Hi, I have had many of the symptoms you mention: tingling/prickly feelings in the extremities, numbness sometimes halfway up my calves, blurred vision; sometimes my arm shoots straight up in the air...
Hi,I know Lyme causes alcohol intolerance (drunk easy, hangovers from hell), but has anyone else felt Lyume actually caused/worsened alcoholism? I always overdid it in youthm but then in 2000, when I...
Hi,I, too, wish to echo others who have tested pisitive for Lyme and yet don't have "classic" symptoms. I actually am highly symptomatic, *but* the neurocognitive has been the worst, and had joint...
I do hope this helps people. I know positive outcomes helped me. I know we all have different programs we follow to get well, but that's ok--there can be many routes which result in the same result!...
I just posted this on another thread, thought it may be helpful to post it individually...I know I would have drawn strength from it when I was extremely ill... I FINALLY can feel I can give hope and...
I'm assuming you are taking the herbs slowly? I remember the depression I felt when only one drop of Samento would have me herx, and how I'd have to move down the scale every now and then with...
Hi JeannieM, I am sorry you are having a rough time. I am here tonight, having *again* forgotten for too many days (weeks actually) how important it is to me to get on here, to feel 'normal' and...
Thank you so much for all the info!! Will have to try some things. My guess it's the Cumanda....I don't seem to get nauseous after the Banderol....perhaps it's getting the bartonella?...
Hi- Perhaps being overly ambitious, I took 3 drops Banderol x2 and 3 drops Cumanda x2 today, primarily to start treating bartonella. (though I did not have a positive test for bartonella, some...
The cognitive sxs are the worst. I finally gave up and announced I could no longer work when I realized I had aphasia symptoms (language input/output problems): for my reports I knew conceptually...
Tala-3 (and others): How often would you do the detox baths and foot baths to get notable benefit? I too have decreased doing these, I think I didn't give them a long enough time to prove their...
Hi- The bone/long muscle pain was one of my first symptoms...the lack of joint pain fooled me for 1 1/2 yrs that it wasn't Lyme, and diagnosed myself with fibromyalgia. That's the nature of...
"MoralAnimal"I'm on A-bab as well. It's a byron white formula for babesia. My naturopath has me on a dozen things (it seems) to flush out my system every day which reduces the herxing a lot. I'm very...
I am sooo sorry to hear all you ar4e going through. this disease is devastating as it is.... and then trouble getting help--trouble getting someone to BELIEVE something is wrong-- is heart-wrenching,...
Maybe after seeing him/her, give us a detailed description of the meeting and we can all think about how knowledgeable/logical this person is........
+Lyme, I take 4 caps of Allergy Research Artesiminin daily, at the advice of my Lyme-wise MD. It seems to be working well. I asked her if I should "upgrade" to the drugs used to combat babesia, and...
Yes, we each are different in our reaction to meds...I, too,happened to like klonopin better than Xanax....
Oh I forgot to say-- don't let yourself suffer like this! It is your right to get treated for the anxiety, it is a horrid horrid condition. You don't need this stressor on top of the Lyme, it is hard...
I am not sure why your doc is hesitant...in the last few years it seems doctors have become less ....anxious about prescribing an antianxiety med. Perhaps cite how anxiety is a well-known symptom of...
I have a 4 1/2 year old son and 3 year old daughter. I was probably sick with Lyme already during pregnancy with my son (horrid pregnancy w/ premature birth), but I became full-fledged symptomatic...
I grew up in Boston, Plum Island was where I loved to go regularly with my childhood friend, and then friends during high school, to be by the sea. Don't remember ticks there..... (but these huge...
Yes, I feel guilt about my kids not being able to spend more time with a *fun* mom. I have such irritability which is a symptom of lyme, I probably am a very unsmiling person right now. But actually...
Yes, I surely will not give up the enemas overall...I reallly think perhaps I pushed matter upwards, and it happened to be toxic. Or who knows...maybe it was something else entirely and it was a...
Thanks steelbone, I have taken some capsules which contain bentonite and charcoal, but I am not very careful about taking them separate from other supplements. Makes more sense to keep them separate....
Hey now, I thought *I* was the queen of avoidance, LOL! It is a bad habit, it is so scary to face silly little responsibilities but getting something done helps so much. I keep telling myself I'm not...
Hi Denise! Then it really is a bit odd...I did the enema Friday; right after it I felt as if someone gave me a sleeping pill. Then the next day I was feeling brain pressure, tingling and numbing in...
Hi- Has anyone here used a coffee colon cleanse formula and had a strong herx reaction? I did one session at home some weeks ago with no problem, then did one again Saturday--and am still in a strong...
You know I have been wondering about a connection between Lyme and drinking....the toxins lead to inhibition/symptoms of hangover and anxiety, all of which for me have possibly triggered reaching for...
Simela-RE: babesia My basic blood labs were normal, *however* I think you are supposed to be able to see under a microscope that the red blood cells are not normal when you have babesia. But I...
---....the point is that there sometimes is an external (i.e., external to one's true self) influence that causes us to lose perspective and become overwhelmed by feelings of guilt, etc., about our...
I had to laugh a little when you said you are couch-ridden, not bed-ridden, because of the kids--how true!! I am also a couch-bound mom of a 3 and 4-year old. Some thoughts: - My Western blot was...
Hi- I have numbness off and on a lot, though I can't say I've seen a cyclical nature to it. Babesia supposedly can cause cyclical symptoms...I have cyclical fevers, worst in the afternoon--presumed...
It is sometimes amazing, the interaction of emotions and the physical state of your body! It truly is strange--just today I surmised I contracted Lyme in 2001, and have been wondering how much of my...
It took three testing sessions with Western blot until I got a positive result for Lyme--unfortunately even with the Western blot you get a lot of false negatives. If the symptom profile of Lyme fits...
I agree with achievinggrace, I think it is waves of toxins as we peel the layers of toxins away, and waxes and wanes with the bacteria regaining hold...it feels so unpredictable, it is confusing. I...
Jeminij-- Thank you-- You said it all so well, your description of your experience with Lyme is pretty much where I am physically and emotionally at this time. I have two preschoolers and my...
Hi- I do know how you feel, I think I am experiencing something very similar. I think I've lived with it long enough to be fairly sure I'm not going to lose it, but the brain fog and disconnect with...
I actually just sent a little letter to Sanjay Gupta of CNN asking whether they've done a story of the Lyme epidemic....specifically I said they just had posted a story that the swine flu epidemic is...
Hi- Usually I love to make spreadsheets etc to chart moods, protocols etc..but with my slow brain it feels like a challenge...so, has anyone by chance made themselves a calendar/spreadsheet of his...
THE best vitamins for quality-cost i have found are sold by vitacost.com. They sell all brands, but their own brand is "NSI". They have all the individual supplements you could think of, plus...
Seekingbalance, Did you definitely decide to follow the Cowden protocol? I do hope that you bought Dr. J's book just for the information. I believe you asked about his protocols and when I followed...
I was looking at Craigslist, saw a couple for $750...still not quite what i can do now, but aybe in the future..... Z....
Hi all, Wondering how you'd rate the degree of help/importance of infrared saunas. Do you see it as helping quite a bit? I used to love regular saunas, now too heat sensitive to go near one. It seems...
Hi all, Thanks so very much for all the feedback, the detail....and i already learned my lesson RE DETOX DETOX!!! I started a modified Dr. Cowden program, butdid little detox in terms of detox...I...
Hi- I am only starting on my journey, so I can't speak from experience...I only remember reading that fatigue and neurological problems are the last to leave. I'll hazard a guess it may also be...
Thank you thank you for all your responses! It helps guide me a bit...and I do overly seek approval, .....yes, money is an issue, but obviously this is my priority. I will read up...if I sound...
Hi again Denise...several people referenced your journey and methods as a good starting point....is there a post out lining what you did? I may have even seen it, my memory of course fails me.... Z....
Hi, I have battled depression since age 18. Lyme has not helped--I was stable (depressionwise) on medications, until recently. I believe it is a 2-way street (or 3-way street?). Lyme can cause...
Thank you D.--I will read up. As I said in a different post, my doc is excellent but deemphasized detox...the Cowden was the natural choice since she uses his herbs in basis. I see you take hormone...
Would some of you veterans of Lyme be able to post *in brief* what you have seen in terms of pluses/minuses of Cowden's vs Jernigan's philosophies and approaches? And I truly ask about personal...