mcspike, I'm totally where you are in my thinking these days... After 8 years of herbal antibiotic and anti-parasitic protocols and getting worse, it's occurred to me that my issues could be more...
Ah that's very interesting! Yeah, I'm sure the hyperthyroid state as well as the thyroid adjustment has been hard on my adrenals. And I've been a bit anxious that I've made bad decisions about dosage...
Do you think fast pulse (76-80... fast for me), and this sensation of a really big pulse that kind of shakes my body so much it keeps me awake... is adjustment symptoms or lingering hyperthyroid...
I feel you on this. Maybe it's about finding a way for your current diet to not feel restrictive, and as much as possible, to try to not think of foods as "good" and "bad/cheat"... I think that can...
Oh how terrible there was a shortage! What a nightmare. I think I will definitely only adjust very gradually from here. I only dropped so much so quickly this time because it felt like such a crisis...
Astro -- sorry to hear your thyroid took such a hit. Yeah I've already had some weird side effects. I think my blood pressure has been affected. I feel pretty good about the dosage decreases.. up...
I ended up dropping my naturethroid by 1 grain. Felt a little better. When I finally talked to my dr on Tuesday, he said that's what he would have told me to do. Later that day, my heart started...
Hmmm that's interesting about skipping a dose... I will bring all of these issues up with my doctor on Tuesday.... pituitary, adrenals... I'm just currently wondering how to get from now until...
So neither of you ended up having a pituitary issue? I refrained from decreasing my dosage today.. It felt more responsible to wait and talk to my doctor on Tuesday.. But now it's 2pm, when my...
Girlie and Astro, that's a good idea.. To look further into the pituitary gland. None of the doctors I've seen has thought of that, and it now seems like an oversight....
Hi Astro! I've had antibodies tested.. all three I believe.. I've never had any autoimmune issues. The conclusion has been that it's a bit mysterious.. probably not an actual thyroid problem so much...
Yes exactly! My TSH indicated hyperthyroid even when all of my actual thyroid levels (FT3, FT4, even reverse T3, were well below range). So we concluded that something was off in the communication...
After years of being hypothyroid, no matter how much thyroid replacement I was taking, I am suddenly high in both my T3 and T4. I imagine this is a good sign! Something has shifted. It must be...
Thanks everyone. Purrsiankitty... So maybe it was helping but you still elected to come off it? Did you have more symptoms as you weaned? And did you then stabilize again at some point? You guys are...
I've been on it for years.. 4.5 mg.. Had no idea if it ever really did anything so I decided to try coming off it. Had a couple more severely bad days. Always hard to know... would I have had them...
Blending is a lot easier.. and many of the same benefits... Could be a nice compromise until you get more energy, or on some days.....
Hi Trav! I use an IR sauna regularly but don't do much special before or after... Definitely rinse off soon after, as toxins can start to reabsorb after about 5 mins. And drink water before and...
Planning to give colloidal silver a try... Is there anything I should know? Dosage and time of day? Do I start at one dosage and increase? Should I expect die-off or any other symptoms?...
Exactly Pirouette, it's so encouraging! Bluelyme, he IS a ninja! I'm so impressed that he found his own way out. The snake venom is not one of the suggestions I've tried yet! ;)...
I just posted this review of a new book about Lyme Disease I just read. It's by someone who was very sick and made a full recovery. I found it so helpful.. I'm making a bunch of changes based on the...
Thanks for the thoughts! Astro... Good sleuthing questions, thank you! I've had that runner outer IT band issue in the past and this feels different. Feels like maybe the IT band issue was a baseline...
For the past five months I've had pretty intense pain in my left knee, and I've lost range of motion (can't bend it past like 60 Degrees or put any weight on it when it's bent). I assumed it was an...
I practice yoga a lot.. A few times a week at a studio and as needed at home.. It helps my pain level so so much, I really don't know how I'd have managed with all the lyme pain without it. Sometimes...
Sorry for the delay, I was away from the forum for a second.. Wanted to say thanks for the responses!! Huddie, piano is peaceful :) Astroman, glad you're impressed though I'm also laughing cause I...
Girlie, that sounds sweet :) <3 <3 Julymorning, I am doing a homeopathic EBV treatment right now... We're not sure but it seems like my levels are high enough to indicate a woken-up EBV infection......
I'm freaking out a little because my work is that I'm a pianist. Mostly I think I just don't feel well though....
Is fingertip numbness a lyme symptom? It's pretty alarming. I don't remember having this before, but maybe I just don't remember. My fingertips are also very wrinkled... I'm used to this on bad lyme...
I've been on time released T3 for a while. It never felt great in my system. I'm actually working on phasing it out, and just started today! Up on my naturethroid, down on the T3. But everyone seems...
Elaine gave me a helpful answer.. Thanks so much again for that resource, CD...
CD, I posted to Elaine.. Waiting to see if I get a reply.. Thanks again for letting me know about that resource. And I read that Dommisse article last night.. Very interesting! It did calm me a bit...
CD, that's a great metaphor.. Some folks I've heard from think that I'm in a dangerous situation on so much thyroid, like its covering up a serious problem of some kind. You (and my dr) seem to be...
CD, Thanks so much for replying, I was hoping to hear from you! What do you think about the idea of decreasing on the T3 as I increase on the Naturethroid? We're considering that because the T3 never...
Ah Trader yeah that definitely scares me reading that!! I appreciate it, though. The appointment didn't clarify much for me. My doctor definitely thinks there's more going on that just a thyroid...
Thank you Krimpet and Trader, this is so clarifying. Krimpet... Yeah leaky gut, adrenals, and liver may well be at play. I have limited my diet a whole lot because digestion feels so difficult. What...
Around the beginning of the year I was below range with my T3 and T4 even though I was supplementing with naturethroid, levothyroxine, and some bioidentical T3. I’ve gradually increased on the...
I have this periodically and attribute it to dehydration/extra salt. Also could be thyroid....
Ok sounds good, I'll try to ignore TSH :) And I'll try to not let it bother me when my doctor alternately cares and doesn't care about TSH! Sounds like I should advocate for another increase and see...
That's interesting, Traveler. I guess I could make the case to my doctor that I still need more even though my TSH is so low. Astroman, I take my thyroid replacement every morning... And I get my...
Thanks everyone. Thanks astroman! I definitely feel better than March. I still don't feel well, but as you say, that could be my infections (lyme, bartonella, babesia, EVB likely) Yes, unnecessarily...
Backstory... Around March I had my thyroid tested after a year, and despite being on a combo of 50 mg levothyroxine, 20 mcg bio-identical T3, and 1.5 grains of Naturethroid, my T3 was below range...
I finally got up to seven days 'on'... That seems like progress... Though I'm still at the lowest dose. Maybe next round I'll increase. But same thing happened again, my first day OFF in seven days I...
Mine was during a herx that caused some real cognitive disarray. First I spilled water on my computer... causing it to stop working. Then I thought, "Maybe I'm someone who knows how to fix...
I'm pulsing herbs but I think it's because they are parasite killing herbs....
I haven't asked this cause I think I didn't want to know the answer! I do them daily, I just feel so much more ok, it's the difference between a possibly ok day and a bad day for me... So I guess I'm...
Thank you all so much for the thoughts. Boy does it mean the world when you're feeling lousy!! Krimpet, his explanation was that parasitic infections quickly go into hiding when you start to treat...
A few weeks ago I started Botanifuge, a broad-spectrum antimicrobial... Has such things as black walnut, oregano, wormwood, clove, grapefruit seed extract. I've been nervous about the potential...
Thanks for this great thread, Antonio. And I loved reading all of the entries. I traveled this month. It felt very scary to leave my apartment, where I can control external factors to give myself the...
cd, thanks so much for all the great information. So I'm up to 4 grains now... and also still taking the 50 mcg levothyroxine and 20 mcg bioidentical t3. So I guess I'm like those 5 grain people when...
Trav, I'm so grateful for a fellow (and super knowledgeable) lyme warrior :) Yeah I was really happy... danced a little.. when I got the email to increase lol Jingles, ever since I was 20 I've have...
Traveler, I think I've told you that you're basically my hero. Does babesia lower body temperature? I appreciate the thoughts so much.. I find myself in so much doubt about how to proceed with this...