Hi inchi, I know all the NY doctors. Email me....
FANTASTIC !!!!!! /community/emoticons/yeah.gif A good feeling, isn't it? !! Hope you stay well forever and ever !!!...
Hi all !!! /community/emoticons/smile.gif Quick update: I am now off ABX again after a mini relapse which required another month of Flagyl + Biaxin. Feeling good again. Hope it lasts! Now for my...
Sleep can do wonders! But a bit of exercise-- when you feel up to it-- can also do wonders. When I was extremely ill, the combo of sleep/exercise really helped....
Sharp, stabbing, mystery pains happened to me all the time-- in various places. The worst was in my shoulder (deltoid) muscle. It hurt for a week and sent me in for an MRI. This happened back in...
I'm a-hangin' LOL ((hugs))...
Hi Deejavu, Yep....I detox bath regularly and eat health to a fault. But toxins are certainly to blame for some of the symptoms. I take Dr. J detox too.....hope it's helping....
Hi springsjean, So sorry to hear you're going through this too....and I also I worry about what to do next. I'm trying to keep my spirits up but..... /community/emoticons/eyes.gif My only hope is...
I actually DID feel a lot better.....the nagging muscle pain in my shoulders and upper back-- that I had forever it seemed, once I started treating Lyme with abx-- went completely away after a few...
No offense taken at all !!! ::))) WHEN to stop abx is a real dilemma. I guess it can depend on what your body is telling you......and mine wanted to stop. Even my brain was saying STOP because I...
Hi yazzer, I was on abx for a year. At the end of this time I had improved almost 100%. I could have stayed on abx longer....but to tell you the truth I was just sick and tired of taking them and...
After a trial month + of no ABX-- and doing really well -- symptoms started to creep back. UGG! I couldn't regulate my temperature-- was having hot flashes then chills. My right knee had migrating...
On the 12th day of Christmas a Lyme bite sent to me... Twelve cans of DEET. /community/emoticons/skull.gif Eleven pipers piping (in my ears). /community/emoticons/smurf.gif Ten (thousand) cysts...
BEST OF LUCK !!! /community/emoticons/yeah.gif The little yellow guy to the left has his fingers crossed too!...
Wonderful news !!!!! /community/emoticons/yeah.gif Congratulations BorderLyme !!!...
Good idea! /community/emoticons/smilewinkgrin.gif I buy Xylitol in granular form to put in my coffee. Should work for baking too. Yum!...
Thank you for the support, guys!!!! Funny....when I was leaving my LLMD's office, the girls who work the front desk all chimed in to say to me: Remember, DON'T EAT ANY SUGAR !!!!! NEVER EVER !!!...
Saw my LLMD yesterday and told him that during my 4 weeks of being off all ABX (so far) I've felt pretty good.....but was ready to do another blast of meds if he thought that was in order....
When I started Flagyl it gave me a terrible, nagging headache that lasted for three days. After that passed it was smooth sailing....
Don't you just love it when you begin to feel better !!!! Hooray!!!!...
Fabulous news !!! Go get 'em!...
SOOOOO sorry to hear about your possible relapse! /community/emoticons/confused.gif This disease is just baffling. But I do think it's good to go back on ABX and try to whack the newly emerged spiros...
Hello Everyone, Welcome newbies (you've found a wonderful forum /community/emoticons/yeah.gif )....and best wishes to all my old friends here! Sorry I've been MIA....but for the past three weeks+ I...
After a year on antibiotics for Lyme + Co. my body was just screaming for me to stop all meds. Nothing bad happened-- I just felt it was time to take a break. I had reached a plateau recently where...
If I am reading the info correctly on the new Lyme test offered in PA, they use DNA sequencing in tandem with other methods. This is interesting because the 5000 yr. old Ice Man was found to have...
Hi MysteryLyme, I am very interested in your post because I believe I might have similar problems. What sort of autoimmune issues are you having? Could you please elaborate....
I'm sure I had some form of encephalitis from Lyme. Horrible head pressure and migraines along with vertigo and cognitive issues. After being prescribed mega doses of Amox, the acute symptoms went...
Hi borderlyme, The ABX hiatus protocol that Burrascano did is mentioned only in the book: Cure Unknown. It's not in his 'guidelines' for some reason. The book's author (Pamela Weintraub) also went...
I agree with Traveler, Carrie. Stay on meds as long as you can. I have simply reached the point where my remaining symptom-- the nagging shoulder pain--- just never went away no matter how long I...
I had been doing a round of Flagyl and Biaxin (only) this past month. The experience with these two meds included extreme tiredness which was not one of my usual symptoms. Within a half hour of...
I'm taking Biaxin too. It really gives me a bad taste in the mouth a couple of hours after taking it-- delayed reaction. Yuckky....
I know what you mean, Carrie48! Lyme is such a struggle-- as we all know-- just so frustrating when your symptoms all go away and then wham! a new one crops up to knock you back down. Thanx for not...
Since my remaining symptoms are muscular-- pain in muscles, particularly my shoulder at the moment....I do take Aleve, etc to help take the edge off. Sometimes the NSAIDS work and sometimes they do...
Hi Twills, Yes....I've had burning mouth/tongue syndrome. I directly relate it to Lyme Disease (in my case) and it plagued me for almost three months until it finally went away. I still get a twinge...
This past week I have been dealing with some serious shoulder pain. Of course it would come and go and migrate to different parts of the shoulder all through the day. Classic Lyme But yesterday while...
Adding Ceftin didn't make me herx either-- maybe a day or two of feeling a bit off. You are on the road to getting better! Hooray! Do anticipate some down days, though....they are normal. Don't get...
I just started Flagyl + Biaxin for the same reason. Almost immediatey (two pills of Flagyl) I got a horrible headache, felt weak and shaky-- for days. This could be a side effect of the meds rather...
This kind of pain is the scourge of Lyme. I had it badly-- early on in treatment. Couldn't even hold my head up! It will pass....
Hi Miss C. If you get a copy of the book 'Cure Unknown'.....you'll be able to read in detail about all the studies that have been done from the 70's up to 2008 when the book was published. The writer...
.... is how Lyme associated PAIN can be so excruciating one munute and then seemingly gone the next. My left shoulder was killing me last night-- all through the night in fact-- and then, like a...
Sounds like the tooth pain and itching, etc. MIGHT be (dunno!) new symptoms cropping up. Ceftin is pretty powerful and thus might be targeting-- as you mentioned-- spiros in areas other ABX haven't...
Maybe this is old news , but I thought I'd mention it: I just finished reading 'Cure Unknown'....the Pamela Weintraub book I mentioned in another thread. Please know that I have no vested interest...
You're out of the woods, you're out of the dark, you're out of the night! Step into the sun, step into the light.....! Sing along everybody in your best Munchkin voice! ........hold onto your breath,...
Great thread ! Great posts ! Great advice! I was just wondering about all this myself. Hate the hypoglycemic feeling, and all that it brings with it. Crazy making!...
Hi Carrie, All that you describe is soooooo Lyme! Before I started ABX treament my skin was so ultra sensitive that I couldn't even stand to have my hair touching me. I had to wear it pinned up all...
Oh my. I never noticed there was a log off button! LOL Found it now.....but I'm on here so much it doesn't matter! LOL...
Hi whenallelsefails, I've been on ABX since last November. No plans at the moment to stop treatment. Onward! Hi Carrie48, Actually the heading is: Things that never go away. (no 'will' in there) But...
Just thought I'd list my symptom progress for those who are also on ABX and are interested in one person's journey to getting well using this method. Symptoms that have never returned....and are...
Thanks achievinggrace! You've made me feel a lot better about it. My LLMD said to ramp up on B12 ahead of time too.....and yes, no alcohol! I think I've had maybe 2 drinks during the entire time I've...
Hi scorp, Yes, I felt like my old self again !!! /community/emoticons/yeah.gif Nothing was lost but the time it took for the fog to lift. However.....there is trepidation and wondering: when and IF...