I don't want to burden her with my 'problems' but at the same time I want someone that will be supportive and will understand my limitations. ________________________________ My approach is: If you...
You are very welcome, +Lyme! I will watch the rest this weekend and next week. I will be searching for Bartonella info. BTW, I do not agree with what some of the presenters talked about, but I will...
I don't have this problem bec no one asks! LOL I told everyone how bad this is and how bad it can get, so people do not expect me to be cured. I don't bring it up and they don't ask. I think is...
Thanks CG. I will have to read it soon....
CG: Yes, I have heard that my my LLMD dissagrees, so we started with Lyme, since I could not do the treatment for Bart bec of baby. I did bring it up, but he believes it does not matter which you...
I have had this happening before abx and it got worse, much worse, after abx. I could not pick up the baby, I was wrapping my hands in bandages and I was bending my left arm at the elbow bec it hurt...
Ok, I found it: http://www.tvworldwide.com/events/iom/101011/default.cfm?id=12856&type=flv&test=0&live=0 So happy that my brain is working somewhat! you can watch the webminar here. If I...
+Lyme: Here is the thread to the info about the conference. needshelp ( a member on this forum went to it.). Trav is the one that found the info. Let me see if I can find a link to the actual...
I think Bucci means "Ehrlichiosis", +Lyme. I never remember how to spell it, I just looked it up now....
Bucci: I used to put 2 pillows under my head because otherwise, I felt I would choke (I just remember this). Funny thing: If it is a panic attack, that is really strange bec I almost never panic and...
CG: I thought all of these are caused by lyme. If not, I definatelly have Barto. I have all of the things you just mentioned. I also get cramps in my hands and feet, and sometimes in my legs as well....
Lindaca: Some people say some of the generics are no good. I wish I could find the right one, but it is so hard. I think the $12/vial is not made in US. Someone said that Indians have the least...
Honestly, I don't know if the cycles make me feel worse. I have had 2 cycles a month for a few months. It is just recently that they returned to normal, after my thyroid meds have been adjusted and...
I do not have erchi, so I can't comment on that, but my LLMD thinks I have Bartonella and he will probably start me on treatement for it next mo. He did not seem to think Barto is harder to get rid...
Trav: Multitasking used to be a piece of cake for me, but now, even on my best days, I am having huge problems with cooking. Eg. I start the meat in the broiler (simple enough) and forget to start...
Thanks, CG! Yes, almost everyone seems in agreement ab. this. The LLMD wanted to address Lyme first bec I was BF last time I saw him--I still am, but baby will be 12 mo next month and I will stop bec...
Yes, my jaw is deformed, too! I asked the denitist about why my toungue took the shape of the inside of my teeth and he said he's got that too! No help there! But about a month ago my upper teeth...
Really Synthkeys? So if I don't have any stomach problems it means I don't (or I may not) have Bartonella? My LLMD thinks I have it based on this alone. I am trying to get some info from everyone...
Rose: I think you should see the new GP and see what happens. What have you got to lose? I am glad I switched GPs, and even though the present one is not an A+ doctor (in my book) she is much better...
CG: Yes, I know you are dealing with your own issues, I was just kidding around about you dissapearing, but yes, I was waiting for your answer on Bartonella. IF I am 100% sure I don't have RA and my...
Lindaca: I have heard similar quotes that you gave me, I don't know what's up with my local hospital. I will wait to talk to my dr and look into other treatement options. The ins could actually not...
I used to get them esp when going up the steps eg at the end of the night, I'd have to climb up the steps to the 2nd fl to my bedroom. It was really annoying, I was out of breath and my husband could...
RR, A lot of docs advertise, but that does not mean they know LD the way we do, bec we leave with it. There is a hospital here in PA doing the same thing, but then they say lyme is cured with ABX 4-6...
I didn't assume that, but I just wanted to clarify. Yes, he did the laser surgery and can work (on the computer) and drive and swim without glasses. He could not do this before. He has been losing...
Bucci: I had this problem last year, but it went away without treatement. Sweating went away also, as I started treatement. I think we can all agree mold is not good for anyone. My neighbor cleans...
+Lyme: I don't know much ab. Babs, but there was a link here to a conference about Lyme and coinf and that included a lot of info about babs. and treatement for it. If you are interested, I will look...
Nasalady: I found an old post while doing some reading on rocephin and found an old post of yours from here through a Google search. I hope that whatever decission you make will bring you some peace...
Thanks Trav! Yes, I think is Bartonella, too. My LLMD and a lady that I have been in touch with from lymenet that volunteers there, said the same thing. You, and Nasalady, also. So I will start Bart...
Trav: I have a notebook, now. My husband and I are both Statisticians, we went to the same school. He used to ask me ?s once in a while and although he has a lot more experience, I was able to help a...
MoralAnimal already mentioned massage--my LLMD is a ILADS member, but he does not think salt detox baths do much--he did say massages will help with detox, though Thanks for that list, MA!...
Looking forward to your posts and I am glad you are seing success, I know you've both been dealing with this for quite sometime!...
Trav: I am not saying my husband is bad--I am saying he seems to leave on a different planet than me right now, bec he does not see what is going on. THe reason he can't see, is bec he is not...
RR: If your immunologist works with you and follows either Dr B's protocol or someone elses that has a proven record of success in treatement, you won't need to see anyone else. I believe we all...
Yes, he has Lyme. Appeareantly, he has episodes of the symptoms sometimes on stage and his audience does not mind, they still go and see him. I don't remember what program he was on, maybe Fox news?...
I haven't seen them for a while, either. I thought maybe they feel better and are enjoing life. I think if they would leave, they would say so. They were very nice, and caring, and that is just my...
Me too, Trav, it happens all the time! I used to rely on my brain for EVERYTHING and I NEVER FORGOT anything--husband hated that LOL I used to bring up something that he did behind my back years...
Why are you asking if they left, CS? Did they close their accounts? Has anyone tried to email them?...
"did you get the Under Our Skin DVD for him to watch?" Yes, he did watch it. After he saw it, the only comment he had was: "Oh, now I feel I have LD" Don't get me wrong, he knows better not to upset...
" I know there are a couple of posts out there that had a question or two aimed at me & now I can't find them!!! " I run into this all the time, Trav; not only ?s for me, but ?s I asked someone else,...
Yes, Trav. But I could stop now, baby will be 1 yr old on 22nd of Nov. I am glad that I stretched it this far. You are lucky that you have some support from your husband, even if he took him a while...
THanks for your replies. It seems it is soooooooooooo hard for me to make a decission on my own these days. I kept asking my husband what to do about something else, not lyme related, and he said to...
Thanks! I think it is up to ALL OF US to take action, or each and every one of us will lose their doc... This seems a witch hunt and they are not stopping......
Sort of hard to come up with 3, it took me a while, so my worst symptoms: Sore feet Back Pain/radicular pain Fatigue Everything else comes and goes. I am a lot better than 2 mo ago, when I started...
Thanks, Caldonia. This is a little more than I can take, actually, a lot more! I don't work, I stay home with my kids, so this kind of $$ is a huge issue. Yes, most of my problems are neuro, except...
On top of the $4000, there will be $8600 for the cost of the PICC line to be put in--just found this out today from the hospital. I have to make a decission by the 28th. My insurance MAY pay up to...
Yes, it is been 30 yrs, it is a shame that media is not TRUTHFULLY reporting the facts--OR MAYBE would have a mass scare. I think that would be good, if I would have known what I know now, I would...
Nasalady: My back pain was actually not too bad for a few months after the accident and never had problems prior to the accident. I suspect it is bec I was doing lots of laying down during pregnancy,...
So sorry that you are going through this! I haven't done rife machines, but did a lot of research on them. The most info I found in the tread:...
nasalady What is causing your severe lower back pain? Is it lyme or some other issue? I have been having this problem ever since my car accident last year. When I went to trauma, they said the pain...
I'd have to come back to this thread and take notes--I can't remember all this!...