Hi there! I realize this post is about a year old...but thought I'd ask if you had any luck finding a doctor in Knoxville TN. I was seeing an LLMD in Nashville for a couple years, but can't get...
Thanks for that info opugirl. I'll have to look at mine and see which I am taking. I've heard of clarithromycin. Does it seem to be helping?...
I would love to take part in whatever is decided here. I do have a difficult time getting out much, but whatever I can do from my computer, and with limited finances...I'm in!! I've thought about...
opugirl, I'm sorry to hear that :-/ I had an allergic reaction to Bactrim and stopped all abx and experience the same thing...all those symptoms started quickly coming back :( Up until the reaction,...
Thanks for all the replies! Razzle- my LLMD said the same, that Alinia is good for Lyme too, which I assume was behind my doctor's decision to prescribe it long term. He didn't elaborate, but def...
Hey guys, I'm really sorry I haven't been around more. My son and I moved in with family, and now we are about to move in to our own place this weekend (hopefully), and things have been pretty...
Hi guys, So I'm starting to accept the fact that abx treatment is likely not going to be an option for me. I recently had a horrible reaction to/herx from Bactrim, so I stopped it and stopped Ceftin....
What do you do, when someone tells you that you have to "push" yourself and deal with the pain? I mean I know you guys all know that we're dealing with a lot in addition to pain. That's just one of...
Hi Bev! I'm sorry to hear that you've been so sick. You should definitely find an LLMD in your area. 2-4 weeks of antibiotics will not be enough. A good LLMD will also run other tests and help you...
Btw it isn't an "oozing" rash. However there are little white "things" that look like flecks of skin (for lack of a better description), from the red bumps. I really wish I could describe it a little...
Hi peacesoul, Yes I am detoxing (baths) and also detox teas, supplements etc. I had to cut back on the baths due to pretty severe herxes, but I still do around 1 a week, sometimes more. I also use...
LYME2013, I recently read up on Plum Island myself. Like you, I was never the "conspiracy-theory" type, but after reading all the evidence everything just clicked. It's a very shocking, very sad...
Itsme, what kind of reaction to you get from antibiotics? Could it be a herx? I know when I start a new antibiotic I get a rash, and all of my lyme symptoms increase. I thought that I was allergic to...
Hey guys, It seems that every time I start to herx I get a terrible and sometimes painful rash. In this case, I'm two days into a new antibiotic (Bactrim). I can tell its my usual "Lyme" rash and not...
When does under our skin 2 come out? I couldn't see a date, or maybe I just missed it? I can't wait to see it. What a great film for awareness. I need to rewatch the first one!...
bluebyyou, I'm 32 ad hobble as well! My arthritic pains have increased drastically. What you brought up is interesting, taking a break to "sneak up" on the spirochetes...it's genius! Do you think...
I'm so sorry to hear this, iwantmyhealthback! I hope you can both find good treatment and heal quickly :) nan777 makes a good point. I'm learning that the MTHFR mutation seems to be very common in us...
I'm so sorry justme. Your story brought tears to my eyes. I know people think this way about me, and it makes me angry. They just haven't said it quite that outright. I'm sorry to hear that this...
A memri I apologize, I think when I wrote my reply post I'd only read the last post you'd written, so I probably didn't make much sense. I have major brain fog lately. Don't apologize, it's good that...
Razzle - yes I take magnesium and I do the Epsom salt baths on occasion. I can't do them too often because I have a major increase in symptoms afterwards...
...or at least stop getting worse? I'm losing more and more mobility everyday, and with an active 2 year old, this is not good. I'm having trouble typing (which is what I do for work now). I'm not...
Razzle- I have found that I must take with food, but some irritation still comes on after I take it (I took on an empty stomach and got very sick). I have a pretty sensitive stomach though, there are...
Marie I'm so sorry you're dealing with this :'( I have this problem a lot myself, especially when I sway from my diet Don- aloe Vera juice is a great idea!...
Thank Summer3! I took Flagyl several months back (unrelated to Lyme-before I knew I had it), and had to stop after a few days. I was having hands down the worst anxiety attacks I've ever had...and I...
Thanks WarriorMom! That sounds like pretty good news to me! What do you do/take for pain? I found a pain specialist that wants to work my LLMD, and so I'm hoping I can get some help to "push through"...
A. Memri, what state are you in? Maybe you could connect with others on here that live in your area to get advice on which LLMD would be best to see. I wanted to reply to your post because I was in...
I had to stop taking it altogether. I was supposed to build up to 3 twice daily, but I didn't get past one a every other day (only for a week or so). I had terrible joint pain, i spent days and days...
Thank you Don! I suspected a herx would be inevitable, as my LLMD wanted to step up my treatment plan after seeing my test results and hearing more about my situation/symptoms. I didn't have much...
I'm switching from azithromyicin and rifampin to ceftin and tinidazole (pulsing tinidazole, 4 weeks on 3 weeks off, ceftin twice daily). Anyone else taking these? Any advice on what to expect?...
I know there has recently been a lot of talk about the MTHFR mutation. Is anyone taking this, and have you noticed any improvement? My LLMD said to take twice daily, and *if* it helps I should notice...
I saw my LLMD today so I have a few questions about my new plan of action :) The first is about Crypto-Plus Microbial Balancer #2... Has anyone taken this? Any side effects/herxing that I should...
Hi all, I recently started taking baclofen for neck pain & muscle pain/spasms. The first day I felt very nauseous, the second day my stomach was upset. The next few days were more stomach cramping,...
Marie- I'm sure you were asking how it went as it pertains to the topic of my post, meningitis, but for some reason I didn't answer that part?! Wow, sometimes I think the brain fog is clearing, and...
Hi MarieLS! It went better than expected. The pain specialist went over all my records, and we talked for quite a while about my symptoms. she actually agrees that it's Lyme! She plans to work with...
nan777 - how is CCSVI diagnosed? Would this show in an X-ray, maybe of the cervical spine?...
nspeedracer - have you tried artemisia yet? I know everyone is different, but just wanted to warn you to take it very slooooow... My LLMD said I needed to "work up" to taking 2 capsules 3 times...
Ha! I was going to say the same thing as traveler. I had this same problem two days ago and thought, "but I didn't even get to have any fun"!!! My pain medication is really the only thing that "took...
xrunnerx08, I hope you get some answers here! I have the same problem. I'm on rifampin and Azith (for about 2 months now), and no changes so far. I know that probably doesn't help, unless you want to...
vcast- it's near the posterior cervical, but it's closer to my spine, if that makes sense? The odd thing is that last night the pain migrated to the left side of my neck & head, and sure enough the...
I forgot to mention I also have swelling on my neck, same side as the pain (neck, head and eye-right side). It feels like a pretty large lump at this point as its concerning. Has anyone else...
Hi guys! I wanted to bump this thread again, because I came across it in my quest to figure this while Lyme Meningitis thing. For the past several weeks I've been consistently dealing with neck pain....
Hi Marie, I hope you're feeling better today. I was just thinking today about how I simply can't be myself lately.theists to be fun...the person that cheered everyone up...or at least tried. I'm like...
Hey guys! First of all I want to apologize for staying away from the forum for so long. I found a job working from home (hooray!!), and it's keeping me pretty busy. Every time I log on to check on...
Thank you Summer3! I appreciate that you put that into perspective. It makes a lot of sense, and I don't question my decision to continue it after reading your post. I kept thinking last night about...
I know a lot of you are taking this too. I'm planning to email my LLMD right away, but I wanted to share. Anyone know if this should be a concern for us because of the Lyme disease? I don't have any...
Thank you, Don!!! :)...
Momof2withlyme...hope you're doing ok. I agree, head to the ER (even though that's MUCH easier said than done, I am usually anti-ER, but this sounds to serious not to go). I used to get bruises from...
Hi Ilexis, I wish I could offer more advice, but I just want to wish you a little luck. I too am struggling financially and trying so hard for disability. I just resubmitted my second application. I...
Justme, sorry you're having such a rough time. When I first read this post I wanted to reply but couldn't, too distracted by pain. It can maddening. Anyway I wanted to say I've had elevated liver...
opugirl, I'm "glad" to hear the "good" news! Sad how this is "good" news for us, but it means treatment which means healing! Hooray! It's sounds like if you got the clinical Dx for Lyme you'd get a...