Cute!...
If the SECOND test was negative, was the first positive? Because how would they explain that? Keep working with your neurologist and the health system to rule out everything else, but but don't rule...
well, I feel awful and SUPER groggy and foggy in the morning. But because of when I take my pills, other symptoms are worse at night. I did have one night where I was up all night, but that was after...
I honestly can't remember the last time I was on here, but after finishing antibiotics and relapsing immediately 15 months ago (after 2 years of untreated Lyme and 2 years of treatment), I've finally...
I am laughing a bit, only because you specifically picked Kelowna. How about the ENTIRETY of Canada? Yep- there is not a single LLMD anywhere in Canada. There is 1 ILADS trained ND, and some other...
Thank you borderlyme! I am so glad you're better, but what you describe is exactly how I am feeling- I get worried I will never get better! It is so easy to start worrying that the antibiotics aren't...
Hey Steve. Yep, as I said, I got them in my tongue. My tongue never went numb, but I got twitches in it....
Yay! It is a good thing I am late to this party, because I was going to say that I took a short break from antibiotics for stomach issues, and by day 10 had backslid a ton and was feeling awful! But...
Hey Steve, I had crazy twitches like you describe everywhere! I still have them in my legs actually. I would get them on my tongue too- definitely a weird feeling! And with all of my twitches you...
So about 2 months ago, I hit a plateau and quit getting better. My LLND wanted to switch medications, but she a) also wanted to try to keep working with an MD who had been semi-cooperative in...
I don't know if I can offer you any great advice. If you could find a part-time job, that would be easier than a full time one, and still allow you to make money. I relapsed right around the time I...
Thank you for trying to help your friend and supporting him! That will mean a lot to him! I think it could even be the most helpful thing you could do...
No, I just generally start feeling awful! :tongue: but I feel better afterwards!...
Hmmm. I've been told that under 100 is ok, but anything over 100 is fast (aka matters to doctors)....
I got tooth discoloration with minocycline, but it got 90% better after I got my teeth cleaned. They could scrape the staining off....
Yeah purplegirl, I know! Believe me! I don't think I've ever had a panic attach, but I generally think that you'd know if you had a panic attack vs. racing heart. But it can definitely freak you out...
Hi Purplegirl (Ps I love purple too!). My heart does not race constantly (and if yours is racing all the time, I would definitely get to a doctor), but I have definitely had times where it is going...
Allicin (not specifically Zhang's formula) absolutely kicked my butt! I have a pretty high tolerance for herxing, but the Allicin really got me. In theory I was supposed to go up to 6 pills a day,...
Hi, Well...I am in Canada. No heat or humidity where I am! But I have NEVER been able to handle heat- either before Lyme or now. However, I am really sensitive to cold....
I have terrible pain in what feels like either the bones in my pelvis or maybe the ligaments around them. This is definitely NOT from my ovaries etc. I've had it before, but today is the worst it has...
Ummm....I was on Rifampin and Bactrim for Bartonella (instead of the usuall quinalones), and I have been on Biaxin for Lyme. I don't know about Biaxin for babesia one way or another....
Oh Garfield! I know this EXACTLY! Lyme is so terrible that way! I find myself looking forward to feeling crappy, and yet when I feel crappy I get scared I am not getting better...but if I don't feel...
Hey, so if you did Igenex test they ysyally have a statement at the top of the test saying something like "Igenex: Positive (or negative), CDC: Positive (or negative)". Anyway, I don't know the exact...
Random pains- is your LLMD an ILADs LLMD? Or is it an Infectious disease doctor who specialists in Lyme disease? There is a HUGE difference. I would tell you that while LLMDs might say that the Dr...
Also, giant internet hug. the saddest part of this disease is that there are never easy answers or easy fixes or magic bullets. It is just tough. And it is Ok to be exhausted. I just hope that you...
+Lyme- I want to say that I understand at least a portion of how we feel. Fighting with chronic illness is hard. Yes- Lyme can affect your mood- but it is more than this. I don't want you to feel as...
My ND just gave me Wormwood-literally. i don't remember the brand, so I don't know the mg, but the pills JUST has wormwood. No other additives or anything. I take 1 pill a day of mine, at least right...
I am taking 450-600mg a day (the pills are 150mg each)....
Hey Kirsty! I went to Turkey when I was on crazy high doses of Amoxicilin. I took something like 12000 pills with me! I am glad you are feeling better! Keep on with the good work!...
Yes- I don't have it often, but I believe this is neurological. When I was having bad days I would drop EVERYTHING! Car keys, papers etc. And I couldn't walk straight either (not that I am especially...
Yeah, I know. But this time around I have an LLND who I trust completely and who agrees I went off antibiotics too early and has promised me that she will keep treating me until she is sure all my...
yes. I have had HUGE problems with this. When other Lyme symptoms flare it flares. Lyme gives me tight/tense muscles in general, so I think it is just doing the same to the ones in my jaw. Take...
When I was considering starting St John's wort the dose my ND suggested was 500mg. Let your doctors know you are taking it. From my ND, she said that they were concerned about how St John's is...
Hey! I am in Calgary. There is an LLND in Calgary who I see and love. She is very good and she does phone consults. Apart from that, there is no one in Canada.. Like, literally no LLMDs. If you want...
Hey Carrie! I stopped antibiotics before I was 100% and I really regret it to. I was off for about 6 months (July though December) and I went REALLY fat downhill, and things have been very slow every...
Hi bucci. Yes, I am on antibiotics. Antibiotics and a MILLION supplements that help with fatigue and I am still tired. My pain is significantly better than it was at Christmas, so the fatigue is not...
Yes, for whatever reason Lyme likes my lower body more than my upper, but a big symptoms I have is just general aching, especially in my legs. Now, I don't know what roxithromycin is, but I can say...
I haven't tried glutathione. My LLMD mentioned it once when I had a bad herx, but my ND hasn't mentioned it at all. Bucci- yes, Artemesia is wormwood! I didn't know until I looked at my bottle, but...
Also, if anyone who reads this had babesia diagnosed a ways into their treatment, do you want to share your stories? When I was first diagnosed, my ND thought I might have babesia, but the LLMD I saw...
Very much off topic, but yes, chiropractors do MORE school and more difficult school than MDs! I found a new chiropractor who I I love who has been telling me all about the school they do. Of course,...
Thank you for doing this summer! I had to find an LLMD to get treated, so I don't fall into the category of the first survey, but I will do any of the ones I do fit in with. I think people like you...
Thanks yazzer. I think one of the most important things is finding both a doctor and a treatment approach you are comfortable with. So while I am comfortable with use of naturopathic medicine in some...
To add to peacesoul, I actually see an LLND, but she mainly uses antibiotics. While I think antibiotics 100% on their own (no probiotics or anything) can't cure Lyme, there are people who have...
Hooray! It is so exciting to see you keep posting these awesome updates! Being able to see someone who really seems to be moving towards regaining their health is very exciting...
Hi Kristin, I am not in Ontario, I am in AB, but I know that the drug coverage is an issue. Someone recently was telling me about a way people in Ontario got prescriptions so they were covered...I...
Does NP stand for Nurse Practitioner or Natural Practitioner? I have to say the the original LLMD I saw in the US, while very knowledgeable about Lyme, also spent very little time with me and charged...
My whole life I have had super healthy teeth and gums. No cavities every. I have had Lyme for almost 5 years, and up until now no teeth problems (just saying this because I know peridontal disease...
Oh, good I am glad Kirsty! And I am glad that you get your care for free, although I understand how tough it is with no LLMDs! In Canada we have similar problems. No LLMDs and only on LLND in the...
HI Kirsty/worrypot Gosh you sound just like me! I was so desperate to be healthy AND so terrible at phone appointments that I would leave out symptoms, or convince myself that they were just "normal"...
Thanks for the info bucci Shinji- The connection there isn't clear cut. Everything has been muddled this past month, and I have had some symptoms of babesia in the past. However, what happened was...