The surgery hurt, but I was happy my doctor let me do it awake and non-sedated........another first for the OR team. I have not had a biopsy. I suspect that the reason my pacemaker is pacing the...
Right now I'm on Biaxin, CSA, A-BART, A-L, Colloidal Silver, Nystatin, L-Carnitine, CoQ10, TCM herbs, and my heart and BP drugs. I change things around very often and have to go off and on things to...
So I've gotten several emails from people here asking how I am. Unfortunately I 'm not MIA because of doing better. I'm still as symptomatic as I was, if not worse than 3 years ago when I first...
Thanks, I haven't been doing well. I wish I could say I'm not around because I'm in remission or cured but unfortunately that's not the case. I'm actually getting worse. The cardiologist I go to...
Yes. I have continuously treated Lyme with antibiotics (oral) first and now herbs in very high/strong doses for the past 3 years. I have been diagnosed by many LLMD's based on testing for Lyme and...
I see this post is old. Not sure if you're still around Spaztick. I have recently developed sinus bradycardia 3 years into treated infection. Mine gets down into the 30's at times. I'm female in my...
It is okay under 30mg (hydrocortisone) which would be a physiological replacement if you are deficient. Fludrocortisone is similar. It works for people with low aldosterone to help you retain salt...
I faint frequently also and had to see a mainstream cardiologist for it. My BP runs 85/45 right before I faint and it's from autonomic nervous system damage. I take a medication called Florinef as...
I have POTS symptoms (very low bp, fainting, fast heart rate). In my case it didn't resolve with several years of Lyme treatment. My LLMD wasn't comfortable treating me because of the heart...
I have Lyme and also a ton of heart palpitations, dizziness, fainting or near fainting, lightheadedness, complete exercise intolerance, etc. I'm 5'10 120lbs., in my 20's with no other known medical...
I was having an irregular heartbeat at a standard appointment a few weeks ago and my PCP thought it was A-fib so I was sent for an EKG. The EKG was about an hour or two later and my heart was much...
Hi, A doctor thinks he detected afib in me the other day while at a routine appointment. I was having an irregular heartbeat which is something that I've had often for the past several years along...
Yes there are some that take insurance but none of the top name LLMD's as far as I know. Usually insurance won't pay for LLMD's because the treatment is considered experimental....
That is without a doubt a positive test. The good news is since you had such a strong positive result, it's possible that at least your immune system is attempting to fight it off. Definitely find a...
I would absolutely take the antibiotics that were offered. There is little risk involved IMO. I would also consider consulting with a LLMD to see if further treatment will be needed....
There are so many things you could look into. I don't know what you could specifically do for your pain. I have not found anything that helps significantly. I tend to use advil and turmeric/curcumin...
You are definitely positive. Any LLMD will consider the Lyme-specific bands that you are showing activity on (34 and 83-93). Your CD57 is VERY low. I have a similarly low one. Have you been sick a...
I was on nothing the first time and tested CDC positive. The second time, 2 years later, I was on many abx including Flagyl and tested only Igenex IgG positive. IgM was negative. Same time of day....
I can't take it. My side effect is extreme anxiety and restlessness....
I went back on Benadryl because I started to itch all over. No hives, but I'm still really itchy even 5 days after the sting. I think I may need to add zyrtec also....
This sting was on Monday. It looks slightly better today but I feel really "off." Very weak, tired and dizzy. I'm way off Benadryl now. I haven't taken it in about 36 hours. Although I can't tell if...
I am in a very rural area so any homeopathic I have to order online unfortunately. I'm thinking of doubling the benadryl or trying something else like zyrtec....
Anxiety is a definite herx symptom for me also. Both biaxin and Plaquenil set it off when I first started them. It does end for me but it's tough to get through....
The picture is on my blog www.lymepie.blogspot.com I don't know how to post pics here. I got stung on Monday and the swelling started Wednesday. I called a doctor and they said benadryl and if it...
I took Rifampin for over a year. It lowered my liver enzymes which I was having problems with all along. I had a bad herx when I first started it and then no issues taking it. I did not have any...
The CD57 isn't a reliable marker for everyone. Some people with Lyme have high numbers and are still very sick. It used to be thought that a low number was associated with chronic Lyme and now, some...
When I've had candida that badly, the pills of Nystatin don't do anything to help. I have to request the liquid suspension and it works within 1-2 uses drastically for me....
How about minocycline? Do you think that would be an option? If you have chronic Lyme, unfortunately I think it is probably going to take a while to enter remission with any form of treatment. For...
I had the exact same reaction when I first started it. I was worried it was an allergy but I think it was a herx/candida. My doctor had me go off for a few days and take Nystatin. I restarted on my...
I have and usually for me it's candida overgrowth in the throat which would be very likely with Flagyl. It could also be an allergic reaction though so you should rule that out and check with your...
As far as I know there haven't been any cases of transmission from saliva. That being said, the bacteria has been isolated in breast milk, urine, saliva, semen, etc. I personally wouldn't take the...
I have had issues with depression and anxiety very severely and they were not typical symptoms for me until Lyme hit. B12 shots help me tremendously with both symptoms....
No, and I'm on many different antibiotics. I used to have it severely when I first started though. For some reason, now I can take massive doses and not have serious issues with it. Every once in a...
I've been on Flagyl fairly long-term (and not pulsed). I haven't had any bad reactions to it. I had some herxing, but I've herxed more on other meds. I actually had a week of very noticeable...
I've taken all of those. For me the toughest to handle were Omnicef, and Flagyl. I take Bactrim DS which has Septra in it. That was pretty tough to start also. My advice is to start one at a time and...
Some meds are based on weight but standard is 200mg of Mino because even going above that causes a lot of dizziness. Even Dr. H. in NY suggests 200mg and he's pretty aggressive. I've been on Mino for...
That dosage is extremely high. I have never heard of anyone using that much. Are you sure it's not an error? The typical dose is 200mg per day....
I think it's fairly uncommon to actually feel liver pain. I know when my enzymes were elevated and I was having a lot of inflammation, I actually felt better than usual. Gallbladder pain is common to...
It could also be from sun exposure. Have you gone outside without a hat on? When I was on doxy I had extreme pain and heat on my hands. The same could happen to your scalp if exposed to the sun....
It's normal for me to get new symptoms during herxing. The neuropathy you would want to mention to your doctor if you are on Flagyl or Tinidazole as that can be a side effect of those meds which can...
Thanks. I'm on a very low dose, (one of the lowest possible) so I think it would be unusual for it to be from an overdose, but I will definitely tell the office about it. I was concerned that it...
Hi, I'm new here and new to hypothyroidism. I have had Lyme disease and co-infections long-term and recently was tested where my TSH came back at 3.4 (normal according to the range) Free T3 2.8 and...
I have had times where I am completely depressed and want to give up completely. B12 shots help me immensely. I do them myself and they can completely reverse my mood. Without them, I don't know...
I'm using serrapeptase and Flagyl....
I'm going to start it tomorrow. I'm kind of worried because I'm already having really bad heart palpitations this week for no reason. Hopefully it doesn't increase them. I have heard that many have...
Anyone have any experience with Armour? Positive or negative. I'm about to start it. My thyroid blood work is technically in the "normal" range but not at the optimal level....
Yes, I've been on Rifampin for almost a full year. 90% of the time I take it on an empty stomach (1 hour before food). My stomach is unusually tough though so your experience may be different.........
I try to take Rifampin on an empty stomach. I've done that long-term. Serrapeptase also. I take that an hour before Rifampin also on an empty stomach. Nystatin can be taken with antibiotics....
I would also second the idea of seeing a llmd, and or alternative medicine doctor if you have suspicions of Bart. I treat with Rifampin as well. I have taken it long-term and I also had exposure to...
I'm on a lot at once too. I've never done a cefdinir and doxy simultaneously. Have you tried Bactrim DS ever? That might be something to look into....