Hi Patrick, your symptom list is very close to the list I could have drawn up, but along with the mental stuff I suffered lots of nerve pain and very arthritic hands. I too visited many NHS...
Hi Majik10........I'm a recovered UK Lymie, treated through BS for nearly 4 years, I've been LD free (?) for the best part of a year. It cost around £8,000.00 (and the rest) to get to the point I'm...
Hi fedup. Your right.....LD is more or less off the UK radar unfortunately. If you do have LD "riding it out" is really not an option as Bb will only get deeper and deeper engrained in your systems...
Wow Kirsty..........you never said that before...........how have you managed that one?? Over that past 5/6 years I taken my case to every..... and the highest level with the same answer. You must...
Hello Emma..........I sent you my number via email, the offer to talk is still open. It sounds like LD is a possibility, but I'm affraid your local GP/NHS are probably very anti LD and will steer you...
Your symptom could be LD related as B.b has a growth cycle of around every 4 weeks, maybe an explanation (or a thought) for your cycling symptoms. I started keeping a daily log when I discovered I...
Hi Barbaral, I'm in the UK too and been through the NHS mill, so if you requied any help regarding the UK procedure in dealing with LD I'd be happy to help steer you.......Unfortunately the NHS do...
From the BBC website. A small step forward maybe? http://www.bbc.co.uk/news/health-16706942 Mik...
Hi tb, you've found a good place here. I'm in the UK and please let me tell you that the NHS will NOT assist you in the way you need help. If, by good fortune and if the NHS give you one, you have a...
Lol....but feels great!!...
Hi Borderlyme.......I can absolutely recommend you buy one. Mine is a cheap (£130.00 English pounds) portable model, which was on daily for around 2 years at the height of my symptoms and is still...
Yes the thoughts you are having could certainly be LD related, I suffered the same type of irrational thoughts for the years my infection was not treated. I too could not handle pressure of any kind,...
Although I'm in the UK and probably don't reach the amount of sunlight levels you guys do I had no problems with Doxy and the sun at all. I was on 200mg of Doxy twice a day along with 400mg of...
Ticks are attracted to the Carbon-dioxide that all mammals produce when breathing, maybe your hubby breaths heavier than you do....
Take them my friend...by the time you have finished the LD abx protocol in a year or two these two weeks you have now will fade in to insignificance (?), they may even kick a few spirochetal butts....
Mrseve........even if one NHS doc here believes you have LD you will not get any more ABX than about a months worth and that will be 100mg 2x a day, which sadly is not enough to help much. Sorry mate...
Welcome to the very strange and mystical LD club, please take a leaf from most of the members here and take it off your own back and find an LLMD asap - sorry but you will have to go private, the NHS...
Hi mrseve, LLMD's in the UK are not at risk like the their US friends (YET)......... Pop a search into Google for Breakspear Medical Group, they are in Hemel Hempstead and are fantastic. They have...
Maybe the Lyme vaccine that was suddenly withdrawn around the time of the Gulf conflict was the the cause of Gulf War Syndorme ??????? Similar in symptoms eh? The plot...
Read up about Plum Island Paul, it could change your views on the conspiracy theories. If you do have LD you've just found the strangest corner of the planet.......the politics are mind boggling....
Unfortunately Paul you'll find the GP's hands are tied when it comes to treatment and unless he is willing to really stick out his neck you will not get the amount of ABX and the dosages you will...
Hi Paul, sorry you are suffering what could very well be LD. I was bitten in 2006 and it took me until 2009 to convince my GP I had Lyme. As another member said you have to know as much as possible...
Is it possible that when the Dr refered to the first and second parts of the test he was talking about the IGG and IGM of a WB. If he was then all he probably read was the CDC criteria for being...
Springsjean you have hit the nail on the head for me, from being a social - party animal I can no longer tolerate being in crowds, or talking to people (anybody) for that matter. I have neurolyme,...
Hi Springsjean, as a LD sufferer I'd be VERY interested what your LLMD says.........for the last year or two my wife (who has never been bitten as far as we know) has exactly the same pain/problem....
Hi Kirsty, I'd expect that the initial reaction you had was probably a herx, feeling like you are dying is just about the right feeling. Expect a few more though, LD replicates every 4 weeks or so, I...
Hi Bucci and thanks for the message, after the hard work that went in to it I'm glad you got around to reading it and that it maybe helpful to you and others. Whether it is the treatment protcol...
I have my LLMD to thank for saving my life as without her and her offering me treatment I'm sure, eventually I would have done something it would've been too late to regret. And without this forum...
Hi WP, After 4 years with this bug - 2.5 years of untreated LD and 17 months of treatment I believe my body knew the difference between a herx, pure LD symptoms and other illness/problems. In my...
Hi all and sorry that I've not been around too much lately. I visited my LLMD today, all is looking good and I could be off abx by April. She has recommended that I have a MEL-4 MELISA blood test...
Worrypot.....When LD's in your head you do not realise it's there, I found that my darkest thoughts were the scariest symptom of LD, I was able to rationalise the pain and understand that if I...
Hi worrypot, I too am from the UK and it looks like you, me and Littlehutton all have either initially seen the same set of Dr's or the NHS do not know anything about LD. I feel it's probably the...
Hi Twisted, you have found a very good place here with some really smart members. Welcome to the wacky world of LD, the crazy politics and all the stuff that follows it around. I hope this forum can...
Hi Bucci, there has been so many post lately that your knee buckling thread has been demoted to the second page and after the effort it took to decypher my diary's scribble I wouldn't want you to...
Hi prof, welcome from me to this forum, as a starter question I'd like to know your personal thoughts and views on the exsistance chronic LD. Thanks Mik....
It's left with you if you ask questions or not but there has and will be all matter of topics discussed regarding LD and other related subjects on here. Maybe you could find the answer to your query...
Sorry you are suffering sad n happy and sorry I have to say welcome to the Lyme club. Yes it's the craziest, most political thing you will ever come across which I'm sure after 3 years you'll have...
Recently my wife has started to complain of a stiff neck, sleeping probs, stiff hips joints, shooting pains and intermittant tingling sensations. We do not live in an endemic area and according to...
Hi Bucci.... I'd be happy to share the protocols and treatments I've had over the last 4 years. Yeap I've kept logs and written things down but some of it take some deciphering now as the "fog" has...
has no support...
Hi Bucci, I've had similar problems and nerve pains that start in my right shoulder then quickly rush down my right arm into my hand, for a second or two it renders my arm useless then is gone as...
touch by helping...
Hi BDubs, sorry to see you have some horrible symtoms...but you have found a great forum here with some smart members. I expect a lot of the people who use the forum have had many of the symtoms you...
this life will...
to live life...
Hi all and merry Christmas. I'm treating the bugs today to their own small Christmas party, red wine with my dinner and a large helping of Christmas pudding - all that sugar should make them dance...
A great addition to an already great forum. Good luck Trav....
Hi Sutrin, you have come to the right place for sound advice, the members here are open and experienced. LD has many faces and each person has different but similar symptoms. The majority of my lyme...
Sorry I meant to say that Doxy (in my opinion) is probably NOT the best drug to use....
Hi there Wrybread, sorry that your mum is struggling with whatever is wrong with her. LD is so difficult to dx so find an LLMD asap, your mum's symptoms could be Lyme related but babs can also cause...