My reaction was the same as Traveler's. The situation is definitely not funny, but I think most of us have been through the same thing. I'm not sure I had any friends to begin with (it's my...
I think we should be able to buy t-shirts that say "Don't mess with me, I have Lyme".... or maybe "Lyme rage is very real....Wanna find out"???? Should we start a thread of nothing but t-shirt...
Thanks Jess1ca318....It's an interesting time in my life. I am....well.....er.....'older'....almost an understatement(!!!)....and this was our 5th anniversary. I'm sure if my husband knew what he had...
I'm not nearly as insightful as most of the folks here on the forum, but I do appreciate and maintain my sanity from the postings. I hate lyme. I hate the boundaries it places on my life. But any...
Houston0274 - Where in PA do you live? I am in SW corner....
I can relate to the posts and I can complain, whine, moan, b****, rage, etc. etc. with the best of 'em.....BUT underneath it all I'm terribly grateful to have finally, finally, finally found the...
It's my understanding SS does not recognize "lyme" as a reason for disability unless they've changed their minds recently. I've been told you have to go with chronic fatigue. I made the mistake some...
I was on Cipro and Amoxicillin for a year mainly for bartonella, with no problems. Side effects were sore hands and stiff feet, however, I did not have a tendon problem. Actually, I tolerated the...
Thanks, daisyrlb, I hope to get back on here someday when things calm down. There just isn't enough of me to go around. Had a bad encounter with Minocin and I'm still wondering why....Couldn't take...
Fireflies definitely back here in SW Pennsylvania. Strawberries are ripe and plentiful in the patch. Garden not where it should be because of the April and May rains. Haven't been on here in awhile...
I have found through the years that my NMH was worse when I felt the worst. When I was having a good day, I could stand for longer periods of time even though I still wasn't "normal". Evenings are...
I read this thread last night and today bought my husband both the gel and the oral spray. He has a lot of pain in his hands and also problems with lower back. We're going to give it a try and I'll...
I believe it's called politics. I also believe it was wrongly named. If it had been called exactly what it is (its bacterial name), it would be taken more seriously. I always thought Lyme was no...
I couldn't take the Doxy. If you're feeling that bad when taking it, maybe you should consider another one. I'm on Bactrim and Cipro, which seems to be a good combination for me. I'm sick enough...
I am in SW Pennsylvania and our local Walgreens weekly sale sheet has Epsom Salts on sale, a 6-lb bag is Buy One Get One Free. So I got 12 lbs of Epsom Salts for $5.00. Wanted to share this...
I bought one of the Hulda Clark recommended zappers from a website and my husband built it. Runs on a 9 volt battery. Is this what you mean? I have a 90 year old neighbor/friend that absolutely...
Since I'm not on the forum as much as I used to be or would like to be, I must've missed something since this posting surprised me. I can't imagine being critical or picking a fight on here although...
I think the "pain to clean" is the problem with all the regular juicers, and one of the reasons people quit using them. Then when I started really thinking about it, I didn't like the idea of...
My cousin had a Vita Mix about 50 years ago when eating healthy wasn't even discussed. She loved it. I have the Montel Williams Healthmaster (the larger wattage) and absolutely adore it. I have 4...
Hi Tom, Welcome to the forum. You'll learn something every time you come to visit! I am on the Byron White formula A-Bart. Yes, you should start slow and easy. I decided that since it was winter, and...
Jeannie....Doxy is one of the free abx at my local Giant Eagle Grocery Store. I think you are in PA...do you have Giant Eagle's where you are? Wal-Mart and Kroger also offer cheap generics..... Or...
And a welcome from me as well. You asked if any of us with chronic lyme and co-infections think we will ever be free of this disease.... (As an aside, I have been sick for 40 years, so obviously...
Here's what I THINK I know..... I am on Amoxicillin and Cipro. The Amoxicillin does not necessarily kill the lyme but makes the environment unfavorable for it to multiply. The Cipro is good for...
Ok, Roses, here's a question. How did they know the dog had lyme? Was its blood sent to Igenex???? Did it have to be under CDC guidelines? Yes, I know, that's not the point you were making, but why...
AnneRoto, What part of PA????...
Bucci, How is the Amy's Thai coconut soup packaged? In freezer section??? Traveler, I hope you're feeling better. Whatever is going around (apparently the entire country...) is nasty stuff to a...
Is there anything else that can go wrong????!!! Just wanted you to know that I stopped by and will be thinking healing thoughts for you.......
I've heard he's good but never went to him....
I use Nature's Way Magnesium Complex. It's a combination of citrate and oxide and says 500 mg. Trav, I don't know about pulling water into the intestine as it's main function or the fact that...
Here's my two cents. I have never been an advocate of calcium supplementation. Now the focus seems to be off of calcium and on Vitamin D. It's my understanding that when women started swallowing any...
Maybe we'll find a whole new antibiotic-free way to help with lyme & co!!!!!!!!!!!!!!!!!!! One article I read mentioned it killed parasites.... I'm figuring it won't hurt to try a little each day. It...
I agree with Razzle. I have tried treating my thyroid this way 3 different times and ended up worse because of the adrenal involvement. Then adrenal treatment didn't work either so that's when the...
Trav, Thanks for the corrective jerk or maybe I should say adjusting my perspective!!! You're absolutely right. I will let them know I'm available for discussions, but not gonna cram it down any...
That's worrisome and is making sense. Any autoimmune disease is still a disease in itself, however, there is a possibility that lyme and co "triggered" or "allowed" it to occur. They still have the...
So instead of treating sarcoidosis as a disease in itself, the treatment should be geared toward any underlying infection???? Given what I know now, the Igenex test should come before any treatment....
If it's Dr. J. you're going to see, I envy you. Ever since seeing him in the DVD I have wanted him as MY doctor. You might also ask the doctor how he feels about the Byron White formulas. Right now...
Weatherperson seems to be calling for yet more snow. Are you members on the east coast going to get hammered with this next round too? I think they're saying Saturday????...
Has anyone on the forum been diagnosed with Sarcoidosis then later with Lyme? Or Vice Versa? A person I know is being tested for possible sarcoidosis and was told if positive, the treatment would be...
If the new lady deems you nuts and dismisses you, then find an LLMD. Frankly, I'd find one anyway. I was deemed nuts and dismissed for 40 years by over 100+ well-meaning doctors. By now I truly am...
My sister-in-law is a diabetic and she just told me this evening that she tried to purchase alcohol pads today and the folks at the store told her they had been re-called because of contamination....
Thank you, Gary & MoralAnimal. I don't go on any other forums, so this one is my Bible. Since I'm on abx as well as the A-Bart, I figured it would just boost any abx activity. I like the idea of just...
I'm not going to shoot the messenger but I sure don't like the message.....3,000 of the bacterium can fit into one white blood cell. I'm still trying to grasp the enormity and gravity of that...
ksole - What part of PA are you in? I am very SW corner....
littlehutton, I don't know about Lyme, but I do know that hypothyroidism can cause this. Also, stress can make your hair fall out....
therearemiracles, When you get your EOB, please post the original cost. I'm curious how it compares. Thanks....
Can lyme be sexually transmitted?...
What is the difference in cost between IM and IV for Rocephin? I think one of the recent posts mentioned $4,000 for the IV????...
I may have asked this before.... My LLMD-in-training has started me on the Byron White Formula A-Bart along with the abx. He said it was 'powerful stuff' and I'm starting at 1 drop in 12 ozs of...
Moral, Don't know where you are, but my local grocery store offers certain free abx. On that list is Amox and Doxy. I'm pretty sure Kroger and Wal-Mart have some kind of program??? Between Trav's...
Most doctors operate on the information they are GIVEN by the pharmaceutical companies over dinners. That means they are eating and half listening, but generally not being given the whole story...