Thanks to both of you. Last time I had 100% success with just 200mg doxy/day (and a short time on flagyl too), no herbs only probiotics. So, I plan to give the same a go this time too. I'm going to...
Hi, Some of you may remember me from a few years ago when I was a regular. I was ill for years before diagnosis then on antibiotics for 1.5 yeasts before making a full recovery. I went on to have a...
I will do Traveler! :-) Katebirch - most people do get better! Its just hard to think about having been ill, so many people try to forget and move on hence the lack of success stories. In fact, most...
Thanks everyone :o) And, Traveler, so good to hear you are well now too... that's made my day... so glad I came back to share!...
Hi everyone, It's been a while, but I'm back to share my good news. Seven weeks ago I gave birth to a gorgeous wee boy, who is happy and healthy - just like me! It's been a long journey towards...
Hi everyone, I used to be a regular here and thought it was about time I came back to update you all, and spread a bit of hope! I was very sick with lyme for a few years. My symptoms started a good...
Hi Casey, Wow - I have been so busy being well that I almost forgot this forum exists! The auto message saying there had been another post is certainly helpful! I went back on antibiotics for another...
Hi folks, Thought it might be helpful for me to come back to give an update having been off antibiotics for just over four months now. And, well, I feel pretty great thank goodness.... Just to update...
Hi there, I was on Tinidazole 500mg twice a day in combination with doxycycline 200mg twice a day for numerous months - seemed to be a fantastic combination. However, I know some doctors prefer to...
Hey - my gran used to say that all the best people are slightly mad. So, since I'm feeling back to myself perhaps that does mean I've lost my mind again? If so, I'm perfectly happy with that. It's...
Sorry Martha, I have to entirely disagree with you there. If I hadn't had antibiotics for over a year I would still be ill now. It has made me 99% better, and back to a fully functioning 'normal'...
Hi Justme, I am really not convinced that all the strict diet advice is sensible. I can see the point of keeping sugar levels low if you have candida, but other than that I don't see why you can't...
Hi Kern, I was on antibiotics for a year before I came off the first time. Within a week my symptoms got worse, and by the third week I was having really bad migraine-like headaches, bad nerve pain,...
Hi HopeOn12, I was in a very similar situation a couple of years ago, and I stuggled with the same choices. It's good to hear that you have a boss who is supportive enough to give you lots of options...
Thanks flowergal :o)...
I'm not sure it's sensible to treat for a disease your daughter may not have. If she isn't very sick right now it might be better to wait for the babs test results first, and these tests are supposed...
Hi, I might be wrong, but as far as I know it is almost impossible to culture lyme disease in a lab unless it is taken directly from a skin lesion. I am surprised a lyme expert would do such a test....
Hi folks, Thanks for lots of interesting replies. It seems there are lots of opinions on this. I personally don't feel that being on any lyme medication long term (pharmaceutical or herbal) without...
Hi everyone, I have always read advice to keep treating lyme until all symptoms disappear - usually then adding on another couple of months for good measure. But, I was wondering how sensible this is...
Hee hee hee - I'm a rebel.... I had diet cola, tea, dairy, gluten and all sorts of other supposedly 'bad' foods throughout my treatment. I followed a low sugar diet to help prevent candida, but ate...
Hi PMM, I have been in a very similar situation to you in terms of worrying about relapse. I have been treated with antibiotics only (no herbals) for neural lyme. I was on antibiotics for just over a...
Hi Amy, I'm also a lymie (perhaps ex-lymie; waiting to see how I do off antibiotics!) in the UK and am 30 years old too and used to be perfectly fit and healthy until a few years ago. I work...
I suppose it can't do any harm, although I doubt the NHS will really care... Will let you all know how it goes! If enough of us keep complaining then maybe something will change in the end!...
Hi Keke99, Just wanted to add that many people find their lyme first flares up during a period of stress (mental or physical). It can sit in your body not doing much, even for years, then suddenly...
Hi folks, It's been a couple of weeks since I saw 'the consultant from hell' (NHS ID doctor), who amongst other things implied not only me but also my husband, GP and previous consultant were crazy,...
Hi Deejavu- I was merely pointing out that people themselves cannot be resistant to antibiotics, but bacteria can become resistant to drugs (antibiotics or herbals). This makes a massive everyday...
Sorry - I meant to mention that, for example, you need to take doxy at least three hours after any supplement with iron in it, and two hours after any magnesium, calcium or antacids...
Hi PennyPru, You would need to check that each herb you plan to take has a safe interaction (or no interaction) with each other individual herb and drug you are taking. Lots of herbs and drugs are...
Hi Educate Yourself, I think there is a huge amount of misunderstanding about what antibiotic resistance means. An individual human cannot become resistant to antibiotics, as antibiotics do not...
Sorry - I hadn't realised that fundraising for charity wasn't allowed (I thought this would be ok for a lyme disease charity). Feel free to delete the thread if you would prefer :o)...
Hi folks, Assuming I don't (touch wood) get too ill in the interim, I will be running/jogging/crawling my way around a 10k run in October to raise money for BADA-UK. When I first got diagnosed,...
I must say I do get worried, but I love the outdoors (and also work in woodlands), and would never change that. You only live once, and I guess I'll just have to keep the occasional panic under...
Welcome to the site! I can sympathise with you on the catch 22 front, as the tests are just not very accurate. People who have had lyme for a long time often test negative on standard tests, and it...
I've both gained and lost weight over the last few years. Before I got very sick I was increasingly losing my appetite - rarely hungry apart from sometimes craving fat/sugar (sugar seemed to make my...
I think it's worth remembering that the presence of lyme in semen does NOT automatically mean anything in terms of infection. Most infections that people have are found in all body tissues, for...
Hi Wildgarden (lovely name!), Sorry to hear about your recent tests, and I hope you and your daughter get well soon. Lyme can be found in all body fluids, but as far as I understand it can only...
Before diagnosis I also put on a bit of weight. I had been 8 1/2 stone for years, and gradually crept up to about nine and a half. That might not sound a big weight gain, by the wierd thing was I was...
Hi Mrs Aristotle, You are in good company here - I'm another UK patient (although currently battling with the NHS). Lyme diagnosis is not just about the test results, as people with long-term lyme...
Traveler - not sure yet. This is my attempt to get proper treatment via the National Health Service now my consultant has retired. The first infectious disease doctor I saw was lovely and mentioned...
Thanks folks, I will have a look through all those links. So far the only peer reviewed journal article I can find supporting long term antitiotics is the recent monkey studies. I will keep looking...
So, my new consultant says there is no evidence for the benefits of long-term antibiotic use for lyme. Given I have little choice but to work with this woman for now, can anyone recommend some peer...
The one-sided pain I get (right hand side) appears to be linked to my nerve pathways. I always got bad headaches on one main spot, and then numbness and/or pain through my cheek, jaw, shoulder, arm...
Hi Aquaholical, Love the list! It's inspiring to see how much you plan to pack in given how much pain you are in... Let us all know how you get on! Good luck, Kirsty...
Hi folks, I recently came across the concept of a bucket list again, and decided that this is just the thing to keep me inspired this year. A bucket list was traditionally all the exciting things you...
I have terrible discolouration on my teeth, especially on the inside of my front teeth, but also some of the gaps between teeth at the front - it is definitely the doxy! I was scared they would be...
Hmmm... My actual list of meds is approx: - 1 month 200mg Doxy per day - 7 months 400mg Doxy per day - 2 months other meds (to avoid sun sensitivity over the summer but they didn't work and I can't...
Hi there, I have been taking 200mg Doxy plus 500mg Tinidazole twice a day for the past ~6months. This combo has been great for me, and it seems to be a common combo. I haven't heard about any reasons...
There are actually three types of UV - A, B and C (although C doesn't reach earth). Many products only filter out UVB because these are what tend to cause sunburn, but it is the UVA that causes...
Hiya, Would it be possible to return to work part-time, or on reduced hours on a doctors letter? This might be a better solution than going on long-term sick - keeping your brain active and taking...
Hi Korissa, I don' think it's the heat, but rather the UVA light causing a chemical reaction. This is why being in a hot house/bath etc is ok, but light (even with a cold breeze) is bad. Suncream...