I'm so thrilled for you. Yes, you go back to a real life. A disease-free life. Thank God you're better, Grace!...
Which part of Cali. are you in?...
I had to "get fixed" too a dozen years ago - pretty sure that was lyme-related, so no menstrual flares. But, I DO have worsened symptoms with the new moon. I'm not treating the lyme yet - I also want...
Yep. Mine's Gardnerella. Had it off and on since March (that I know of). I'm really sorry for your loss....
Cute little saying on Lyme forums: Mayo isn't good for anything but a sammich. :) Another way of saying - don't waste time and money going there.:)...
Dani07, If you can get to see an ILADS doctor, it's probably a good idea to go there. LLMD simply stands for Lyme Literate doctor. They may, or may not, be associated with ILADS which is the...
I get rib pain all the time on the right side. Much of the time, it's just good old inflammation. Have you tried inflammation remedies like Turmeric, green stuff, etc? I also have liver/gallbladder...
Sorry bars, didn't mean to ignore your question. Totally understand the indecisiveness thing. Personally, I think it hinges on how effective you believe the "bird in the hand" will be. If you think...
I agree. I think if there's any true health care reform in this country, it should include making insurance companies pay for any kind of health care the insured chooses. It's our bodies, and we...
Hi and welcome! A bullseye rash is usually considered to be a positive diagnosis for Lyme. Please take pictures of it! You may be told later that you do not have Lyme (the blood tests are very...
Wonderful! So happy for you! I've read on Jernigan's website about the Life Vessel, but have no idea what it is. I'll be eager to hear your report on that one, to clear up the mystery :) Have a great...
After reading all the awful ID doc stories, I just keep laughing to myself about the one and only ID doc I ever went to. I must be the ONLY person who went to an ID doc who saw Lyme everywhere he...
Garden of Life "Primal Defense" is a pretty good probiotic. However, you gotta start slow and ramp up. Just start with one on an empty stomach. I take one in the morning and wait an hour before...
Yeah. Don't feel bad. We all have these panic attacks. I don't like to be around people either when I have mine. I try to hang in there for my family, but I've had times when I just had to get away....
I don't know of any docs in your area, but you can get referrals from ilads.org or from turnthecorner.org. You might want to take pictures of your rash to document it. Lots of regular MDs don't know...
Sounds like you could use a Lyme Literate Doctor (LLMD). You can go to turnthecorner.org or ilads.ord to get referrals. You can also post the state you're living in on the forum here and somebody...
Post any time. The forums are great for all kinds of topics. Just venting can be helpful, even healing sometimes. It's interesting to track people's progress as we all journey toward optimal health....
My thanks too, Nan. I'm glad to hear it's so encouraging for you. Please let us know how you feel. I'm a bit of a skeptic on ALL the protocols and clinics, but Hansa does have me tempted. I'd be very...
Maybe the video "Under Our Skin" would help. It certainly highlights the lack of information that most mainstream doctors have and the mistreatment and undertreatment that most Lyme patients receive....
Steve Buhner's "Healing Lyme". He's read all the literature and condensed it into his book. He keeps his "voice" pretty unbiased. Lots of excellent information, and a good place to start learning...
First - welcome to the forum. I hope you find much useful information here which will aid in your healing journey. Second - not many people recommend the DIY approach when it comes to healing Lyme....
wobenzym, turmeric...
Hudson valley is the middle of a Lyme controversy hotspot right now. There are several LLMDs currently being attacked and in danger of losing their licenses right now. So, it might be a little...
One other thing. I'm not sure about the girl's specific health problems, but Lyme can be put into remission, and people can have normal life spans. If you read stories on the forums, you'll see that...
Any good masticating juicer will usually make nut butter.....
B - Blueberries 1 c. Frozen in a bowl, sprinkle with Stevia - microwave to thaw and put good quality vanilla-flavored whey on top. Mix and yummy!...
Yes please! Hansa Center is very interesting to me. Like Denise, I'm considering going there if the other (cheaper) stuff I try first doesn't work. I hope it works for you and that you STAY healed!...
My understanding is that there is a connection btw LD and EBV. Mostly because LD weakens the body and allows the EBV to come in and get a foothold. In this sense, EBV might be considered a...
MV, Just remembered. You can look up Klinghardt's protocol on betterhealthguy.com. I skimmed it the other day and he puts a lot of kid dosages in it (he uses mostly non-pharmaceuticals). Also, he's...
No expert - especially with kids (both of mine had milder issues, but don't know if it's Lyme). As far as a gentle, non-toxic approach goes, Buhner's is probably pretty good, but I've read a lot of...
i'm in the camp that says that, unless you have problems with it, a little red meat once in a while isn't going to hurt you. So, chow down on the roast if you want to! I'd be more worried about the...
Marthas Vineyard - did your two friends maybe go to the Hansa Center in Wichita, KS (Dr. Jernigan)?...
Yes. I've struggled with weight gain (and loss) for no particular reason. I've gotten quite heavy, and quite thin - with either disproportionate, or no, changes in diet/exercise. After an abdominal...
Jen, What did you do to detox? I'm currently detoxing before starting the Jernigan at-home protocol. I plan to detox for 2-4 weeks before starting the protocol, and continuing all the way thru, and...
If you turn on PM (private messaging) in your profile (not sure exactly where), there is a Lyme doc not too far from Pittsburgh....
Jen, Good for you! I'm so happy you went to your appointment today! If you have a practioner who really knows Lyme, I think you'll have a good shot at recovery. Don't discount the impact that herbs...
Jen, Please keep your appointment! You're young and you have a good chance of getting your health back. Also, like others have mentioned, mental issues like depression and anxiety are part of Lyme....
Yahoo Traveler! Many happy dances for you! May you continue to improve until all of your symptoms are gone, and may you stay healthy the rest of your life....
hi God lives, Not a doctor, but my understanding from reading is that the bullseye rash is proof positive of Lyme and that LLMD's often won't bother with any other testing if you've had one... I'm...
Took it for a week in June for a bacterial infection. Didn't have any side effects from it, but had horrible cognitive problems, fatigue, pain, etc. a few weeks after taking it....
What I've read says that the bullseye rash IS the definitive test for Lyme. In other words, if you got a bullseye rash, you have Lyme, period. But, I'm no medical practitioner. That's just what I've...
First, I posted this on another forum, so my apologies to anyone who might have read it there as well. Second, about 2.5 years ago a ND in Oregon ran some tests on me and sent my blood to a couple...
Thank you Tala3. I'm concerned about the money aspect as well. Not necessarily looking for an "instant cure". Just effective diagnosis and treatment. I've spent enough of my family's time, money and...
PrayingForAMiracle, I hope you don't mind me asking. Did you do the at home protocol, or did you actually go the the Hansa center? This whole decision-making thing is really hard for me, and I get...
Thanks to everyone for your input. Deejavu - or anyone else for that matter - what would be the advantages/disadvantages of going to the Hansa center versus just doing the at-home protocol?...
I've gotten several referrals and I'm trying to go thru them to figure out who to see (yeah, right - like my brain's really good with decision-making lol). Anyway, one of the options is going to KC...
Where are you in Arkansas, and how far are you able to drive for a practitioner? (or maybe you have one already). I've dealt with a "mystery illness" for the better part of 25 years. I suspect it's...
Thanks achievinggrace!...
Ok. We live in the sticks. So "in the area" means within a 3-4 hour drive - I'd like to be able to make it there and back in the same day:) However, I'll gladly drive further for a really good...
Thank you to everyone who replied to my post. I'm grateful to you for taking the time to help me sort this out. I suppose I'm just getting old and skeptical. After all these years of seeking help...