Hi everyone - it's been a while. I haven't been doing much treatment wise lately, more focusing on just getting by and trying to be as healthy as possible. But as always without treatment my lyme...
I never did end up doing the fecal transplant - I just needed a break from "treatment" to focus more on healing... ...though...I'm actually starting to reconsider it....
Hey everyone - I've been on disability for a while now...I think I was officially declared disabled in November of 2013, but considered disabled since May 2011, and then benefits started in December...
I've been taking it on and off for years...I really like it - I find it pretty mild as far as anything that would cause symptoms/herxing/side effects are concerned... I took it in tiny amounts in a...
I so hear you mokeyho - I keep finding myself in this vicious cycle and when I look back I'm like "what's wrong with me!? Why did I ignore all of these symptoms!?" I've improved twice, and somehow,...
Hey everyone - Over the last few years I've been seeing an MD who treats Lyme with venom, herbs, and accupuncture, but no longer does any blood testing or anything, a naturopath who was really...
Hi everyone - Haven't been on here in a while - I keep getting better but slipping back! My naturopath suggested I try RIFE which I've get to do...just wondering if anyone knows of anywhere I can use...
Sorry Deejavu (and everyone)? - email glitch or something I didn't get my usual notifications about replies...or maybe I click the notify me thing - my mistake! I logged on and saw all of these...
I'm not a mod anymore - but I do think it's a good idea to suggest that the negativity here come to an end. We are all here to share our experiences and offer support to one another. There's a lot of...
Hey everyone - In trying to get to the bottom of my severe digestive issues (after 3 years) somehow I'm only now realizing that raw food is likely a big part of the problem. I have twisted intestines...
Hey everyone - Hoping this request for advice doesn't turn into a flat out venting session! I've been in a relationship for 3 years and we've had a lot of ups and downs and many, many fights over the...
Peteza – boyfriend’s parents’ house isn’t an option – they already have way too many people living in that house. This was my very last option – my disability payments are too low to even afford to...
Hey everyone... I just need to vent/feel understood I guess. My lyme treatment was going great - stopped herxing with my venom injections - doc's energy testing indicated that it's pretty well under...
Hey everyone - I know steroids are basically considered a no-no with Lyme...in fact mine seemed to have flared up after a course of prednisone years ago... ...but I'm in a tough spot. I have...
Just a quick thought - I don't think this applies to produce but you could look into Thrive Market - I considered joining but never could decide if it was worth it for me - it's something like $60 a...
I can't give you answers, but prayers - you got it!!! Although it's a long process usually - have you tried applying for disability? You mention God - are you a member of a church? Is there some way...
You can do this!! Yes it will be tough, but you will come out the other side a better person for it. Being sick like this changes everyone for the better (even though it changes us for the worse...
This one's also a supermoon - so expect super symptoms? I'll be getting together with my close friends and family for an early birthday celebration this full moon - they've been warned of my...
I like zeolite (I use zeoforce) - it's a really good source. Then there's also good old fashioned fiber in the diet!...
My naturopath just put me on rhodiola - can't report much back yet but so far so good - I'm slowly coming out of a pretty miserable depression with that, a couple homeopathics for relieve emotional...
Diffusing thieves oil if you have a diffuser, or I guess just putting a dab below your nose could help... I'm not 100% sure if it works on mold toxins/which mold toxins it works on, but I've been...
Congratulations! I've been out of work for years...no idea what I'm going to do when I get back to work but hoping I can get back to work soon as well! Bet you never thought you'd be grateful to have...
Don't drive yourself crazy - the stress of it will be worse than any diet change will be good. Do what you can at the pace that you can. In general, yeah, the healthiest diet you can create for...
Lymie girl- I had that genetic test done years ago... I forget which one I have but something is bad. Cd3764- I think volunteering is a great idea. I keep wanting to but I don't really have it in me...
The naturopath gave me rhodiola and a couple of emotion/relaxation homeopathics. He is also a shaman it turns out so when he asked about recurring dreams we got into a conversation about relying on...
Hey everyone - It's been an interesting week. Monday I went to my first naturopath appointment - today I went to my first appointment with an energy healer. Taking my treatment in a different...
I came on here today to write a post about how unsupportive one family member has been today! This morning my mom's dog went number 2 all over my carpet (I live downstairs). I scrubbed it clean for...
Good read! If only I could get my PCP to read it! Took me 6 months to get her to finally do the correct blood test to prove that she never should've changed my dose and that I've been hyperthyroid...
Anyone have any side effects with the charcoal/what brands do you use? I remember trying to decide on a binder a while back and I think the problem with charcoal that I heard of was that a lot of...
You know I never tried alka seltzer - I remember buying it years ago for herxing and just never used it for some reason. I'll give it a try and start adding the lemon water again :) I've gotten so...
Just be careful with the regular niacin - I started with way too high of a dose and the flush was pretty unbearable - sat in the ER parking lot that night just in case because I was so scared of it!...
Hey everyone - I'm starting to think my symptoms these days are more the results of toxins than bacteria. I do baths (although not lately because I've been sweating like crazy by my parents' pool!!)...
I'm so sorry! I had the cops called on me in the past for just the crazy amount of screaming going on during episodes like this - was lucky enough not to have things get as terrible as they got for...
Trav - I'm not sure what to believe. Part of me worries I'm just too stubborn and afraid to have another autoimmune disease. I don't want to believe that there's something wrong with my immune...
It's not so much the forgetfulness that bothers me but rather the fact that she makes her treatment decisions based on incorrect memories of what diseases I have what treatments I've tried what my...
Hey everyone - So I had another doctor visit that ended (or pretty much started) in tears. I've been at my treatment for over a year and I'm not making the progress we think I should be...basically...
Low energy, pain (specifically in my SI joint and all the "butt muscles" around it - whole leg has gotten very weak but getting better with PT), and anxiety. I think bartonella might be kicking my...
Hey everyone - I've been seeing an alternative LLMD for a year+ now...good results overall but SLOW! The mainstay of my lyme treatment has been bee venom and what to me seems like an incredibly small...
I had one a few months ago...I did have a slight fever afterwards, but no complications besides it aggravating my GI issues...but I have crohn's (supposedly) so it's probably a little different in my...
Thanks everyone - it's baffling to me that after everything I've gone through (I even lived with my sister for 3 months when I was really sick with lyme) she still doesn't seem to "get" any of this....
I've never been diagnosed, but I studied/worked in the field of psychology and I'm pretty confident I'd be diagnosed with PTSD (if I wasn't too traumatized to walk through a doctor's office and talk...
Hey everyone - I'm a little frazzled so sorry if I already asked this question - my nephew got bitten twice, has 2 positive bands and 4 swollen lymph nodes. His second pediatrician is refusing to...
Maybe try doing a detox bath before bed, that way it might get rid of some of the herxy stuff keeping you up and relax your body and prepare it better for sleep? I used hops to ween myself off of...
Hey everyone - just thought I'd share a really positive experience. I just got back from vacation in North Carolina - and I did vacation like a champ! I did NOT feel like a sick person for a whole...
I got stuck living in a moldy apartment for a year last year (after living in a moldy house with my parents my whole life!) ...with the use of a good air purifier and/or a thieves oil and lemongrass...
Interesting story -thanks for the tip! It's pretty cool to hear that it was one of your doctors that suggested lyme!...
Thanks everyone - somehow I have yet to master the internal and external battle I go through with these doctors! I don't suspect that anyone is going to cancel the rest of their patients for the day,...
Hey everyone - I had this idea that as a new way to shield myself from doctors' interrogations and refusal to take my disease seriously, I'd bring in a packet to each new doctor about all the...
Hey everyone...I think I mentioned a few weeks ago that my nephew got bitten and his pediatrician refused to give him antibiotics...my sister insisted on the western blot and 2 bands came back...
Hey everyone... I'm tired of settling for a primary doctor who laughs at my disease...unfortunately I'm in an HMO which means I have to see my current horrendously ignorant (about everything) PCP...