Oh yes get that one! I dread going bed as falling asleep is not pleasant!. When I get horizontal I get shivers, and start feeling yuk, As I am falling asleep my heart pounds and my breathing is...
Hi Susie Yours symptoms are very similar to mine. I think the insomnia is part of it. It seems a lot of people have sleeping probs. Thank you for your reassurance I keep saying to myself dont flap!...
Hi Suzie Really you have it too. How does it effect you ?, its been freaking me out. I get a sort or gasp every now and then and other times I feel like I am not breathing properly like its hard work...
Hi I had aful head pressure at back of head and sinus pressure. Also had alot of ear pain and behind eye and random shooting pains. I have had some relief of this since starting abx. Have been on...
Hi Mik Not been on for few days been having stress out. Bs wrote to say they wanted test as they think I have dysautomonia. of course i looked it up on the internet and got in a right panic! it can...
Hi Mik Great thanks for that will have a look. Went to BS today to pick up abx and forgot to ask. think i switch from forgetting eveything to denial!! I remember dr m saying sometimes an infection...
Hi I have high anxiety so would be with you on that one raw runner. There have been many days and nights thinking how can I possibly feels so ill. I have just wanted to call A &E (ER) and say take me...
Hi Qwerty Thanks for your suggestions, dont think I could fast for 2 weeks!! I think food is one of my enjoyments cant give that up. I will start keeping a diary or record like you say will perhaps...
Hi Mik, Am sorry you had to go through so much pain, anxiety is horrible. But what a relief to know we are not alone. I have been on doxy for about 6 weeks I think I do have some improvment in head ....
Hi All Am being treated for lyme and CFS (possibly the same thing?) at breakspear. A major symptom is fatigue. They have advised me to have the QIFT test : Auotnomic monitering and quantitative...
Hi another one here with guilt!! am a lone parent, my son (12yrs old) and I use to do so much. Cycling, camping etc. now I cant even get to his school for parent evening and at my worse he had to...
Hi Mozartleo I was diagnosed with cfs for 2 and half years and had a negative lyme test. I then had the western blot test which had a positive. It will be interesting to see your results. With cfs...
Hi querty321. I am sorry you are going through so much. This forum is s great source of suppot and information. I am usually on the Lyme forum but saw your message as Lyme and cfs are so similar in...
hi mik thank you so much for sharing this, you are a great help and to know you are moving forward is so good to hear although its not plain sailing . I am still amazed how a bite can cause so much...
Hi Suzie the supplements are : reduced glututhaione, gluthamane, absorbic acic, chlorella, oregano, bromelain, interfase plus, boluoke, nsk sd, lactoferrin, therbiotic, mutaflor, edta...
Hi Rose Thanks for your welcome it is very appreciated, what a great site. I am not sure if I was tested for co-infections I will check this out on my next visit. I had very slight improvment on doxy...
Hi susie It sounds like you have had a difficult few years. It will be good to have support when you are back in the UK and at last you have your diagnosis. The breakspear website has a price list...
Hi Ruth First I saw dr yeoh after 3ys diagnosed with M.E she ordered westen blot test and other tests. Then she went on hols so saw dr munro for the first time when results back. She was very nice...
Hi littlehampton I have been going to breakspear for 3 months with dr munro for treatment of lyme. Would love to hear how you get on. Am new to all of this, will look at the euro lyme too....
Hi again will add link for the nhs one in southampton, http://www.hpa.org.uk/ProductsServices/InfectiousDiseases/LaboratoriesAndReferenceFacilities/LymeBorreliosisUnit/ if that doesnt work type in...
Hi I am new to this so welcome any advice! I am in uk. diagnosed with M.E for 3yrs. about 3 months ago i went to a private hospital (breakspear) for help and had a western blot test that had some...
hi, i am new to this too, i am in uk I went to breakspear hospital in hemel for help with M.E. Had tests (western blot) which showed some postive and have now started treatment for chronic lyme. Am...