Yes.. This all sounds very familiar to me. Lyme is hard to kill off because in hides in the muscle tissue and something called biofilms which protect it from antibiotics. My LLMD also prescribed me 3...
I did IV-Rocephin for 1 month at 2grams/day dose. I noticed significant improvements after 3 weeks, unfortunately my ID doc at the time would not allow me to go beyond the 30 days and had my picc...
Wow... Yes, I had terrible neuropathy from Lyme in most of my body, including face and eyes... I had it for several years and finally after a year of antibiotics, ivig therapy and some hyperbaric...
Excellent!...
Hi Jon, I experienced many of the strange neuro symptoms that you described above with Lyme. I had buzzing sensation, twitches, numbness everywhere, strange radiating electrical sensations in my...
Traveler, Thank you for dedicating your time to helping others.... It is much appreciated. Continued success and good health. Peace&Healing, Gary...
Hi Randompains, If you want to get well, the money for the LLMD my be worth spending. I was able to submit a claim to my insurance company for the cost of my visits to the LLMD and was reimbursed...
Hi Beth, Sounds like you are on the right track... I hope everything goes well with the LLMD and you get the treatments you need to return to good health. Please keep us posted on your progress....
Hi Beth, It sounds like you have been through a lot these past few years. It is good that you have been treating with antibiotics, but it sounds like you should really be under the care of an LLMD....
I had terrible neuropathy in my entire body for 2+ years. A bad case of neuro-lyme with Bells Palsey and strange neuro sensations, numbness and tingling everywhere, including my face and eyes. After...
Hi David, I experienced severe neuropathy with balance and walking problems. My lumbar puncture indicated possible MS with 3 oligloclinal bands. My neurologist put me on IVIG therapy for 8 months...
Neuro symptoms were the last to go for me. I had severe numbness all over my body, brain fog, twitches, buzzing, balance and walking problems. One year antibiotics, eight months of IVIG and some...
Hi Michelle, Yes, I too suffered for a long time with no emotions. I had severe brain fog and was then prescribed neurontin(gabapentin) for my neuropathy. I think the combination of brain fog and...
Hi Lisa, I did have a spinal tap because of severe numbness in my entire body. I began to have balance problems and trouble walking so my Neurologist recommended the LP. My LP revealed 3 oligloclinal...
Hi Lisa, I was hospitalized and missed 6 weeks work when first sick with Lyme in 2009. I eventually returned to work, but brain fog and feeling sick all the time forced me to give up my...
Hi, I took Mepron and Ceftin together in the past and remember not feeling very well on that combination. The tasty yellow liquid (Mepron) $1500 per bottle i believe. I survived it and believe that...
Hi, Email me directly by clicking on the envelop to the left and I can give you some suggestions. Thanks! Gary...
Hi Lola11, I think most of us have all felt the way you do in dealing with this illness. I had severe neuro lyme with numbness and neuropathy (strange sensations) in most of my body. I am feeling...
Hi Lisa, I began to notice some improvements after the first 18 months. I had stopped all antibiotics and was doing ivig therapy only and noticed gradual improvements with each passing month. I am...
Hi shebalasvegas, I am from Connecticut, but visit a LLMD in New York. Email me and I can recommend 2 LLMD's in New York and 1 in Connecticut. FYI - I did 30 days IV-Rocephin, 12 months of oral...