Hi Yazzer, When you have a bit of time would you update me on the exercise limitations you have been dealing with. I am on the upswing and if I run or bike hard, I feel better. My new doctor and alot...
Hi all, thank you for your wonderful feedback. Sorry to take so long to respond, my work is my email inbox and replies of the heart get put to the back burner. Acheivinggrace, thank you so much for...
Hi all, I think you might remember me from last summer, when I was advocating a mushroom supplement I was taking. Well, regardless of the efficacy of the supplement or supplements, I stopped paying...
Hello all, I thought it was kind of selfish to only come to the page when I feel sick. I am never going to advocate a product again. But I was thinking I have been almost symptom free since June....
Hi all, I am due for some labs, is there a trusted lab or labs that are not referred to as junk lab by the LLMD and Lyme community?...
Yeah, sometimes you don't have to look to hard to find the blessing of Lyme. My appreciation of life when I do not have debilitating symptoms is 10 fold what it was. Basically I take nothing for...
I know I promised not to post anymore medical advice but here is an opinion from a non professional: I felt that the year of oral antibiotics never really got the Lyme. Lats Fall I got a PICC line...
Sicktoolong please do not leave the forum, I am over it, everyone explained their issues and all is well again. Please use this forum and every other means to get your self well. Ironically I got in...
Back to running, One blessings of Lyme is am lighter now at 45 then when I was 21. When I have symptoms I "waste" loosing all of my fat and muscle, so when I get started again on the healthy diet I...
Hi Yazzer, After deciding to leave the forum, I was reading this post. I don't want to leave the forum but some of the stuff that was said was pretty hurtful. Reading this you seem like a very nice...
Folks, I think I am leaving the forum. The negativity after my mushroom posts really got to me. I was accused of profiting from the myco meds, changing my profile to look more legitimate and giving...
Hi, I am trying to post my email for sicktoolong but every time I check the box to show my address it doesn't come through. What am I doing wrong?...
My email is showing and I will enterthe supplements I am taking...
And thank you Cajungirl too!...
Hi I will post the medications I am taking as well as the dosages in my profile. That is all I can do within the forum context. In terms of what I learned in regard to environmental causes and...
Folks, was hurt and offended when my honesty was being called into question. I apologize for any of the forum rules I broke and if I offended anyone I am sorry for that as well. Please understand I...
Yazzer, you sound very cynical and negative. You all know I have have not claimed to be "cured". I am symptom free for three weeks. What part of the post concerns you.......deep breathing? exercise?...
Looking back that was posted by jr99 not me JT65...
Traveler, I did not post the comment you quoted from the 10th...
I either miss-communicated or you misread my post, I did state that my symptoms are almost all gone after almost three years. I attributed it to several different factors with the myco meds only...
The head sales person is out of the office until the 15th. I will hear back from someone regarding your regimen and I suggest you start ASAP.As I said we can negotiate in a week or so but even if it...
Be strong and think positive, I was right where you are only three weeks ago. The other supplements are an important foundation to build on as well. The Sam-E with the 200 mlg b vitamin improved my...
Hy MysterLyme My headaches were either brain (the organ) hurting 9 on a scale 1-10 or a combination of brain with needle like pain behind the eyes. 100% debilitating. Just to give you an idea of the...
I know the founder. As I mentioned I had not used them until three weeks ago. The supplements can also be purchased from New Chapter. I have absolutely no personal gain from any revenues from...
Hi Folks, sorry to have been absent from the forum for a bit. I have been busy feeling well and living a regular happy life. Just over three weeks ago I wanted nothing more then to be dead, to be...
Have you tried chelated magnesium taken orally? Works great for me!...
I felt horrible on all oral antibiotics but after the initial herxing I felt much better on the IV PICC line Suffering now for a finite period in early stages is better then the whole bag of tricks...
i whacked the back of my hand with a machete today and cut myself pretty bad got stitches and they prescribed amoxicillin. i guess i will find out about more herxing tomorrow. also going to a well...
great perspective, thank you...
hi neurogirl. i live on the cape. i would be happy to talk to you, i can steer you to an llmd here and i know of one in NJ and outside boston. i am going to ask one of our moderators about the...
I am a little scared that it the long term ABX that messes with the adrenals. Lymenster I hear you it is so frustrating to be patronized by ignorant doctors with power over our well being. Why can't...
Yeah, this last round, I had the symptoms you describe for about ten days. Towards the end I started to experiment with Artineisia. That felt like like the horror stories about PCP when I was a kid....
Wow! I was unaware that so many of you have the feeling of dying. It is exactly what it feels like. I thought it was just me. It is such a vivid feeling of dying and so difficult to pull out of the...
Is continuous dosing of ABX standard or case by case with LLMD's?...
Thanks Cat, I was smoking a couple a day until my last bout. I started in a fit of self pity early in the sickness, dumb idea. Neither smoking nor self pity helps me much. Still having one coffee in...
One more question... "In the New to Lyme Disease" the is a part about exercise and not doing aerobic exercise. I wonder about this, isn't getting oxygen throughout our bodies the very thing that...
Hi Cat and Traveler, It has been in this latest bout with my disease that I found and joined the Lyme community. I am not yet literate in all of the terminology. I am treating right now with a list...
I think if you were actually feeling better and not coming on the site that you should see a LLMD and detox. I hope you feel well again soon...
Hi All, I asked my sister and who is in the brain neuro science and behavior field about her thoughts on a link on this forum. She looked into the link she came back with another link from The New...
Hi, Can someone refresh my memory regarding the Marshall Protocol? Hope you are all ok today. This last bout of symptoms was the worst in two and a half years. Triggered my wife and I to do all sorts...
I hope everyone is having a good day! I had a good but Lymey day yesterday. It was so nice to go outside and see my family....
Thanks!...
Hi all, does anybody have any good references for good recipes and diet management for the foggy headed? Getting all of the supplements and other stuff together for this next phase of recovery is...
Thanks allsmiles, I like your forum name, it is a good mixture of irony and hope. That is good to hear about your experience with artinesiae. Another supplement is SAM-e I am going to start taking...
Hi Nolan I just got on the forum yesterday but I have had Lyme 2.5 years. You are going to a LLMD which is great. It is my hunch that if you take this window of opportunity you may not be on this...
Hi again, sorry for jumping in with what must be a controversial topic. I did read the forum rules before i joined and I thought i stayed within the parameters of two touchy subjects. Let me know if...
Thanks all, still trying to crawl out of my post travel crash. I travel a lot for work but I realize now I can't. Here is another odd question. I am perfectly clear that my road to a cure and I mean...
Hi all, had Lyme for over two and a half years now. Too foggy to post about anything yet. Just got back from a trip and I have been in bed 6 days. Tried artemesiae today increase of symptoms and made...