Most of the people I know who have Morgellons also have Lyme. I've heard of washing clothes in Borax, but not putting it on your skin. People get desperate, and that I understand - you have to be...
Hi - I haven't been on the board for awhile. I know people who took the ivervectrin for horses. A lot of people really swore by it (especially people who couldn't afford to be treated by an LLMD),...
"The condition appears more common in nurses, teachers, and in family members in the same household, which suggests a contagious component. " Thanks for the information. That article was published...
I think it's the Lyme causing the depression (although I'm not a doctor). You can call me anytime day or night if you need to talk:) Email me and I'll send you my number. Victoria...
I didn't have fibers in the beginning and really seldom see any now. Mostly I itch from head to toe and now have lesions (which I also didn't have in the beginning). I'm not a doctor, but I found...
Simela - Are you okay? V....
The thing is, this was an "experimental" writing project that they wanted to see if the exec. assistants could do instead of the directors. I just happened to be the one they picked to go first. I'm...
Phenergan is the only thing that has helped me. I keep a bottle in my desk at work and one at home. I take 1/2 tablet so I don't get too tired. Victoria...
Thanks, Simela. This was something new for us that was being used as an experiment. We told them that it wouldn't work and it didn't. I couldn't read the notes to begin with and the more frustrated I...
What are you supposed to say to the owner of your company when you're working on a project and she keeps asking why you can't see the chronological order of something? What do you say when you end up...
I see Dr. S and I think it's definitely worth the $. Victoria...
thank you for the link to MDJuncton Caledonia - I'll check it out this morning. Victoria...
I got really sick on doxy and had to switch to different antibiotics. Herxing was probably the cause. Victoria...
I definitely think it's Lyme related. The CDC gave the research contract to Kaiser - who have been telling people for years that they're delusional. They're going to have a lot of law suits on their...
Right now nothing helps me. The only thing that's keeping me together is I keep remembering the string about severe depression is most likely caused by the disease. Victoria...
Congratulations!!! Victoria...
I sent you an email with my contact info. I didn't have fibers or lesions at first - mine started by my itching from my head to my toes - for months. It was hell. I was also dealing (and not being...
I've never had this procedure, but I wanted to wish you well. Victoria...
Imagine what my life would be if I would have started a more aggressive treatement an year earlier (last year), instead of 3 weeks of abx which seemed to do nothing! RIght now I am in pain and upset...
Thanks for the info re the Cymbalta. I think I'll ask my doctor next visit. I try to save my venting about being sick for my therapist. He's always there for me and provides some good tools for...
Take a long, deep breath Simela. It's entirely possible all the things you're stressing about may not even happen. At least your husband is employed. Think of the positives not the what ifs. Am I...
I'd be interested in knowing about this support group as well. Victoria...
I take Phenergan. It' the only thing that really works for me when I'm really sick to my stomach. Victoria...
I've been getting really dizzy since taking Cefdinir and Ketek. I think I've been herxing for the last two months. I finally couldn't stand it and am giving myself a week off of the antibotics. I...
Thanks guys. My new apartment has a shower that is really big. I'm going to get an inflatible swimming pool and stick it in there. My last place had a great old bathtub (the kind with the club legs -...
This is probably covered in the "new to lyme" section, but truthfully I have a hard time reading and comprehending lots of information. How do you do a detox if you only have a shower? Victoria...
Bucci - Where in San Francisco do you buy colostrum fresh in bottle to drink ? I work in San Francisco. I've been a vegetarian for many years, but if this would help, I think I would try it. Victoria...
I burst out crying at work yesterday - while I had our wonderful IT guy on the phone. Our system crashed while I was working on an important project that had to go out this morning. By the time I...
I don't think they want my blood. Victoria...
I'm glad you posted that, Gary. I couldn't stop thinking about it and I kept telling myself "just leave it alone" - "leave it be." Inesia, you don't know what their situation was - we read a...
Sending you big hugs and lots of love. Victoria...
Motox127 - Look - I'm sick, I have brain fog and I'm not very patient. I can get through about half a paragraph of your posts (sometimes). Is there anyway that you can just briefly and concisely...
I don't think the shaking was because I was cold. I think it was more of a neurological type of thing if that makes any sense. The hot/cold flashes have been driving me nuts too - it seems those are...
I took a couple of days off of work for vacation last week - I thought I'd sleep in and just take it easy. I awoke Thursday night freezing. My hands were shaking so bad I couldn't hold a glass of...
I really don't have any advice to give - I'm a little "foggy" right now - but wanted to tell you I'm sending you good thoughts and hope you find a diagnosis so you will be able to receive treatment...
lets hear the facts....have you done any more research. Umm, I don't think I'm ready at this time for that post:) Victoria ...
Morgellons is going to be discussed on the Rachel Ray show tomorrow (7/23) if anyone is interested. Victoria...
I'm sorry but it was starting to look like a post that would never end - it just kept saying the same things over and over and over. I read it just to see if I could learn anything and it just kept...
Cajun Girl, Please don't quit. I agree with you in having people follow the rules. If they don't want to comply, they can go to another board. You do a great job. I know you've been very sick and it...
I've used it for babesiosis along with Mepron. Victoria...
I feel the same way:) Victoria...
Nutra silver did nothing for me - I'm not saying it doesn't work for some, it just didn't work for me. I've been getting treatment for Chronic Lyme and Morgellons for four years now. One thing I can...
I can't believe I'm saying this, but maybe you should let your doctor know. I'm not sure they can do anything, but since your miscarriage, have it checked out to be safe. I probably wouldn't go to...
I really, really hope so:) Victoria...
I expected it, but it's still depressing. Victoria...
I have no answers. Victoria...
If your bored look up morgellons my brother has it he breaks mi heart. I wouldn't look up Morgellons it will just freak you out. I have Morgellons and Chronic Lyme - mostly I never mention the...
I definitely agree with the I hate pain part. Victoria...
I just read it. /community/emoticons/nono.gif Talk about depressing. I'm so angry right now. They should be ashamed at themselves. I don't see how they sleep at night. Victoria...
I'm sorry if I misread your post, Peacesoul - I completely agree with your statement: Phama makes TRILLIONS off the vulnerable, drying and sick. For me it's not so much the doctor's visit that does...