Hi Traveler, I haven't been on here in so long, but was looking through messages tonight and yours caught my eye. I'm so happy for you that you are out LIVING life again. I just wanted to thank you...
Keep in mind that lyme testing is very inaccurate. Make sure that you get the full result for any lyme test (not just, it's Negative). You need to know what kind of test it was and what the numbers...
Hello, If you click on my screen name above, my e-mail address will show up in my profile. Go ahead and e-mail me. FYI-my Immunoglobulin IgG levels were normal back in 2011/beginning of 2012, IgM was...
Look into Lyme Disease and lyme co-infections such as Babesia and Bartonella. Those infections cause all of the symptoms you describe. You will need to see a LLMD (lyme literate MD) to be properly...
47 comments. Let's keep them coming so we will hopefully be heard!...
Comments can be posted on their site. Let's try to get as many responses as possible so that hopefully the word will get out that Dr. Halpern is WRONG....
Hi Everyone, I haven't been on in quite a while. Busy taking care of my children and, well, dealing with lyme and co-infections. A long process, as all of you know all too well! I just found out that...
Hi Justme! I haven't been on for a while and was just checking to see how you're doing. Sounds like you are still having a rough time of it. I hope you find the right LLMD for you to help you heal!...
Lyme and co-infections cause dizziness. And if it's increasing on Doxy, it's probably a herx. Talk to your dr. about it though....
I have 24/7 visual snow. Was one of my first noticeable neuro. symptoms. I'm a year in to treatment. So far, I still have it. It is much better at times though. When I'm herxing or flaring bad, the...
I tested positive on band 31 and my LLMD told me that it is THE MOST highly specific lyme band that there is....
If you have had lyme disease in the past, it's very likely that you still have an active infection. Most drs. will tell you that you have "post lyme syndrome" or post lyme chronic fatigue. However,...
Thank you so much everyone, for being happy for me and wishing me well! Of course, I still have a long way to go, but when I look back to last summer, I have made a lot of progress. I think that's...
My LLMD doesn't test for co-infections, but treats clinically. She said that the co-infection testing is very expensive, is even more inaccurate than lyme testing, and that even if it came back...
I've had those for a long time. Before I even got really sick, but I do think I've had dormant lyme for many year. I've thought the same thing as you-it looks like the classic spirochete photos....
That is very typical when starting lyme treatment. It is definitely herxing. The bacteria are dying and "going down kicking and screaming" and releasing toxins. In my opinion (and others will...
I just wanted to say hello. I haven't been on in a while. I've been very busy with, well, "life" :-). My son is home now for summer break so with him and my 2 year old, I'm a busy mom right now. I've...
I get a vibration sensation in the back of my head and down my spine. My LLMD said that is usually from Babesia. I also get muscle fascinations that are very fast and then also twitching....
If you had the bulls-eye,you have LD. Bottom line is, it should be a clinical diagnosis because the blood tests are highly inaccurate. You need to see a LLMD (lyme literate MD) to be properly...
Typical abx. for Bartonella are Rifampin w/ Minocycline. Azithromycin combined with Bactrim can also be effective, but my LLMD said that she sees the best results with Rifampin. If you go to Stephen...
Oh yes, I've felt like I was dying during many herxes; it's horrible!!!! Sounds like it's time to take a day or two break from the meds. or at least reduce the dosage to let your body catch up with...
That's soooo wonderful, Just me! I'm very excited for you! Keep up the good work at healing :o)!...
Ditto what heather said-start the search for a goodLLMD asap. Make sure he/she is ILADS trained and ask how long they've been treating Lyme and what their success rates are....
There are 2 well-know, very good LLMDs in D.C. If you click on my profile, you will find my e-mail address and I can send you the info....
I would get her to a LLMD asap. There are many co-infections of lyme disease such as Bartonella and Babesia which complicate lyme treatment even more. Dr. Jones is the leading pediatric LLMD. His...
Prariegirl, do not worry about posting when you are feeling down. This forum is here so we can help each other get through these horrible times. Believe me, you are not alone in feeling the way you...
I'm not familiar with Quests testing, but I do know that on a Western Blot, band 93 is specific to lyme disease. THe best thing that you can do is to find a LLMD (lyme literate MD) that can properly...
Mine was a sudden onset of systemic, severe symptoms after delivering my daughter. Severe Fatigue Nausea, vomiting, bloating, belching Muscle pain 24-7 visual snow tinnitus tingling and numbness...
Definitely looks like she has Lyme. I recently asked my LLMD which bands are lyme specific and she said 23, 31, 39, 41, and 83-93...
That's WAY too high and could be dangerous! I was on 200mg. That's aggressive with Mino. It's the equivalent of 400 mg doxy....
Your e-mail isn't enabled on your account. E-mail me-if you click on my screen name, it will show my email. I'll email you back....
I see a wonderful LLMD in Indianapolis. She is outstanding! From what I understand, she's not accepting new patients right now, but I do know that her office staff is referring people to 1 of 2 Nurse...
So glad that this forum has helped you! It was the same thing for me. My drs. all treated my like I was nuts while I was extremely ill. I kept coming back to this site and it was the encouragement on...
I was bitten around age 10 and have had no other bite that I know of. Growing up, I had minor symptoms-some fatigue and aching, but very active and functional. Then, in 2011 after pregnancy, I became...
It's due to the controversy over lyme disease treatment. THe LLMDs risk their licenses by prescribing long-term abx. to treat Lyme Disease. We want to protect them....
Unfortunately, the situation you describe is very common. To be honest, even if your Western Blot was positive, your PCP would probably deny that you have it. The advanced lab culture test is more...
Yes, I'm on 200mg/day of it. Like someone else said, it's the equivalent of 400mg of doxy and has better brain penetration. It also causes less of the issues of sun sensitivity that doxy does and for...
It sounds like a typical herx. From what I understand, the only infections that cause a herxheimer reaction are lyme and lyme co-infections and syphillis. Mino. can cause some dizziness that usually...
Well, I would definitely call your LLMD and see what he/she says. From my understanding, appendicitis usually causes severe pain, vomiting, and a high fever, but it may not be a bad idea to have a...
I'd go with your LLMD. LLMD can/does cause all of those things. It suppresses the immune system, which is why previously dormant viral infections become active (HHVD, Epstein Barr). After the lyme is...
If you look back to when you first had some of these symptoms, that may be when you got it. However, it can lay dormant for many years before a person develops symptoms. Irregardless of when you got...
WOOHOOO!!!!! 18 weeks! That's wonderful Traveler! You are such an inspiration to all of us. God bless you!...
I think that it's very common to doubt the diagnosis, especially because of the lack of knowledge about it and the way that the medical community doesn't recognize it. I do also doubt the diagnosis...
Thanks for sharing this. I am thinking about having this ordered for my 7 yr. old son who may be showing symptoms. I want to know definitely yes or no as the whether he has it. He's so young, I don't...
Thank you so much for sharing! How long in to treatment did you start to feel better? How did you decide to go from abx. to herbals?...
Sounds like the Cipro created a herx, which means that you still have an active infection and need to remain on treatment. My LLMD said she treats until 2 months after a person's symptoms are gone...
If you still have symptoms, which you do, then you still have an active infection. A good LLMD will treat for 2 months after symptoms subside!...
It definitely sounds like herxing. Herxing causes severe depression and anxiety; especially with babesia. The only thing to do is to detox as much as possible & in many ways as possible and just keep...
I think the key to know is that MS is a real disease, but lyme disease is a cause of MS. Lyme disease causes the autoimmune process and when the body starts attacking the myelin sheath it's named as...
Thanks everyone for your kind words and advice. You are right, I need to go easy on myself, let myself grieve, and focus on hope for the future. I am doing the best I can and love my children so...