Thanks, springsjean. I'm going to make some calls to see who is taking patients right now and which doctors I can see and get reimbursement from my insurance company. Close to Dr S would work fine...
Hello, all. Been a while since I've been here. I've been on a real roller coaster ride of feeling ok at times and not so ok at others for the last couple years. I'm now left with lingering issues...
Flowergal, my former doctor in Howell was great when it came to treating my Lyme. He was aggressive, but the treatment did work and I was feeling much better. But then after a period of feeling well,...
Central Jersey, not far from Trenton. I would be willing to travel to NYC for the right doc....
I sent an email to ILADS requesting a list of docs within a 50 mile radius of my home, and I was answered with a list of only 3 doctors. One of them I have already seen (in Howell, NJ), one in...
Lymebabe, I have not. Is it an easy test to have done? Another thing to mention to the doc tomorrow morning I suppose....
Okay, thanks so much for all of the suggestions. So far I have added molybdenum and biotin to my regimen, and I already had oregano oil so I've been using that again as well. I'm a little concerned...
Thanks, opugirl. I'll give them a try. I'm guessing they have a cleansing type effect for the kidneys and bladder? Maggie Anne, I sent an email to you. Hope it worked. :smile:...
opugirl, I will try to add the raw garlic in addition to the capsules but my wife has a ridiculously sensitive sense of smell and can't stand the smell of garlic on me so it will be a challenge. It's...
LymePickle, I haven't had nystatin but I will mention this to my doctor when I see him next Friday. I have been taking a yeast cleanse capsule made by SolaRay and it does contain garlic and caprylic...
I've been away from the forum for quite some time, and in that time I've been having issues which my LLMD felt were due to Lyme, but I was not convinced so I saw a few more doctors for more opinions....
Thanks Traveler, and Razzle. After doing a bunch of reading, I'm really beginning to think there's something besides just Lyme going on, and it may very well be bartonella based on my symptoms as of...
I didn't realize the bartonella testing was as unreliable as the Lyme tests... really makes me wonder. Traveler, it's a few of the lymph nodes on my neck, including one that is located right near my...
WWJD20, I did think that after reading a few posts on the forum mentioning the lymph node swelling as a symptom, but I tested negative for bartonella when I first began seeing my LLMD. The test was...
Thanks, Razzle. I've searched around and went ahead and ordered some of the probiotics called "Prescript-Assist Pro" and I also picked up some kefir. I'm trying to adjust the diet as well, but it has...
Hello, everyone. I've been away from the forum for a while because I was doing very well, so well that my LLMD decided it was time to go off all abx and see how it went. That was in February of this...
Thanks, everyone! I am really happy to be where I am now with my health and my state of mind. Bars- it's my pleasure to share the good news with you, and I'm happy that may have given you a little...
So I thought I should stop in for a visit in light of the fact that this week marks one year since my first CDC positive Lyme blood test. I'm pleased to report that over the summer months I've been...
That sounds like how I feel when I'm having arrhythmias. I used to get the arrhythmias all the time during the early days of my treatment, but not so much anymore....
Thanks, I'm hoping one day without it won't make any difference but I do tend to stress out a bit when it comes to missing doses. That's probably because I went through a period in the early days of...
So yesterday I called the pharmacy to ask them to call my LLMD for a new script for my ABX since my current refill ran out (this is what the doc office asked me to do), to which the pharmacist...
Thanks! Hopefully I'll get some benefit, especially considering that this stuff isn't exactly cheap at 40 bucks for 30 capsules. Borderlyme, I'm definitely staying with once a day for a bit. Going to...
Just had an appointment with my LLMD last week and he prescribed POA Phytolens, which I had to order from Biotics Research Corp. Just received it today and took my first dose. Just wondering what I'm...
That's great to hear, congrats! I must admit, I do the same thing- when I'm feeling good, I seem to make terrible diet choices. I have a terrible weakness for all things chocolate! I haven't had a...
Thanks for the input, everyone. I am hoping it really is just a bad herx (that sounds like a weird thing to hope for!). I think this one is just scaring me a little more than normal because it is...
So I had been taking doxycycline 400mg per day for the last six months, the last two of them along with Bactrim as well. Since the summer sun made an early appearance here in NJ this year, my LLMD...
I had the craziest, most vivid dreams when I was taking Plaquenil, but since I've stopped taking it I am back to "normal" dreams. Which really means that I'm having them but without any recollection...
This is definitely true for me as well. I often wake up feeling okay only to experience a rapid deterioration by the afternoon. It seems that I feel better a little bit longer if I've gotten more...
Yazzer, I think until now I had some unchecked confidence about how quickly I could get rid of this whole nightmare. This herx is making me realize just how much this disease had infiltrated my body...
So after posting tonight, I spent some time searching around the forums and it looks like NAC can cause a herx? I didn't know it too has cyst busting capabilities. If this is true, it is highly...
So, where to begin... If any of you wish to know my story before now, you could always see my first post for the detailed backstory. But please feel free to ask questions too if you'd like. I totally...
Traveler- I'm definitely bringing those photos with me along with the photos my wife took of the little open sore which was on the top of my head. I still can't get over just how obvious it is now...
So if you've read my initial post, you're aware that I am symptomatic for Lyme and that I suspect having been bitten while camping in New England in the end of Jully. Also, I was previously bitten...
Thanks for the info about band 23 a-grace. I had bands 23 & 39 present on my first wb. Can you tell me if band 39 is also specific to b. burgdorferi?...
The more I read, and the more I see during my research of Lyme, the more I realize that it's pretty evident that Lyme is most likely the culprit for all of my symptoms. The other night I watched one...
Thanks guys, I DO have an appointment with an LLMD here in NJ, so I'm all set as far as that's concerned. I'm glad I found this forum and the people who've helped steer me in the right direction...
As I've previously posted, I have my first appointment with an LLMD here in NJ on January 3rd, but before that, I have a standing appointment to see a neurologist on December 20th. This neurologist...
I will continue to participate here, and I do intend to follow up after my appointment with the LLMD. In the meantime I'm just a little busy getting ready for the holidays, and trying my hardest to...
I'm armed with knowledge, and I have my first appointment with an LLMD on January 3rd. Very grateful to all who have commented on my introductory post, and I'm especially grateful to achievinggrace...
Great thanks. Email sent....
Well, so much for having a good day... Yesterday was awful. Headache all day which was worsened after I went to throw something in the garbage for my daughter and as I bent over my lower back...
Thanks! It was nice to be able to say yes to my 5 yr old daughter when she asked if I could play with her. One quick question- is it typical to have pain when you press on your sore muscles and/or...
Thanks to everyone for your input! I'm at work and posting from my phone so I'm not able to reply to all points at the moment, but just know that I have read everything and I have NOT lowered my...
Traveler, thanks for the info! I have begun detoxing with the ES/perox baths, and I'm also taking activated charcoal. I also decided, for one day, to decrease my doxy dosage from 400mg a day to 200mg...
Thanks, achievinggrace. That's exactly what I had felt like after finishing the doxy and then amoxicillin....it just wasn't quite enough. Now on this round of doxy, I'm just over a week into it and...
Thanks. I meant to add that the spot on my head was a pretty clear wound, with a scab. Once the scab came off the skin healed almost immediately, so I am pretty confident it's not a basal cell...
Thanks so much for your reply. You've echoed some of my own thoughts...that I am waiting all this time to see a doc who may not even know how to treat me. The other possible diagnoses seem like stabs...
Okay, I'm not great at putting stuff like this into words, but I'll take a shot at giving you the rundown of my story lately. Hopefully someone will be able to offer some advice, or even point out...