I has Lyme for 2 years before being diagnosed, by then I had neurological symptoms. I went to a lyme clinic but it's 2.5 hours away and I had to pay in cash. I have no money now as I lost my job and...
Hi everyone. No offense, but I haven't been here in awhile, but that was a good thing for me :) I thought I was cured from Lyme. Start of 2013 was when my last consistent symptoms were. Then I went...
Garfield...thank you for the advice....I'm looking up that supplement right now!!...
Thank you Shabbychic, Summer and Springsjean, Sometimes I just feel like I have my once a month appointment with my LLMD who understands me and actually cares about me and then everyone else the rest...
Hey everyone, I haven't been on here in awhile! I was dianosed with Lyme in September and started treatment late in September with Doxy, Ceftin and then 2 weeks of flagyl at the end of each 4 week...
Hey Everyone, My LLMD office just called and let me know they had a cancellation, so I can get in tomorrow instead of in two weeks to get my test results! Is it sad that I feel like a kid on...
Very well put. What are the chances that this is in ALL of our heads and they're the SAME symptoms. I often doubt myself as well, but now I will think of your post :)...
Hopeon12, I wanted to tell you that I had a similar conversation with my boss about 1 month ago. However, he requested that I take a medical leave of absence because of the unpredictability. I, like...
Thanks Traveler :)...
Hey Shabbychic, You're def. not the only one with ear symptoms! Good thing this forum only requires sight! :) I actually was going to post over the weekend because of ear problems. My ear was...
I'm the opposite: I've lost 20 pounds since getting sick and am still losing. It scares me because I'm at a healthy BMI, so I'm worried that I won't stop losing when I get to mid- healthy BMI range...
Yes I'm seeing an LLMD at a clinic where they specialize in Lyme disease, including late stage and chronic....
Hi everyone... So, I'm still waiting for my Igenex test results. This is the worst part: as of tomorrow, it will be 4 weeks. The dr. office just called me with a billing issue for the labs, so I know...
Hi! I just wanted to let you know that if he told you that he took the condom off on purpose, you can sue him and win for a WHOLE bunch of stuff. Especially if he knew he had HIV and risked passing...
Decfire, Your story and symptoms are sooo similar to my own. I have seen pretty much every specialist there is to see at certain points. One time, I thought about how for someone my age, so young, to...
Thanks for sharing flowergal! This gives me hope of hitting the gym again too! Congratulations on your great progress!...
Hi Decfire, I know how you feel! I'm waiting for my results from Igenex as well. I have two weeks until they're supposed to come back and then two more weeks after that to get into the Dr. to...
you're right Traveler...money rules! If docs started prescribing herbal stuff that took the place of man-made pharmaceuticals, pharmaceutical companies would lose money BIG TIME. They'll never let...
Guitargal, I know exactly how you feel! Over the years, I have seen so many injustices in the medical care system, through state government and other messes I've been in because of Lyme. I have a lot...
Thanks guys, I'm working on detoxing! I feel a little better today, so I think that means my body's adjusting to 10 drops, but I'm going to wait until Tuesday to start upping the dosage a little....
Hey everyone, I am waiting for my Igenex test results still, but in the meantime, my LLMD put me on Samento and Banderol, increasing the dosage by one drop per dose per day. Right now I am on 10...
Has anyone else had low numbers with the MCV and MCH and been told that it has to do with Lyme? Or even why those numbers are low? Thanks!...
Hi again WWJD20, Thanks for your response! I'm up to 18 drops of Samento and 18 drops of Banderol per day. I split them up, so 9 each in the AM and 9 each in the PM. I'm working my way up to 30 drops...
Yep, I'm now gluten and dairy-free as well!...
Today I woke up feeling generally not well, and have had extreme fatigue all day. Could that be a herx reaction or is that just a regular Lyme symptom and how do you tell the difference? Thanks!...
Hi everyone! Please excuse me if I ramble or am unclear...I'm a little brainfoggy today. I've been reading a lot about Herxing because I started to take Samento and Banderol and I was preparing in...
I am on a leave of absence, but doing minimal work from home. However, I love my job, so I would never quit, and my boss is very caring, understanding and flexible. I know not everyone has a boss...
Hey! I haven't had the light thing either, but have definitely had the round and black thing out of the corner of my eye. I always look because I swear something's there...it makes me think I live in...
Hi! If this is an internet article, can you please post the link? Thanks!...
Hi everyone, I had a meeting with my boss yesterday. I had been at work very sporadically. I tried for a year to ignore everything and just keep pushing through it...cause I'm a workaholic,...
Traveler- about your suggestion to find a Lyme literate therapist: that would certainly be ideal. However, I have government-funded health insurance and can only go to providers that accept such...
Hi marigold33! I'm not happy that you have Lyme disease, but I'm happy that you finally have a diagnosis. I'm still waiting for an official diagnosis, and I know how frustrating the road to even...
WWJD20: Thank you for the input on your symptoms and for informing me of the search! I didn't even realize there was a search, so that's fantastic! I have also been doing a TON of reading. On days...
Hi Scarlet Grace and achievinggrace, Thank you for the encouragement to see a therapist. It's actually something I've already thought about and decided that it would help me think about how to deal...
WWJD20: What effects did you have and when did you start to feel them? What kind of intensity? Thanks!...
I was told to take one drop of the samento, then wait 15 minutes and take one drop of the banderol. This all has to be 45 and then 30 minutes before eating a meal. Then I'll repeat that one more time...
Hi everyone! I was just prescribed Samento and Banderol today. Can anyone tell me their experiences with these? I will be taking no other medications for lyme disease...no abx yet and no other...
Hi everyone! So I posted yesterday talking about how scared I was today to go to my first appointment with a new LLMD. Well...at first I was really nervous all morning. I am also having a bad pain...
Ugh! It's sad that it feels like you can't let doctors know of any traumatic event in your past..ever...or they'll blame all future symptoms of everything on said traumatic event. I had the same...
Tickssuk, Springsjean, Summer3, jwjjtt (Jennifer)...THANK YOU SO MUCH. I decided to check back to see if there were any new posts before I left for my appointment. You cannot know (or maybe you can,...
HI twentyseventicks, I read your posts and, despite our age(which is most definitely only a number) difference (I am 26 years old), I felt like I could have written the exact same thing. I have...
That's sooo great :) I hope to celebrate with you all one day too...and get back on the treadmill! Keep going on the road to health!...
Hi! I'm not sure about the red potatoes question, but for some variety... If you go to www.sparkrecipes.com, they have a filters to find recipes. One of the filters is a "dietary" for restrictions...
Thank you for pointing me to the "new to lyme" thread. Great info! It's good to hear that I am not alone in the mental health issues realm. I hate that society still has such a stigma surrounding...
Hi...this is not my first time reading posts, but it is my first time posting. I've been sick for over a year continuously, but many bouts of illness over the years. I'm a 26 year old woman. Over...