Hello Deejavu (and others who have gone to Hansa): When you bought the at-home protocol, did you get the Good, Better, or Best package? The Best package seems to be a steep price increase, and I...
I read it from the library. I thought it was skim-worthy, though some parts I did slow down and read more thoroughly. Some of it is about the personal lives of the creators of the lab, their work...
I used it for 3 months, and was prescribed something called Actigall 2x/day. After 1 month there was a spike in one of the blood tests (I can't remember which) so the Actigall was increased to 3x/day...
Thanks for the positive feedback, everyone. Sharing on Facebook is great! Wishing all the best to everyone!...
Hello all: First I have to give some background. An internet "meme" (pronounced meem) is a concept that spreads rapidly from person to person via the Internet (definition stolen from wiki). One such...
I think that hopehere should do whatever she is most comfortable with. Some people want the abx route, others want the non-pharmaceutical route. I think it's fine to talk about what has worked for...
The other stuff does sound not good, but being up all night, then foggy the next day, I have that happen about once a month. No idea why, no rhythm at all to it, sometimes I just can't sleep until 6...
But what about those of us who like to think the US government is responsible for everything, and that Borrelia is a Department of Defense biowarfare bug that escaped? Did I move to Canada for...
I totally feel your frustration. Most of us have been down that road at some point, and tend to venture back onto it from time to time. I'm staring at the on-ramp right now because my LLND and I...
I'm glad to hear that you're seeing a new LLMD, I think that will help. Unrelated, but beet juice is close to pure sugar, even if you're juicing it yourself. Most of us with home juicers stick to...
Rocky Mountain Spotted Fever. Some of us test pos for it, but as I understand it, if you really have it it can be fatal. I tested pos on WB even when Lyme was neg, but never even started treatment...
Mystery: I do hope that we didn't offend you by so quickly going against your opinion of what you need (no more abx), it's just that there is really no evidence that for chronic cases (such as 2+...
Rereading these guidelines was very helpful, though not just a bit overwhelming! It does recommit me to taking my sleeping pills every night and trying to get some naps in; wow does he ever emphasize...
Hopehere: Most all of us here have gone through this. I wish I had some useful advice to give you; all I can say is that we're here for you when you need us. It does get better. The Spoon theory link...
Miss C: I would personally believe almost nothing told to me by a doctor who once told me that my symptoms are psychological, unless that doctor was willing to apologize profusely for being not just...
I also went from a bar star to 1 beer=hangover feelings. Back when I was speaking with an LLMD for a consult in 2009, some of the questions he asked in the screening described me exactly, and were so...
Carrie I've also been gluten free, diary free, fun free, for a few months now, and yeah, there are times I am like a drug addict, going through my cabinets for the doritos I know aren't there, but...
I get manual lymphatic drainage from my massage therapist 2x/week, and she says to skin brush towards the heart for the reasons achieving... said. In Canada a massage therapist has to have 3 years of...
Lots of issues here! 1. I skim-read about your rash in another thread. It sounds way out of line for a herx, so I second (or third) the others who said get that looked at ASAP. I don't know that I...
If you think about how many of us have leg pain/joint pain, and get lots of MRIs and CT scans which never find anything, it doesn't surprise me in the least that a brain scan also doesn't pick up...
There's a supplement called Acetyl-L Carnitine, available OTC in the US, only by prescription in Canada, and it's job is to help get through the barrier as well....
I think you would need at least a month of data before you can really come to even a tentative conclusion, and as others have mentioned, there must be at least a half a dozen factors you'd have to...
I am in a similar situation, in that changes in meds stirred up new symptoms. The brain fog, which I didn't have as much before starting mepron, my LLND referred to as a "cerebral herx", which does...
Two thoughts come to mind: 1: In this economy, with unemployment so high, everyone has a hard time finding work, which makes networking very important. So when you are felling better, you can get...
My favourite freezer foods (warning, I'm a vegetarian): Thai or Indian curry with quinoa. Sometimes I freeze the curry separate in a big batch, other times I use meal-sized tuppies with quinoa for...
Mepron is usually used for babesia, and is really about a 6-month experience. 3 weeks is when it is used for (malaria?) its original intent. Ditto the doxy, which is usually given at 300-600mg a day,...
For most sexually transmitted diseases (in case Lyme is one), female-to-male transmission is less common that male-to-female or male-to-male. If you want the reason why, I can give it to you in a PM;...
I think if the two of you together can 'do the detox' together, then that will be the best thing for him before your appointment. He'll be in a good rhythm for when he starts on meds. He can also...
"If you don't get any clear answers from the blood I think it would be foolish to not pursue treatment. You had two separate LLMDs confirm the diagnosis, then you had a reaction to a very low dose of...
1. Feeling crappy after even just a bit of alcohol is a Lyme trademark, so I'd lean towards that explanation as to why your body feels like the Nebraska defense! 2. From what I've heard and read from...
Thanks Absinte. I'm definitely stuck in one of those, "Will I ever get better?" modes, your letter does give me hope....
I've had major sweat for a few years as well (37-year old male). I am pretty sure that night sweats occur due to one of the co-infections, babesia I think. I used to sweat a lot, it tapered off, I...
I was very much in the "I have a stunningly healthy diet, how much more can I do?" camp a couple of months back, but after one aborted attempt to rigorously follow the alkaline-acid diet charts, I've...
I met a friend today who mentioned that I looked more energetic than last week. Sure enough, I took a full pill of my lorazepam, whereas last week I was only on 1/2 as I try to wean myself off of it....
Spall, I would nominate you for post of the month, if we had such an award. From your script to your understanding of others...I'm kind of at a loss for words (no news there!), but honestly, I think...
You don't HAVE to go to the max dose. If your body ain't ready, I am not certain that pushing it to the max is the best choice in the long run....
That is SO me. As has been said, non-motivation comes with the territory. But yeah, some days even the skin brushing and sitting in my sauna seems like, (use your teenager's voice here) 'whatever'....
As a (former and hope to be again soon) therapist, I know that meditation is one of the only proven ways to kick depression. Do I do it, however? Not even close! So it is good to read the reminders...
I should pipe in that I've been about 99% gluten free for about 2 months. Hasn't affected my brain at all, but the severe gut pain and nausea I got with doxy has subsided quite a bit. I've been about...
I was on Ceftin for a couple of months, along with doxy. My LLND and I think the Ceftin may have helped with my brain symptoms, but then I started mepron and not I'm such a mental mess that we...
I have to second the idea of taking it slow. I was diagnosed in my mid-30s, and tried in a variety of ways to go faster or make short-cuts. Ended up in the hospital twice, and I know others have...
Lymester, you may be interested in a book I just finished called Anatomy of an Epidemic, by Robert Whitaker. I'm not even getting into the debate here about the theory of how SSRIs work, but it will...
My ND, my GP, and my pharmacist all emphasized the need to take doxy ON A FULL STOMACH. I have no idea where the "empty stomach" idea came from, but meals with a lot of simple foods (potatoes/sweet...
That was great!...
Yeah, I've had face pain. Mostly the eyes, but it can be all over, including cheek and jaw. Don't know if it's related or not, but the fillings on one side of my mouth have hurt for so long I'm...
I'm also glad you've been able to move your GP along. As for the doxy, get a new pharmacy. Here in BC, I've never heard of anyone being told there was a limit to how much doxy they can get with a...
She's from Australia, so I have no idea what protocols are there. One of the announcers would mention Sam's comeback during every match; alas, she kept calling it Lymes Disease! The announcers in the...
My LLND has her own webpage, and on it she lists some of her practice guidelines. Googling your doc is a good idea these days....
Depending on your other meds, you should avoid milk products. I take mepron with doxy, and doxy doesn't like dairy (the calcium, I think). I stick to nut bitters mostly. I've never really heard a...
Hey Britgirl, how goes the diet? Many of us are somewhere into a new diet/new selves path, so I'm always up for hearing what is working for other people food-wise....