Hi there, I have Lyme disease, various virus's etc and I also suffer bad from Chronic Fatigue. How do I go about finding a Dr to help with the CF part of my illness. I live in Asheville NC? I also...
Pretty sure I caught it from my husband, I started to be ill 11 years ago for no reason (I met him 12 years ago when I was on vacation in FL from the UK) I was diagnosed last Sept, my husband last...
I have tendonitis from taking Factive (same type of antibiotic as Levaquin). I have been taking magnesium, Vit C and everything else under the sun, it did not prevent it. I have Bart and will have to...
HI Jacki: I have been on Antibiotics since last Sept and I am not doing any better. I too have Bart and Babesia. I had to have my line pulled two weeks ago due to a problem with clotting (but I...
He's my Dr too. Do you live in FL? Susie...
I pretty much did the same treatment as you but only had 2 months of Invanz. I don't feel any better at all, is your Dr in Tampa by any chance? Susie...
My LLMD keeps switching abx like pulsing them, not on anything at the moment had to stop the Factive/Alinia due to tendon problems....
I have now been on ABX since last Sept inc 2 months of IV. I am not feeling any better but worse. My CD 57 was 3-39 last Oct and is now 1-37. I am not getting anywhere here. I am taking loads of...
Lymie20 are you any any other drug at all other than Rocephin? There are other Cyst busters besides Flagl and Tindamax. My Dr has me on Alinia but also he told me Mepron is a cyst buster....
I was on Tindamax with my Invanz IV but it gave me a bad headache, so I was switched to Alinia and faired very well on it with no real side effects. Susie...
He has given it to me for my fatigue. I asked him LDN but he said no to that as I don't have the type of pain that it would help. He really wanted me to take the DDAVP but it was giving me really bad...
Just had the stuff compounded and husband loved giving me the first injection in my arm, stings like crazy, not sure if thats the right place to inject, having it 3 times a week, anyone else on it...
So my insurance company needed no pre authorization for my treatment, but have refused to pay now the claims have been submitted. I don't know where I am supposed to pull the $106 per day for invanz...
He does my IV meds and orals, he does switch around a lot with the orals but I think that is a good thing as he is trying to get rid of co-infections as well as the Lyme, also I have a very sensitive...
I took it, very expensive and had no effect. Susie...
I see Dr C in Tampa and I am currently on IV Invanz via a picc line. At present I am also on Mepron and Ketek. (I have taken Alinia, Tindamax and Factive, he rotates the oral meds but keeps the IV...
My Dr checked my vasopressin level and it came back low. He has put me on DDAVP as he thinks the lack of it is causing a lot of my symptoms (level will go back up once the Lyme is gone). Was very...
Dr C in Tampa only takes Blue Cross Blue Shield PPO plans. Susie...
Our bodies don't store vitamin C so you need to take it every day. If you take too much your body will just get rid of it as it is water soluble. Too much will also give you the runs. Try some of the...
Hi Bucci: He is an infectious disease Dr, who has been a LLMD for over 25 years. I am on Alinia for the cysts orally and he said that would take care of any parasites or C Diff. The factive is oral...
I have been prescribed Factive for Bartonella, which I will take along with the IV Invanz and oral Alinia, anyone been on it? have anything good or bad to say? I am a little nervous of the side...
My Dr uses the C4a as a marker just like some use CD57. My C4a is currently close to 10,000 and he will keep checking it as my treatment goes forward, once its starts lowering we will be making...
I had a call from both my DR's offices today to say the line needs to be pulled and the proper size put in my rigrt arm, they are worried about DVT because I have 4G/5G genotypes and I am on HRT....
Went to the hospital as instructed this am, had a CTA done and a ultrasound, everything looks OK so it's staying put. Susie...
Thanks everyone, yes Lisa I am very fair skinned and bruise easily. Thanks for letting me know about the recovery time and what to do. Cajungrl, Dr C's nurse does not do piccs anymore as they don't...
They are now debating leaving it in as it is infusing OK. (which suits me) Have to go for some kind of doppler tomorrow. I have been contacted by the hospital as they are investigating what occurred...
Just found out that they have to take it out and re insert in my right arm. They inserted a double when a single was ordered and never aked if I had collar bone issues. I broke my left collarbone as...
Had my picc line in yesterday, took 3 attempts on differnt veins and then one readjustment as it was in the wrong place. Can hardly move my arm today so very painful and also very itchy under the...
Not sure on the length of treatment to be exact, he has put 3-4 months initially. The drugs will be shipped weekly overnight already in the eclipse balls. They will let me know as soon as the...
I know 3 people who were cured by 6 months of Rocephin and Flagyl, it depends on the individual. Most people don't continue to post when they are better, I also know someone who was cured by Dr K in...
The insurance company won't pay for my treatment, any ideas on how to get Invanz plus supplies for less than $106 per day. It has been ordered to go through a eclipse home pump but I am sure I could...
IgM vs IgG An immunoglobulin or antibody refers to proteins that bind to antigens in specific cases. Both IgM and IgG refer to a class of immunoglobulin. Antibodies are produced by the immune system...
My husband and I went for our appointments last week. We had separate appointments on different days. My appointment lasted close on 3 hours, my husbands just an hour. The Dr is extremely...
I was given Omnicef 300 mg twice a day and probenacid 500 mg twice a day. On the Omnicef it says not to take probenacid with it as it increases the effects of the Omnicef (which is what my Dr wanted...
Hello there. I will be starting IV Invanz daily next week, will let you know how I get on, waiting on getting a line put in. I will be having another drug as well for the cysts, can remember the name...
After suffering IB constipation for years I have tried it all. A big bowl of all bran evey morning plus lots of fluids will do the trick....
If anyone has been to this Dr please can you e-mail me as I am looking for info Thanks Susie...
I will e-mail you with my Dr's name. I also have low blood pressure as well as the temperature issues. My thyroid is OK but I do have adrenal fatigue which is causing the dysautonomia. I have...
I see a Lyme Dr in Orlando, e-mail me if you need his info, there is also one in Tampa but you would need a referal to see him. I have problems regulating my temperature due to dysautonomia Susie....
My husband had his first appointment today with the LLMD (we already knew he was positive for Lyme and co-infections) He has been having neuro problems for a few years and has been told previously...
Had my appointment with LLMD today. He has stopped the Doxy and the 3 x weekly Rocephin IV's as I don't seem to be getting anywhere other than the constant sore throat and swollen glands have gone. I...
Lady was getting some IV nutrients for anti aging. I go there for Rocephin 3 times a week. I am in FL and no, I am not going to Spain, don't have that kind of money, wondered if there was anywhere...
So here I am in the IV suite the other day and a lady told me she went to Spain and was cured of Chronic Lyme from this treatment by a DR Hilv, anyone heard of it and what it actually does, can't...
My Dr is a MD and a ND he is in Orlando FL, he was reffered to me from ILADS...
Yes, she is checked for that every year but it's just a titer. I am going to find out if a western blot can be done on a dog. We have to have expensive blood work ran every 3 months on her and I...
I don't have Cushings but I have adrenal fatigue caused by the Lyme. We have just found out my husband also has Lyme (he has bad thyroid problems). The reason I am curious is because my dog has...
Does anyone know if there is a connection between them?...
I use Valerian root as it helps me relax and fall asleep, melatonin gives me a headache if I take more than 2mg, you can get supplements with low doses of both in as well as Hops, Lemon Balm etc...
I know people who have been to him and I have spoken with him at length....
It may be a pilonidal sinus. Susie...