Hello folk. It has been a very long time since I have posted on here; and I am sorry for that. This forum was my life-line for years; and as I would pour it all in and soak it all up, desperate to...
Hi there. I get on this site very infrequently anymore. But occassionally I try to get on to give some encouragement. I know EXACTLY how you feel. Because I WAS that sick. Lyme took over my life- my...
For what its worth. I have completed treatment (10 months ago and have been completely symptom free). I had a lot of neuro. the headaches were the worst! coordination, speech, FOG. I did 6 mos lots...
Hi there. First, its been a very long time since I've been on this forum. It has been 10 months that I've been completely symptom free. I had exactly what you are describing. My highest rate of...
I see lots of new names. It's been a while since I've been on. When this forum was my lifeline, I was sometimes discouraged by the fact that, like me, so many on here were so sick. (was this what my...
Once again, it has been a while since I've been on. and once again, I see many new names. I just want to take a minute to say "hang in there", it gets better. After being sick for years, and in...
I know when I was infected for sure, I live in an urban area and visited a high lyme area. Then after a month, I got very sick, like a terrible flu. took five weeks to diagnose after symptom onset....
Hey there. So of course I start by saying this torturous disease (and treatment for it!) is different for everyone. But since you've asked I'll tell you my course of action. I had been treated 2 and...
I haven't been on for a while, and see a lot of new names. When this forum was my life line, I often wondered why everyone here seemed to be in such a battle... was this what I had to deal with......
Before zero-ing in on Lyme, I was scheduled for a heart CT, They called me the night before and said they couldn't do it because the routine test showed decrease in kidney function. Have had no...
My LLMD says no to cardio, he says keep it simple- I go with yoga and some pilates, I think it's helpful to stretch muscles some. Detox when you are done, to clear out anything in your muscles. I...
my "cycle" started about a week before my period. SEVERE headache for 3 or 4 days, through in some vertigo, then sore stiff neck, then sore stiff back, then sore stiff body, Exhaustion, and finally a...
and pile on the probiotics... Hang in there. Each day is one step closer....
1000 mg 2X a day. Plus biaxin 500mg 2X a day....
For those of you who have been having cardiac symptoms: (of course I'll start by saying this is just my experience). Quick overview, I am 39 and had alway been in good health. I was treated for early...
I've been taking it for a month, with no obvious problems. The only major problem I've been having lately is SO TIRED. It does seem to be helping with my neuro stuff, especially the headaches. Good...
Whoa... weird... Do you think it's possible you are sleep walking? this might be slightly more comforting, as it would only happen when you go to sleep. My kids do this, they will get up to use the...
The LLMD I see is in N. western PA. just off of interstate 80, in a small town called Hermitage. Not sure how far that is for you. I would recommend mine (the office staff is a little squirrelly but...
Yes. When probiotics are involved don't cheap out. The more expensive ones really are the way to go, Kefir too! I had the heavy chest feeling- But also heart issue. If you have a rapid heart rate,...
Trav. you certainly have my permission! Would be an interesting social experiment......
Yep. Before I started abx I would get major symptoms (HEADACHES, and on and on) starting a week to ten days before, and I blamed it on premenopausal pms. Since being on antibiotics though it seems...
The only things I can offer here are empathy, and to suggest that you ask your LLMD about the heart stuff (although mine insisted I stay with my cariologist). I had been treated for the heart...
If it helps in any way, I can tell you that I've had nearly all of the symptoms you discribe- irreg. period lactation, heart palps, headaches, weird vision, etc. and normal brain scans. But what you...
Alhanna, it would be a good idea to find a LLMD. So many of us have jumped from dr. to dr. for way too long. Without someone in your corner who has specific, extensive knowlege of Lyme you will be...
I took baby aspirin to thin blood (ask your dr). To answer your Q, at lowest my pulse ox was in upper 80's, have had heart rate any where between 50 and 190 bpm with bp around 90 over 50 (which...
This may sound counter productive, but I actually take a short nap or rest around lunch time. And actually sleep better in the evening. When I don't rest in the day, I am up and down all night. Your...
I'm sure many of you have figured this out. But, in case you don't know. Giant Eagle continues their free abx program. I have been through large amounts of 3 different kinds of abx, over 3 mos. and...
Yes. The mom in me says yes to everything traveler said! Hang in there....
Yes. Getting proper treatment is frustrating. But yes Cat, I too was encouraged to see someone so healthy and at the top of her game after seemingly BEATING this thing, as we all hope to do....
We are all different. It would be good to see a LLMD. Yes to the face pain. I had lyme 2 years ago, was treated with the standard dose of doxy. a year after treatment, the face pain started. I...
Well. I have to respond. Although we all know Lyme is crazy, and that we all have very unique responses... before being treated for lyme, I used to have the same kind of reaction in church, and also...
I guess another question: what supplements and doses would you most recommend? LLMD just has me taking B12 and multi vitamin....
Grace, Thank you so much! having read other posts you have written, I have a lot of respect for your opinion. You are obviously a thoughtful and intelligent person. It's exactly what I need to hear...
So many of my Lyme symptoms have improved since I started Abx. But, I am miserably tired, and have felt this way for past two months (much more than before treatment). Have been treating for 3 mos. I...
Ive had abnormal readings for kidney function, liver function, iron levels, and potassium, and other stuff I can't remember. As well as low pulse ox levels. Also abnormal results on cardiac stress...
Just to add. I also have the head and neck pressure. Albuterol gave me a trip too- I will NEVER do that again unless I'm literally dying!...
Please know that this is JUST my stuff. I can't say it in anyway relates to your experiences or situation. You need to get real advice from your llmd. What pointed me back to lyme (after being...
I tested positive (western blot) two years ago. Was treated with abx 1 mo. and improved. Tested positive again 7 weeks ago, plus Igenex test came back positive. I had neuro symtoms when first...
Hang in there Teeners. I was exactly where you are now, not long ago. The neuro stuff, especially the speech and off balance is so un-nerving (oh, no pun intended!). I remember the dry brushing...
Maybe you should kayak at night... ; ) Protect your skin, but protect your mental health as well! Good luck!...
Yes. Sounds like you keyed in early, this is much to your advantage. Do whatever you can to get to a Dr. who will take Lyme seriously, and knows how to properly treat it! I feel compelled to share: I...
gosh! I agree. It just seems so wrong that anyone would just hand you a report like that (or any report for that matter). Take a deep breath, write down the specific questions that you have. And...
Yes. I too was treated once, then years later had problems. I've experienced all the same symptoms, even the pneumonia. (and newly diagnosed COPD). The fog (hard to describe: SLLOOOWWW processing of...
I e-mailed you on this... hope you get it... /community/emoticons/turn.gif ....
Hi there, I don't post often. But have read two posts from you, to which I can relate. First the head and neck pain, oh I know how that is- like my skull is going to crack! (side note- ice, NOT heat,...
I was "lucky" to have confirmed case as well: started with "flu" absolute worst ever, fever, rash, Severe headache and stiff neck. improperly treated, then for next two yrs: episodes of tachycardia...
Just returned from appt. Will start abx tomorrow. know so many of you are far down this road already. plan to start probiotics and detox baths. Anyone want to share any advice it is certainly...
Suddenly I feel like I've found a life line. Thank you Thank you, that there are real people out there, who can provide guidance to me. I was diagnosed by Western Blot, by PCP 2 yrs. ago, given 1 mo...
Anyone care to comment on the pros and cons of IV vs oral antibiotics? some of the stuff we're reading seems to indicate that you can't erradicate the suckers w/o IV...? My first appt with LL Dr. is...