Thanks Cat53, I have received treatment and been diagnosed with Lyme.(clinical dx because test was negative.) I just worry that my spinal leak is back, and that's why I have to go to the Neurologist....
I haven't posted for a long time...I am like one of those friends you only hear from if there is bad news. lol Let be briefly sum up my issues so I can get to my question: 3 years ago I was diagnosed...
Yes, my thyroid and adrenals are within normal range...well, the adrenals drop to non-existant in the afternoon and little too high at bed time. I started taking natural hormones, because my...
I do want my life back. The Doxy made me sick and hungry all of the time and I just dread it. I know worrying about weight gain shouldn't be such a concern when you look at the big picture, but I...
I took abx for (on and off) 8 months. Many times I was on four at a time. I haven't been on the iv...I don't have insurance anymore, so I am limited now. My last visit the doctor said it was up to me...
Thanks for replying. I need to decide what to do before it totally gets out of control. It's just hard to know what the right thing to do is...my doctor said I will never be totally free of it. Some...
I haven't posted for a while because I was feeling better. After three rounds of antibiotics, and 15 pounds of weight gain I wanted to be done with the treatment. Most of my symptoms were improved....
No scope yet. But I think it is that protein because it sounded like he said cow-protein, and I was like what? 2500 does sound like alot...
My foster daughter has been sick for 5 weeks. She has had a x-ray, catscan, ultrasound, stool samples, urine samples, and blood samples. She had to stay at the hospital for 6 days and has a temporary...
My nurtitionist said, no wonder you feel like death warmed over...cortisol is actually high in the morning, drops to non-existent in afternoon (I hate afternoon fatigue. ugh.), and then gets too high...
I have never had sudden weakness of my leg, but I do occasionally trip myself, or drag a foot. It will feel like I temporarily lost control of my foot, leg, or just didn't know when to lift it or...
I have gained 15 pounds in my six months of treatment. I have developed muffin top very badly...the antibiotics made me very hungry, so that is some of the reason. However I have only gained in...
I have tried using some natural gladulars in the best but they make me feel like I am percolating on the inside, really rev me up in a bad way. I am wondering about therapeutic dose of hydrocortisone....
You can develop addison's disease by taking hydryocortisone?...
I went to nutritionist today and she wants me to do another spit test to measure my hormones and cortisol. She thinks most of my problems are adrenal related...whether that is from the Lyme or not,...
I don't know if it's common but man doxy makes me so hungry! I gained 15 pounds after two rounds of doxy. Another round and I wont be able to wear any of my clothes!...
What will you do if it comes back negative? I was feeling the way you are now, and when my test came back negative, I was like well, heck, I guess it is anxiety. But fortunately my doctor said that...
Let me first say, you have a great fun sense of humor. I love the way you write your symptoms! Some of the symptoms you describe I have to and I am being treated for Lyme even with a negative test...
No I haven't been in treatment long time. I was hoping I would be close to done with. Guess not. Next week I have made an appointment with a holistic nutritionist. I am hoping she can add some...
I have been taking abx since spring, this last time was seven weeks. This was my third round of them. Springsjean, I have tried magnesium, it gives me diahrea pretty quickly. I guess I could try...
The twitching was gone. Tonight is has returned. I have been off my antibiotics for a week and a half. Should I feel glad because it means the antibiotics were helping or sad because-dang it-those...
What would be the best way to detox?...
I was recently on Riflamp...something, doxy, and flagyl. My doctor wants me to be off of the meds for a few weeks to see what symptoms come back. Meanwhile, I have decided to diflucan and candistat...
I too get the vibrating feeling. Between my fingers and on the bottom of my feet, of all the weird places. It feels like butterflies are trying to escape out of your skin. This forum is truly the...
I started drinking kombucha tea, Synergy. Yesterdays flavor was guava goddess...pretty much tea and guava.It's fermented tea that has amino acids, probiotics, and enzymes. Anyone else drinking it?...
I don't know what to tell you about the mold vs. lyme that you are wondering about. I do know that head pressure was one of my first indications that something was not right. I had a cold, as it...
So within 24 hours of stopping abx, the diahrea stopped. I am suppose to report back to my doctor tomorrow with update on it. I have been trying to keep hydrated, drinking gatorade. I am taking...
Has anyone been to this place? I just heard about it through a friend. She travels from Oregon to Arizona for the treatments and swears by them. Has anyone else? Just wondering...I live in Oregon too....
It is C-Diff test. He said that I should stop taking antibiotics for a few days to see if the issue clears itself up...if it continues when I have been off of the meds, then we will investigate the...
I called my doctor. He wants me to get a test for a certain bacteria that could be causing the pooping problem. I don't have insurance and the test will be almost 300. Stool sample test. Ugh....
Thanks, I will try Gatorade...how does it compare with vitamin water? My body is feeling better...everything is speeding through my body so my IBS symptoms are gone. The leg cramping is just painfull....
I have been taking doxy and riflampin for four weeks and I have developed charley horses in my calves when I stretch my legs out while sleeping. I have also noticed that I have to get up every night...
When I use to take Diflucan I would have a horrible herx reaction, body ache, nausuated, migraine. Recently, I have been taking diflucan every couple of weeks as I use antibiotics, to keep the yeast...
ArLyme? I totally understand what you are saying! My test came back negative, and so I doubt my diagnosis all of the time. My problem is I don't remember having the bite...but I have so many...
Borderlyme, thanks for asking. I am not quite as down as I was on that day. I think the combo of three abx is kicking my butt and the depression must have been part of that. Last night I had a...
Thank you achievinggrace and wwjd20 for your kind and considerate responses. I am taking B-12, l-theanine, and folic acid. I recently tried Focus Factor from Costco, but it gave me anxiety attack....
I have been off the Lamictal for a couple of weeks as my doctor suggested. I took my last hormone Yaz pill yesterday...so it's just cedfinir, zithro and flagyl, ambien and me.I am feeling so...
I was wondering about your headache. An orthostatic hypotension headache was the first sign that something was wrong with me. Did your headache go away after you began treatment? This headache that I...
Cute!...
When I was a kid my mom said I had the worse case of ringworm...this was probably in early 80s...it was pretty severe. Now, as I am being treated from Chronic Late stage lyme, I wonder about this...
I have been on cednifir for two and half weeks now. I feel better than I have in a long time. I feel borderline normal. The downside is the sugar craving (constant) and the yeast infection. I am...
I did think it portrayed Lyme in a negative way. It lumped it with psychological illnesses. I did appreciate that the girl said she wasn't speaking a foreign accent, that she had a speech impedient...
I don't know what to do think about the teenage girl with the foreign accent as a symptom. Any opinions?...
I know. I remember having an argument with my doctor. He could see all these new horrible neurological systems and he said it's your anxiety. But I am taking the medication you have prescribed! How...
I was told it was my anxiety too. I felt so crazy. I ended up with a psche nurse practioner and a counselor...and it hasn't helped. My doctor called me back and presented the idea of Lyme. He...
I need some suggestions to deal with my POTS symptoms. The blood pooling in my feet is getting worse. I have to elevate them several times a day! They are so purple. Sometimes they loose some feeling...
What a relief to know someone else is having it too. I started Z-pack last Thursday. Maybe that is why I am having the hardest time holding things in my hand. I put bolts and nuts in baggies for part...
I am so clumsy today. Things fly out of my hands, and I have been bumping into walls. Anyone else have these problems? My hands feel like they are someone elses that I am controlling through fog with...
Effexor is a step sister to cymbalta and comes in a cheaper generic, I think. Many places, like Walmart carry generic old meds for 4 or 5 a month. Maybe you could look into that? I think Celexa is...
It is a difficult disease to treat because it is almost like an invisible illness...nothing is wrong with you...it's all in your head. I personally was hoping for some concrete evidence that I could...