Hi Has anybody heard that lyme or babesiosis can cause a huge loss of sodium in ones body? I am going to continue to research but thought someone might know. A few months ago he needed two blood...
That's great. Please do share what happens? Thanks! I wonder if insurance would pay for it....
I am just SO glad this milestone has been reached. I feel vindicated!! I know problems remain but it is still one huge step for arthritic legs Lol Doxy can be bought on the net. ( they have given my...
The channel Oprah owns( I think it's called OWN )will have it on she always runs his shows. I would think you could watch it on the net too.. I think history was made today. I am also so glad they...
Today Dr. Phil exposed the insanity of lyme disease. I am sooooooooo grateful, my hope is that people will get their treatment and the next generation will not have the nightmare so many of us have...
I could not be MORE impressed. Thank God for Dr. Phil. And the fact that he has an employee with it clinched the case.. Validation. And the former model is getting health care too cool!! My son said...
I agree with you Kali. It has potential to do more harm than good especially if there are not any symptomatic lyme patients there. And there are SO many issues I think they are going to focus on lack...
How do we send them?...
Thanks. This very much resonates with me, I do feel guilty for not being well and sometimes I think my family could be a little more understanding. I also feel responsible for their happiness go...
I have to check the date, amnesia u know, I do want to watch it. I fear they will not put sick people on. If they were to put sick people on it would have an impact. Reccovered people do us sickies...
has anybody heard any more about the "new" test that is supposed to have a high accuracy for results? Is it showing promise? thanks...
Hi I am an old timer lymie. For quite some time I dreamed incessently, actually they were stories, and sometimes I jotted them down in the a.m. thinking I could use them to write a novel or short...
Lots of teeth pain. lost some too, fortunately not in the front. I used to have strong beautiful teeth...
Good suggestions here. Mg is king, but I would not stop the B vitamins. I find the muscle twitches, spasms, jumps whatever one calls them usually means I am going down (going to get a flare) and they...
IlIADS sponsored it. My spelling is probably way off. I can't tell you how happy I am. Have you ever thought about this? How are HIV sufferers treated? Oh well it's time to be happy. (this is a...
We are on the jumbo tron (I have no idea how to spell it.) Daytona 500 AHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH HH I am soooooooooooooooooo happy. Waited a long time for this, I just...
Hi anybody hear if lyme will be mentioned sunday? I will google it and see if i come up with anything. just lately I see a LOT of progress in getting lyme out there as a reality that has to be dealt...
Lol I take a bath oh once a month if that can't stand it. i wash every morning and every evening at the sink it can be done. If i come out of a sickathon I have to shower the sweat is absolutely non...
I "think" I pulled myself out from this disease for a two year reprieve by meditation and visualization. Even if it doesn't totally work (it did for me) ( for two years) maybe it could help? I used...
Before treatment they knew me at the ER . The rate was very very high. Finally they found I had a prolapse issue gave me atentenol or tenormin and it was like whoooooooooo. Heaven. May I ask how many...
too cool I tried a massage once but couln't relax because the therapist was blind and I felt guilty. Wonder what a swedish massage is? I make hubby rub me out when I am in dire pain. I would just...
HI i was diagnosed with lyme in 1996. I have lumps too , frankly mine are sore at times, a couple of days ago they esp one was inflamed. i recently decided to order my med records (30 bucks) anyway...
I am sorry I feel like the girl on this LMN movie who faked pregnancy for research. I have had lyme since 1996, I had multiple em's. I was not denied treatment my Dr. hated it but he wrote a script...
thanks, i googled it. I listened to the Dr.s thoughts on Lyme disease, wow. What's up with the petition? Do any of you think it will help? My comment was erased or magically disappeared. Is it true...
Who is the ISDA?...
that is so ironic My brother has Morgellons It, is I guess mold? I will check it out!! thanks...
You did "good" getting mom on doxy. I am glad the tagiment helps and the probiotic they talk of here will really help her tummy. It takes time it might help to remind your mom, You are a wonderful...
thank you for responding. I would love to know the percntage of active lyme peope that have active or very high EBV titers. It is possible chronic EBV is a red flag of another illness such as maybe...
Hi Has anyone with lyme disease ever come up as having active Epstein barr virus?...
This is good news if we had a definitive test it would certainly help so many people. The weird thing is I had my blood cultured years ago, I can not remember the year, but it was quite awhile ago....
Hi I am alymie but symptoms seem like MS. If I were to go to a neurologist what kind of tests would I expect? I have heard there is or are drugs that can slow progression of this disease. I HATE...
No they could NOT be from herxing or abx, he was not is not on abx. I think ? I read hallucinations can occur with Babesia. My mind is lymey o I could have the name wrong, but I think its Babesia....
Ijust found out today that upon discharge he was told it would be good to get his affairs in order. He says he feels no better than when he went in the hospital He seems nervous and distraught also....
Thank you so much for looking it up. plus Lyme: I was found to have this at the same time they found the Lyme.. It was cultured and I believe the culture was done in the Igenx Lab, although I am not...
Has anybody ever been diagnosed with Leptospirosis as well as lyme on a blood culture?...
My brother actually had two Drs/ arguing about his case. One said MS one said Lyme. I go by this what effect does taking antibiotics do if taken for a good 8 weeks. Another biggie is this (wont help...
It will pass. I was OCD on my house. I wanted dishes done floors vacuumed, even laundry done. These things had to be done on a day I was going out. Go figure, I also would get an idea in my head and...
I am pretty convinced its Babesia....
omg He told the dr. ms and lyme because years ago he was told he had both One Dr. said lyme his titiers were off the chart and had all the symptoms. One Dr. told him he has MS (the brain shows...
Well the good news is a hospital Dr. visited once, brother told him he had ms but knew he would not believe in lyme. He did. or he does. He can't be his Dr, Another medical person? also did not...
THANK YOU I wrote all of this down and its going in my wallet. I will let you know, I bet it is not going to be easy, doctors????...
Hi, Has anybody ever heard of late lyme causing very low hemoglobin and or internal bleeding? My brother is in the hospital with these issues along with throbbing head and blurry vision. He tested...
Hi I am an old lymie who occasionally comes to visit. My daughter was born with congnetial lyme. (from me.) My body tried to abort her. I spent half? of my pregnancy in bed with occasional hopital...
Isn't this just too awesome? I wonder though if somehow the IDSA is deleting some of them, is this possible?...
Lol I shall say this to my mom. I am amazed at how as a young girlI laughed at all of the things she liked and did. I am there now; I hope my girl sticks to her writing!!! I use reading as"treatment"...
When leg pain becomes unbearable I take darvicot (FDA pulled it but I still have some) or vicadin or tylenol3 and sleep. The leg pain comes and goes. I think once my Dr. gave me Tramadol and I found...
If swallowing pills are a problem, which they WERE with my girl we used drinkable stuff, amoxocillin....
I hope I did not make things worse. I meant to say they felt so much better when on the abx but in the beginning the herxes were a trial. Nothing like mine, Kari's were like two days? Their overall...
Wow you do sound like me. too. Not only does salty food help (for a bit) so does candy or somthing like cookies or lots of bread. it helps for maybe a half an hour. I have found if I do one thing...