new ones, was promising. Though all the suggestions were good, I think those folks (that many of us know) are busy/overwhelmed. Thanks. If you want...
Hi. I read that CD57 results are skewed when you have certain co-infection. So if the ehrlichia is targeted first, your CD57 would likely go lower after that successful treatment....
Hi! Client now in the hospital, research project folks not really helpful- I wish it were different. I'll keep plugging away......
Hi, Thanks for everyone's feedback! I am familiar with the ones, VS and RB and was looking to expand the network. I am disappointed in columbia. No support for inpatient, little lyme awareness, no...
Hi, I am looking into some local LL Psychiatric care for clients. Does anyone have any experience with Dr.B in New City NY? Or anyone else in the northern NJ area? Need help for an adolescent and an...
Hi, I'm wondering if anyone can recommend a good (complementary?) GI doctor. I will travel. Just figured out that some of my symptoms are paraesophageal hiatal hernia- I need someone who knows about...
Hi! Yes, this is indeed a difficult situation. I am going to research to see if I can help get an MBP advocate. Thanks everyone, for your comments! I would love for her to be connected with other...
Hi all, I know someone who needs help because she is facing these. Child has lyme and also diagnosed with autism. Anyone faced this challenge before? Know anyone who councils it? Thanks so much in...
Hi, I'm bumping this up... please feel free to post this on any list. I've posted on lymenet and mmi as well. She's really a great doctor and wonderful to work with! Thanks...
Hi, One of my doctors has asked me to help her with finding someone (see below). She's in the NY metro area (not in Manhattan, I think it's Rockland County). Thanks, Tracy -----------------------...
Hi! That happened with me too. They would be more prominent with the heat of a shower. At first I had a traditional doc say that she could laser them away, and that if not, they'd be there forever....
Hi! Thanks for posting this. Perhaps I will see you there. I heard there is a lyme spt group in Morristown. Anyone here heard of it or have links to it? Anyone on here in the area? Tracy...
Wow. Here you can get information more on target than 90% of Psychotherapists will give you. There are some really skilled LLPsychotherapists, perhaps you can reach out to one? Where are you guys?...
Hi everyone. Bucci, I have all of what you do. Except it seems that there are just times that I will quickly get rid of the water that I just drank. The times when I can't keep hold of my water seem...
Hi! Your wb bands can tell you a lot. The fact that you have positive IGM's (esp CDC) positive is all the answer you need. By "Immunology test", do you mean IFA? Do you mean an elisa? Or a PCR? There...
Hi! Has anyone tried taking the Samento and Banderol together? I am confused regarding how many drops are recommended from the research paper. I asked my doctor and he wrote that the jury is still...
Yes, I have all of these things... low BP, temp, pulse. Docs used to say that it was a sign of 'picture perfect' health. LOL (or Cry out loud), still some docs have no idea about this... Sometimes I...
Hi, yes. My SED rate when I started feeling really bad (severe foot pain and hand achiness) was 90. My CRP (C-reactive protein and CCRP-cardiac CRP) were also really high. CCRP was 15, although I...
!!!!!!!! :-( It would be GREAT if that were true Denise. If we know that all the labs and lyme info held up in court. If the research were looked at by insurance companies. If we knew the state (and...
Yes, thank you Peter, awesome!!! I have loved this forum, and recommended many people to it. This is really where I met my first 'lyme friends', which led me to my current doctors and on the right...
Hi, sorry, just the first part was, I was spinning off of what you said (regarding folks or dogs having lyme but being asymptomatic). THe rest was just general response... some to motox. Tracy...
Hi Patti! I just read on Mercola's site after my dr. told me about agave. They both strongly warns against it. It's reportedly healthy because it is natural and yes, lowered GI. However, the ways the...
Hi... few comments... Dom, a LOT of people will likely test lyme positive, and yes are fighting it well. The jury is out though, because many folks are getting sick NOT after RE-infection, but after...
It is hard. So was going off of gluten. I suggest lowering sugar first (keep everything you eat to lower than 10mg's). Also, you probably know this but make sure that none of the sugar is fructose,...
Hi! Karen, glad to connect with you. Glad you are getting the kit finally! Goldie, can you e-mail me personally? Are you on facebook? There are a few of us linked that are going through KPU...
Hi! I just typed a response and somehow it deleted itself! Yes, I too am overwhelmed with it all. Yes, I do take iron-well, Ferritin from Cardiovascular Research. I am not looking forward to...
Hi! I wonder why I didn't get an e-mail response that there was a response. ?! Thanks for the feedback re: Western Blot. I got both responses (from LLMDs!). Hi, sorry for throwing out initials and...
This is a positive blot!! You are lucky in some ways to get it! Sorry, don't know one in Ontario but I can ask my friend....
IgM- **31, **39, **89-93 (all IND) **41 + + + 66 + IgG- **41 + + **31, 45, 58 (all +) Hi folks, I'm writing for some feedback, as there is descrepency with my docs on what the above means (active...
Hi! Thanks for responding. Hmm, a cpap can help keep the air humid, huh? Interesting, I wonder if I could get some sort of humidifier that attaches to me. However, mold is such a big issue.......
Hi! I started off with bad uticaria (E, N and T) and I get occasional hives on upper part of inner legs. After searching for a few years, I found these integrative doctors, who found lyme and then...
Hi! Im sorry to hear your struggles. Perhaps a neurologist might help. I have a crazy histamine storm that happens while I sleep, and no doctors can figure out what it going on or what treatment will...
Hi everyone! Springjeans, the vit D brand you are on might be a problem for you. It might have a preservative or something that you are having a negative response to. I have been using Dr. Mercola's...
Hi! I can't believe I can't remember this. It's been a while since I've been tested. I have a positive Igenex western blot, only for IgG. The IgM is almost positive, but not (has a tripple plus...
I'm interested in knowing if anyone's tested or treated for this. Dr. K (Washington) says that 80% of Lyme patients have this. All of my bloodwork supports it (low zinc, manganese, b6, eosinophilia,...
Hi! Thanks for your quick responses. Watched the video. I wish it made me feel better. The problem is the flippant response from doctors... the laughing, etc. For me, and others with either EMF or...
Hi! You're not alone. I just posted above you in a new thread on hypnic jerking. Part of it is brain zaps as well... it's a hypnic jerk localized in the head, I was told. Sounds like a knee cracking...
Hi! I am getting to my wits end with this. My body won't rest. The 'supposedly innocuous' hypnic jerking is nonstop, preventing sleep. After two hours of it, my body starts with full body jitters and...
Hi! Jumping in in the middle. I too, struggle with low adrenal fxning and was recently put back on low dose cortef. I carry solu-cortef and have a medical bracelet. Even though I only take 2.5 mg pm...
This thread is amazing. Highly entertaining and .... so evident that healingwell is one place where these discussions can happen without people being rude .... it is a good balance to have people in...
I know two people who are looking into this, one has tried it already. If you want their contact info, send me your e-mail.... Tracy...
"IDSA nightmare" that's the only thing coming into my mind. Something must be done. If we can't work through the IDSA, how can we get ILADS more recognition? Well, as long as ILADS recommendations...
Hi! Can anyone share what insurance carriers cover this medicine? Thanks so much!...
Hi, unrelated topics, but one posting... sorry for the random topic jumping Has anyone tried Phenibut/Kavinace for twitching or sleep related issues? It's a reduced form of GABA that crosses the...
Hi, does anyone know of a doctor in the Phillipines who will treat chronic illness in a half decent way? I believe my uncle has underlying lyme disease (he's diagnosed there with MS), and he's too...
Hey, great idea, thanks!...