This is exactly why I switched to tinctures, etc. I found that with the eleventy-billion pills I was taking every day, and the lack of good digestion so common with Lyme peeps I *knew* I was...
Liquids. :) I take ALL my herbs in tincture form. I take a powdered antioxidant vitamin formula mixed with water, and powdered vit c. I take very few pills anymore because I found my digestion was...
I had Lyme when I was pg...but didn't know it. Nursed all kids for at least a year, youngest for almost 2...Had been infected for the first time many years earlier. All 3 of my kids had positive...
WHAT?!?!?! Doxy does NOT cost that much out of pocket. Not sure where you live, but in MA many Price CHopper grocery stores do FREE antibiotics. CHeck the Walmart, and grocery stores in your area as...
Kids are resiliant. :) What they remember most about their chilodhood is being loved and feeling safe. You can provide that from the couch. When you feel ok, do things and when you don't...rest. I...
I LOVE my detox baths!!! I can't imagine NOT doing them...even when I am feeling ok I still do them 2-3 times a week because I have had Lyme for so long I know there is a lot of crud I need to get...
I have 2 dogs and 2 cats. I cannot imagine getting rid of them. Both my dogs have Lyme, caught it in my yard. I STILL would not get rid of them(or move) I got chickens and ducks to eat the ticks :)...
Do lots of research. Knowledge is power. I have been *better* and I have been worse but the fact that I can go either way is actually encouraging to me, lol. LOTS of good info here and on people's...
I have always allowed myself a 30 minute *pity party* whenever the need arises. 30 mins to piss and moan and then move on. Ya HAVE to get it out, you know? Hoping tomorrow is a better day :)...
As someone still dealing with the ramafications of taking steroids(had to, severe allergic reaction to a bee sting)I will second that if it is not life and death...DON'T take them. I was doing well,...
Trader Joe's carries 2 drinks- Red Drink hich is antioxidants and Green Drink which is, well, greens. I have used both and I find them to be quite great. Cheaper, as both are under 20 bucks for abotu...
I second what has already been said about tinctures...I am fairly well versed in Herbs(general, not Lyme specific per se...) and whenever you start a new tincture start with ONE DROP several times a...
I as raw vegan for years, and ate my share of raw pumpkin seeds. Still have Lyme, and still have neuro-Lyme. With all due respect, this may not be the place to get your data from......
Thank you for all the replies...I so appreciate it :) Trav I got your email and will write you in the am as my nook is anawful thing to type on, lol......
I am on LDN for Lyme and Hashimoto's. My understanding is that SOME people stay on it forever but that you can get to the point where the immune system will pick up the slack and work better after...
Thanks Shabby and Traveler...I know I am not alone :) So, in just the 24hrs since I stopped taking the doxy I am significantly better. It is unbelievable. The Zith does not have the same *poisoning...
Sounds like you need to avoid gluten! I get sick from gluten as well. Takes up to 2 weeks to get out of your system, but I will say that when I am gluten free MANY other allergy symptoms disappear, I...
Coffee enemas are helpful if you are comfortable doing them, I find that it can aleviate a multitude of symptoms. Lemon water is also helpful. As far as herbs go...milk thistle is a good one for...
I second the cd57...most insurance co's ill cover the test and when I started mine was 19. I have seen it as high as 45. Haven't checked in a while...but my doc uses it as well. Better than sending...
I also avoid straight juice but am ok with smoothies. I have started using Truvia in place of sugar...I don't love it but it does sweeten things. Not sure you can bake with it but I use it in tea,...
I have been predominantly gluten free for years now. For me, gluten is definitely an issue as I get bloated, have a food coma, joints get achy, and my nose runs if I eat it. Sometimes I trial it as I...
Thanks Dan, as I said, I have done herbal protocols for extended periods of time in the past, and have used Samento, teasel, OLE, etc, and believe me, I have done my homework! :) I actually am the...
I am at my witt's end here...I am mostly a lurker here but I am just at a loss right now. I was bitten, best guess, back in '93, treated for some sort of *infection* as noone looked for Lyme then and...
North central, if possible...I am 30mins north of Worcester and can't drive far......
Thanks Traveler :) I had been doing ok until about 6mo ago I was stung by a bee and had to take steroids(I am allergic) I remembered that Steroids and Lyme were a bad idea, but I thougt I would be...
Do you think doxy and erythromycin would be a good combo? I have been doing doxy along and am doing a couple weeks of zith but my doc doesn't want me on that for too long due to gut issues...trying...
I am wondering the same thing...I know zithro can be rough on your gut, wondering it erythromycin would be effective? My doc looks to me to give suggestions as he is not a LLMD but willing to treat...
I never got tested, but I cannot eat anything with gluten. I immediately start to swell in my hands, nose starts to run, breathing gets wheezy...seems clear to me its not a good idea to eat it! I hae...
Yep.Oy. I have bart too. I turn into someone the likes of which I don't want to deal with! My poor family! I use Valerian, Kava Kava and something called Good Mood Tonic from HerbPharm. Seems to help...
You can't relapse if you haven't gotten to the point of remission... You haven't been treating that long. Your Dr. wanting you to take a break so you don't herx too badly is NOT a bad thing. You seem...
Hmmm, I had no trouble getting life insurance. My agent knows about the Lyme and it was a non-issue. It was worse for my hubby as his father died before he was 60, which makes your rate go up! Mine...
Even *overdo it* is different depending on who you ask... I have always exercised whenever I can. I am an ultra marathoner which means that there are times I am running 60+ miles a week. Then, there...
Basically, my Dr.tested me for EVERYTHING under the sun and everything else came back negative. That, and I did herx on abx. my CD57 was in the toilet and I had a few other co-infections and viral...
I am on it :) I started in December(I think) at 1.5mg and am now on 4.5mg which is the max dose. It does not work for everyone, and I believe it starts to work slower in people with Lyme. It took...
I am on LDN. I started in January and have eased up to 3mg per day. Inititally I felt nothing but I have to say over the last month I have noticed I am feeling better. It seems as if my immune system...
I had the ISAC panel done and it was fine...so says my doc. So I don't think ALL lymies have thick blood. Parasites, otoh.....I'm with you there...***shudders***...
He said it sort of hits you, then it stays for a while(or days, as it has at times with him) I think it varies. He has had it come and pass or weaken in a few minutes, and he has had it stay for a...
I would say a month? BUT that was about 2 weeks of NOTHING, not one single supplement, then I added back in some immune system supplements. I never stopped doing my epsom salt baths, drinking lemon...
Take a look at this: http://www.mayoclinic.com/health/costochondritis/DS00626/DSECTION=symptoms My husband has this and it scared me to death because I truly thought he was having a heart attack....
nymetts, I felt the same way, and have been treating with abx since 9/10 also. I just stopped my abx as well, because i simpy felt SO toxic despite doing all sorts of detoxing. My body just felt so...
Ya know what I always think, too is that these people who have 'dumped' us would not be able to survive if faced with dealing with what we do. I can think of a few people who would not know what hit...
I used to be really PO'd about it but I am better now...most days anyways... I have definitely lost friends. ANd it blows my mind. Even before this last 5 years I would NEVER have dropped a friend...
I gave birth to 3 kids while having Lyme. My oldest was bitten twice, got the rash and was treated for 30 days...his cd57 has been low ever since. My middle and youngest children also have very low...
I have been there.... My friend and ND has said that in cases where your system is already struggling less is not always more, and sometimes its better to deal with one thing at a time...as in ONE...
Yeah, doxy did a number on me too but after the 2 week herx from hell, I started to feel better and it is the only thing thus far that has made me feel halfway human again......
Me too...I am having random heart palps along with pain and wierd burning/pain in my colarbones. SO annoying!...
My lymph glands are chronically swollen. When I am really sick or herxing, they get huge and sore and are CLEARLY visible even to a lay person. Its your lymph system trying to fight *something*......
I am having the C4a test(amongst others) run right now as well...it is used in Lyme, though I can't remember why......
By day 3 I was sick as a dog, and that was only at 100mg bid. It lasted 2 weeks. When I upped my dose to 200mg bid though...I was ok. Very mild herx. I can't explain it, but I agree everyone is...
I avoid nightshades, as well as gluten and dairy(except for Kefir...gotta get those probiotics!) I am also a vegetarian/vegan. I certianly respect ALL people's food choices, and would never suggest...