Thanks so much for your good thoughts. I have ranted in the past that the way Lyme patients are treated never would fly for a cancer patient. Guess I get to try that theory out for size. So far, I...
Hi! Its been a long time since I posted here, mainly because not much has changed. DH, kids and I are all still being treated for Lyme and co-inf's. Aside from some tweaks in meds, -- same old, same...
thanks for the links- I love how it is written clearly- so non-LL people can understand. I just shared on FB and Twitter....
hahaha! That works perfectly for my hubby the 'tick magnet." (Gotta love bad lymie humor) I was digging around on the googles.... ticks and mosquitoes are also very attracted to ammonia. I also...
I know that Lyme tends to run in families, either because of lifestyle or genetics or both. But can certain people be more attractive to ticks? My hubby (I call him a "tick magnet" har-har) can cover...
"At least I know that the foot pain every morning will soon be replaced with something else!". " ROFL!! That was me last week.For over a month I had bad pain ion my left hip. Last week, i had...
Thanks! I looked up some info on scleroderma. Its doesn't sound like that- the rash is flat and smooth. Its more a lack of color than anything. Traveler- this girl does have eczema/sensitive skin...
I am asking about this for a friend of mine. i haven't been "lucky" enough to ever get a bulls eye. My friend's DD has been getting a weird rash on her arm, her leg and now her stomach. She took pics...
thanks :) I am still waiting to hear back from the dr. he is not in the office on Wed's.... i think that tetra is in the same abx class as mino/doxy. Scott started on treatment when he was 11 so...
Does anyone know offhand if they are antibody testing? My son has been treating for Lyme/babs/Bart since 2008. we saw his llmd last week, and today I got an email from him I am swamped with so much...
Littlehutton, ITA with everyone,m sadly it does seem like a lot of your symptoms can be neuro-Lyme related. My whole family has late stage so I have seen just about every symptom possible. One of the...
Gary and I finally buckled down and ordered tinidizole from Canada. He has been taking Flagyl for a while. He pulses 5 days a month. Our llmd has research that suggests a combo of Doxy and Tinidizole...
Its hard to describe but I get something similar to that in my knee. Or I guess it is right below my right knee- its almost like an wet or icy spot, but its inside my skin/joint. Its about eh size of...
Aghhhh! I know some of you read my other thread on this http://www.healingwell.com/community/default.aspx?f=30&m=1848960.... but it is just getting worse and worse. I made the appt w/ Dr B in Red...
Hey jeff- Been there, doing that.... and I will be honest and say it is not fun having your whole family infected. But the really good news for you is that if your DS has it, he will be able to get...
In conclusion: ALL RESEARCHERS AGREE THAT INFECTION WITH LYME IS VERY UNLIKELY TO BE EASILY TREATED AND WILL PERSIST IF NOT AGGRESSIVELY TREATED Above quoted from:...
On abx: Dr. Eva Sapi quoted several studies in which researchers have demonstrated that the organisms survive despite antibiotic treatment, even in early cases (Smith et al., 2002: 5-10% treatment...
argh- not sure why I let myself get sucked into this... Here is a blog post I wrote about Lyme research and treatment:...
Add my DD in the "cured" club! She has been symptom free for about 8 months and has been off abx and herbals for about 4. She is almost 12 (congenital Lyme/Bart) and is little Miss Social Butterfly....
Razzle, that is exactly what is going on with me. Due to Insurance issues, I can only have blood drawn at this time and sent to Lab Corp. I had previously tested positive through labs at Stonybrook...
Yes, very true. So sad, on so many levels....
yes, ITA. She always had me chuckling with her posts. She will be missed by many. RIP- may you be in a place where their is no pain and struggle....
Yes, he was cutting, his arm, his stomach, his leg...... horrible to see, like I was punch in the stomach 100 times. He has been really good- almost 2 months now and no cutting. He has a friend who...
thank you all so so so much for your advice- I have an appt for Scott w/ Dr. B in August. I already feel like a huge weight is being lifted. Its not off yet, but I can feel a bit of relief. xoxo...
T- let me know if you are going, Gary, kids and I will be there as well as my MIL (did you meet her at the Lymapalloza?) Don't know of a Mo-town support group, but will keep my eyes open...
http://ht.ly/2cRuA The NJ Depression and Bipolar Support Alliance is having a lecture on July 28 with Dr B. Robert C. Bransfield, MD "Late Stage Lyme Disease as a Cause for Depression and Bipolar...
Karen, yes, I remember you. Hope that we can get another Lymeapalooza together again. Thanks for your input. Dr. B's name has come up from all angles about a million times in the last few days....
Quick update- I had my therapy session last night, which is part of the same group. I was hesitant to even discuss it with her, even though I know they have client confidentiality. She made me feel a...
Denise- actually the therapist is quite lyme friendly- she has always been receptive to what my input has been. The p-doc is part of the group she is in. Its a non-profit and my kids are on State...
So totally freaking out here. I hope someone can help, although if you can help, that means you have been through this too and that sucks :( Quick run down- DS Scott is 14, is being treated by a LLMD...
b/c my insurance bites! LOL Seriously- they don't like to pay for anything- we are on Medicaid and it is a pain..... I have heard that kids and Paxil is dangerous- - have you heard anything negative...
Thank you for your input. Seems like a moot point ATM- insurance won't cover Lexapro. Only Zoloft, Paxil (ack!) and Prozac. His dr thinks that of the 3, Prozac- 5mg- would be best. I wish I knew what...
My son is 13. He is having a horrible time with neuro symptoms. He has been experiencing rages/OCD/depression. We had to pull him out of school and he is receiving home instruction because he is...
That is exactly it! I got the lecture on abx from a dentist last month... ugh! better safe than sorry, I guess, with the meds. We'll see how I do with the Lyme...
Thanks for the advice... quick ? for y'all.... I have the paper work with my medical history to fill out- you think I should leave "Other illness" (where I would put in Lyme) blank? And what about my...
I finally getting referred to an endocrinologist. My thyroid levels have been coming up low for a while now. I also have been experiencing hypoglycemic episodes. I have osteopenia, diagnosed when I...
I have 504's for both of my kids. It has been a big help- if for no other reason, that when my son (is sicker than DD) has issues in Middle School-- I can always refer the teachers back to his 504. I...
My allergies have been miserable so far. But I have had them worse before Lyme. or before treatment, I guess. But yes, this year is bad....
LOLOL Jelaine!!! CG-- OMG it is *brutal* My periods have always been messed up- but the Lyme makes them 100000000000 x's worse. The moods, the pain, the Lyme symptoms, allof it. Just awful. Someone...
For me, I think it is b/c of my kids that I can be more positive and hopeful. They force me to be a good example. I have to fight this, for their sakes. Maybe if it were just me that was sick, I...
He takes Calmicin Plus- it is Valerian and Lemon Balm- when he realizes he needs it. When he is in a full rage, he screams at me that he won't take it. My dh did the same thing to me when I tried to...
dorit- thanks for saying it is ok to laugh- cuz that really had me cracking up! I often think I hear phones ringing too. I guess I always thought it was coming from the tv...
kingrew- great news! How did you find out about having your dr apply for the free trial (for lack of a better way to say it!) My dh isn't getting much better on traditional meds. he is going through...
Hands full?? Ahhh! I pretty much have dropped it all- it is laying scattered at my feet LOLOL! If you have any other ?'s don't hesitate to ask :)...
My son is going to be 13 in a couple of weeks. I know it isn't easy for a "regular" teen, but with the Lyme/Bart/babs.... it is really hard. he is typically a good-natured kid, but lately the anger...
wow, thyroid and Lyme sound so similar! yes, I seem to have most of those symptoms- other than than the missing outer eyebrows- Italian heritage- very think eyebrows LOL I only have moons on my...
Scorpio- I hear ya 100%!! My DD has Lyme and Bart- for Cowden she was is on 15 drops 2/day Burbur and 20 drops 2/day of Cumanda /Banderol. She rotates monthly on them, and has weekends off. She was...
My kids llmd is using stuff from both of them together. They are mostly on a modified Cowden and started with Zhang's HH capsules. he is also considering Venus flytrap for DS's Bart. His approach is...
LOL yes! I don't know if it is lyme or not, but at one point I swore I was channeling AM stations! And me- being a metal head (LOL)...
MattyLou- thank you so much for sharing your experience and what your dr said. Makes me feel much more sane :) I have to go to a new gyno soon, I should inquire about a Vit D test. I dont' think I...